Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

THINK I'm celiac

Tabbmarie

By Tabbmarie
in Meet Up Room

Recommended Posts

Tabbmarie Newbie
Tabbmarie
Posted

So I havent been diagnosed. But was experiencing some pretty terrible stomach pains, And started paying attention to what i was eating. And that's when I realized that wheat and bread really do not agree with me. So it's only been a few days of trying to eat gluten free, And it's so terrible. This sounds so dumb, but I feel like life is over because i won't be able to eat some of my favorite things. And the idea of being infertile from this absolutely terrifies me. I'm only 23. And I keep googling things about celiac and making it worse for myself and freaking myself out. This sucks so bad. Even trying to be gluten free, it's just so hard. Everything has gluten. I'm just having a rough time coping with the idea of this already. Any tips on how to get better at This? And how long it takes to feel better? And if you have any amazing recipes, please do share. 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ennis-TX Grand Master
Ennis-TX
Posted
5 hours ago, Tabbmarie said:

So I havent been diagnosed. But was experiencing some pretty terrible stomach pains, And started paying attention to what i was eating. And that's when I realized that wheat and bread really do not agree with me. So it's only been a few days of trying to eat gluten free, And it's so terrible. This sounds so dumb, but I feel like life is over because i won't be able to eat some of my favorite things. And the idea of being infertile from this absolutely terrifies me. I'm only 23. And I keep googling things about celiac and making it worse for myself and freaking myself out. This sucks so bad. Even trying to be gluten free, it's just so hard. Everything has gluten. I'm just having a rough time coping with the idea of this already. Any tips on how to get better at This? And how long it takes to feel better? And if you have any amazing recipes, please do share. 

You should keep eating gluten for now....you have to for the test. They do a blood test that requires you to be eating gluten daily for 12 weeks then a endoscope with biopsies to check for intestinal damage. Doing this now instead of later is best....after going gluten free the "Gluten Challenge" of eating it daily for 12 weeks is MUCH worse, as most have much more severe reactions
Open Original Shared Link

It is really not that bad..there is gluten free everything now days.....more of just changing brands. Many have to remove other foods at first til their intestines heal so we suggest only whole foods diet for awhile and removing dairy and oats for a month or so at first. (with damaged villi with this disease you often lack the ability to produce the enzymes to break it down, and oats are commonly contaminated and/or you might be the 10% of celiacs that react to oats also) I will show you a list of some trusted gluten free foods and brands...bit of everything.
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/
The testing is something you really might want to look into the scope will help identify any other issues you might have in the upper digestive tract.

 

Link to comment
Share on other sites
Tabbmarie Newbie
Tabbmarie
  • Author
Posted
3 hours ago, Ennis_TX said:

You should keep eating gluten for now....you have to for the test. They do a blood test that requires you to be eating gluten daily for 12 weeks then a endoscope with biopsies to check for intestinal damage. Doing this now instead of later is best....after going gluten free the "Gluten Challenge" of eating it daily for 12 weeks is MUCH worse, as most have much more severe reactions
Open Original Shared Link

It is really not that bad..there is gluten free everything now days.....more of just changing brands. Many have to remove other foods at first til their intestines heal so we suggest only whole foods diet for awhile and removing dairy and oats for a month or so at first. (with damaged villi with this disease you often lack the ability to produce the enzymes to break it down, and oats are commonly contaminated and/or you might be the 10% of celiacs that react to oats also) I will show you a list of some trusted gluten free foods and brands...bit of everything.
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/
The testing is something you really might want to look into the scope will help identify any other issues you might have in the upper digestive tract.

 

I 100% get that. But I can't handle the pain of eating gluten. My stomach hurts so bad and I get so nauseous the rest of the day, it hurts my back so much that it hurts to even breath if it gets bad enough. Ruins the whole rest of the day when I do. 

Link to comment
Share on other sites
Ennis-TX Grand Master
Ennis-TX
Posted
35 minutes ago, Tabbmarie said:

I 100% get that. But I can't handle the pain of eating gluten. My stomach hurts so bad and I get so nauseous the rest of the day, it hurts my back so much that it hurts to even breath if it gets bad enough. Ruins the whole rest of the day when I do. 

This is your choice, though you do not need to eat much just a half slice of bread, a few crackers, or a tsp of wheat germ a day, eating at night before bed let some people sleep it off for the worst of it.

If you decided to go gluten free chocking it up to celiac or non celiac gluten sensitivity that is your choice, we have a few member who have had the same issues with the challenge. They are saying they are working on new testing methods that will forgo the poison ritual to prove it damages our intestines and is causing a immune reaction....about time right?

Anyway welcome to the forum, I am sort of the Sheldon cooper of the lot lol. I do baking and chef work for my income, but I have many other food issues as my disease was not addressed early enough and I developed complications with other disease and multiple food intolerance and allergies. So most my stuff is Keto/Paleo base and many vegetarian options. I do have recipes for grain free baked goods etc. But best you be off breads til you forget what gluten taste like before trying them or any gluten-free bread for that matter.
Here is the newbie 101 thread to review if your going to be assuming you have celiac.
https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

Link to comment
Share on other sites
mom2boyz Apprentice
mom2boyz
Posted

I'm a new to gluten free also, it helps that my husband was already grain free, so we didn't have much of an adjustment other than no cookies or dining out for me anymore.  You're going to have to change the way you eat.  Look up the no sugar no grains diet, or the paleo diet, start trying new recipes, eating new foods, and stay away from processed food substitutes, it's really tough the first couple of weeks, but you'll find that after a few months you'll like veggies a lot more, and foods that weren't sweet before will be much sweeter later. 

It's probably going to sound gross, but my favorite easy to make, feel good comfort food is sardines mashed with avacado on rice cakes.  Roasts in the slow cooker are really good and easy to make too.

I suspect I have had celiac (not confirmed, and until there is a gluten free test it will stay that way) since I was in my mid teens, and I had 2 kids in my 20s but was infertile when trying for #3 at about 30, but that was about the time my digestive system refused to digest anything at all and I was also super skinny size 0, which can't be good for a baby anyway.  So, hopefully, if you keep up with the diet, you'll have more time to have kids than I did.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      124,669
    • Most Online (within 30 mins)
      7,748
    Phillus Maximus
    Newest Member
    Phillus Maximus
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Extreme bloating even gluten-free

      By Wheatwacked · Posted

    • Wheatwacked
      Extreme bloating even gluten-free

      By Wheatwacked · Posted

      Welcome hilly and Schellee94, and JulieF.      There is more to recovering from Celiac Disease than simply not eating wheat, barley, rye products. Ceilac malabsorption syndrome causes us to not absorb the nutrients we eat, so we imperceptively slip into malnutrition.   Children recover quickly.  Adults can take years because of unidentified vitamin and mineral deficiencies.  Top of the list is vitamin D, then Thiamine, then Choline, and Iodine. I, too, like Dr. Hyman.  Also Dr Davis (Wheatbelly) and Dr Amen.  While promoting gluten free, they are not dealing with the level of deficiencies brought on by the autoimmune malnutrition that comes with celiac disease.  You do not need a cleaning, Celiac has done that for you.  You do need agressive vitamin and mineral replenishment.  Those promoting cleanses do not take into account the malabsorption /malnutrition of celiac disease.   It will make you worse.  Your gut biome is changing and without the opiod effects of gluten you are not being numbed.  But you are not getting the vitamin and minerals you need to heal.  It is way higher than the mininmum RDA.  That is the amount it takes for 98% of the HEALTHY population to not show signs of deficiencies.  Good for food service meal plans to keep costs in check.  Healing takes more than sufficient. These are the vitamins and minerals I have taken.  At this point I daily take vitamin D, Iodine and thiamin.  Choline I bounce between phosphatidyl choline capsules and when my anorexia allows lots of eggs and beef. Try supplementing vitamin D, Choline, Thiamine and Iodine, while also ensuring vitamin B2,3, 5, and 12 intake.  Get your folate from food, not folic acid. Reducing homocysteine (cardiovascular inflammation) uses a DV of 500,000 micrograms of Choline, versus only 2.4 micrograms of B12,  400 micrograms of Folate and 1,700 micrograms of B6.  Avoid all processed food until you heal. Gluten Free included.  Eat the foods we ate before TV Dinners. Use sugar or fruit for sweetness, not High Fructose Corn Syrup.  Sugar breaks into glucose straight to the mitochodria to create ATP energy.  No glucose = no energy.  Everything else has to be processed by and overwhelmed malfunctioning digestive system of Celiac Disease.   Since 1970 in the US we have switched to HFCS, )even Schwepp's Ginger Ale), took idodine out of dough conditioner, adopted the modern wheat and limited eggs and meats.  In return, 50% of the US are obese vs. 17% in 1970. Additional likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 650 mcg a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D to control autoimmune, improve mood, especially the winter doldrums (Seasonal Affective Disorder), bone and dental health.   Vitamin D Is Not as Toxic as Was Once Thought: A Historical and an Up-to-Date Perspective 500 mg Thiamine - neurologic symptoms, carbohydrate metabolism, subclinical beri-beri. Choline – Adequate intake 500 to 3000 mg - essential for fat digestion, gall bladder, liver, brain fog, cell membranes, prevent congenital spinal defects.   Could we be overlooking a potential choline crisis in the United Kingdom? Iodine – 1000 mcg of Liquid Iodine once or twice a day. United States RDA 150 to 1100 microgram (mcg) Japan RDA 150 to 3000 mcg. speeds up healing, muscle tone, brain fog, hair and skin, thyroid. 10 drops of Strong Iodine has 500 micrograms of elemental Iodine. Nori and Kelp. For some people with Dermetitis Herpetiformus, iodine can exasperate the rash. Iodine for Hormonal Health "Your ovaries also need iodine and without enough their structure changes. Iodine-deficient women can produce ovarian cysts and are at risk of developing PCOS." Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol.  Niacin Fact Sheet for Health Professionals 500 mg Pantothenic Acid - creates energy from glucose Krebs Cycle 1000 mcg B12 - creates hemoglobin for oxygen transport 500 mg Taurine - essential amino acid, a powerful antioxident that we make indogenously, but not enough when sickness increases inflammation. reduces Reactive Oxygen Species (ROS are are free radicals.). I've been using Zinc Glyconate (Cold-Eeze) since 2004 anytime I feel an itchy throat or other sign of air borne virus coming on.  I haven't had cold or flue, including Covid 19, since. Naturally fermented dill pickles reestablished lactobacillus in my gut and reversed my recently acquired lactose intolerance.  100% grass fed dairy is less inflammatory. Milk is a good source of iodine. Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation while increasing vitamin and mineral intake..  The target omega 6:3 ratio is less than 3:1.  The typical western diet is from 14:1 to 20:1 because of our food choices.    
    • Julie F.
      Extreme bloating even gluten-free

      By Julie F. · Posted

      I have dealt with celiac disease for over 22 years. I was then positively diagnosed with a blood test. I was pregnant with my second child at the time. I eliminated wheat (barley, spelt, etc..) from my diet and as a side benefit, I noticed that the psoriasis on my ankles, elbows and knees had gone away after about a year. I made the connection that eating wheat had been causing my skin problems as well as abdominal issues. Turns out that they are both autoimmune diseases of which inflammation is a symptom. I also deal with dupuytren’s contracture. Not sure if there is a relationship there… am studying that one. Flash forward to near present time and menopause, my psoriasis was coming back even though I was careful in avoiding gluten. I did a bit of research and found new information on the relationship of gut health and autoimmune disorders.  Understanding that my symptoms were somehow food related, I decided to see an ND… Nature Pathic doctor and we did a gut zoom.  This is where they test a sample of your poop to see how healthy your gut biome is.  I was seriously lacking in certain key vitamins, healthy prebiotic factors as well as beneficial bacteria.  I followed an elimination diet and discovered a new sensitivity to corn by-products which I am now avoiding and I follow a regime of supplements and healthy diet (eating a rainbow of vegetables and organic if possible) to help me have a healthier gut biome. The psoriasis is reducing in size and I am feeling better. I am thinking that a gut zoom would be one of the first places to start for anyone dealing with celiac disease… it took me twenty years to figure it out.  I personally believe that factors contributing to my autoimmune issues are due mostly to what I was exposed to. My parents were heavy smokers and I was continually on antibiotics as a child because of ear, nose and throat infections. Antibiotics destroy a healthy gut environment. There is also information indicating that herbicides with glyphosate… that most US farmers use at harvest time (wheat, corn, soy, potatoes…) can be detrimental to gut health as well.   Interestingly, we inherit our own gut health from our mother’s womb before we are even born.  Is this part of the source of our genetic disposition for celiac and possibly other inflammatory diseases? I think that increasingly, more research will be done as medical professionals are making connections to gut health and immunity diseases… reading medical research papers has been challenging, but very helpful. I suggest using credible medical research papers and professional and government agencies when studying up on this relationship, don’t just take my word for it, but I did find the results from my gut zoom to be an invaluable resource.
    • Schellee94
      Extreme bloating even gluten-free

      By Schellee94 · Posted

      I'm having the same issues. Many things are causing extreme bloat. I'm dairy-free gluten-free and I also have to avoid sugar, quinoa, millet, teff, buckwheat, nightshades, alfalfa, all grasses, and chia hurts my joints. Canned garbanzo hurts me. Most beans hurt me. If I make lentils I soak and rinse several times and that makes them edible for me. I seem to be avoiding fresh garlic and onion as well fresh onion gives me a headache. I'm ok on corn, but not most soy. Rice is sort of ok. Then gluten free oats are ok if raw (not cooked, overnight oats are a good choice) . The list keeps growing and so does the bloat. I'm the same weight I was 2 years ago and much bigger in my arms and my belly and back. I'm looking at trying Dr Hyman's cleanse suggestions, and having a good amount of steamed cruciferous vegetables, as a mainstay for awhile. But it's pretty pricey for organic. I've been making my own bone broth but I cook it a lot longer so that I can get nutrients out of the bones not just the meat. This broth has helped me tremendously even though I would prefer not to have much meat it seems I really need it right now. I cannot eat pork it makes me feel poorly and I can't eat very much red meat for the same reason. If the eggs are raised properly I can eat the yolks and only sometimes eat the whites.  I hope this is helpful to highlight some triggers you might be experiencing yourself. There are some other posts here on the forum that highlight digestive enzymes and clean probiotics, as well as lectins. I'm going to look into that.
    • trents
      Extreme bloating even gluten-free

      By trents · Posted

      Some studies, with admittedly small sample sizes, show that about 50% of celiacs react to the protein casein in dairy the same way they do gluten. Can't find the NIH article I'm looking for but this one basically makes the point:   
×
×
  • Create New...