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THINK I'm celiac

Tabbmarie

By Tabbmarie
in Meet Up Room

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Tabbmarie Newbie
Tabbmarie
Posted

So I havent been diagnosed. But was experiencing some pretty terrible stomach pains, And started paying attention to what i was eating. And that's when I realized that wheat and bread really do not agree with me. So it's only been a few days of trying to eat gluten free, And it's so terrible. This sounds so dumb, but I feel like life is over because i won't be able to eat some of my favorite things. And the idea of being infertile from this absolutely terrifies me. I'm only 23. And I keep googling things about celiac and making it worse for myself and freaking myself out. This sucks so bad. Even trying to be gluten free, it's just so hard. Everything has gluten. I'm just having a rough time coping with the idea of this already. Any tips on how to get better at This? And how long it takes to feel better? And if you have any amazing recipes, please do share. 

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Ennis-TX Grand Master
Ennis-TX
Posted
5 hours ago, Tabbmarie said:

So I havent been diagnosed. But was experiencing some pretty terrible stomach pains, And started paying attention to what i was eating. And that's when I realized that wheat and bread really do not agree with me. So it's only been a few days of trying to eat gluten free, And it's so terrible. This sounds so dumb, but I feel like life is over because i won't be able to eat some of my favorite things. And the idea of being infertile from this absolutely terrifies me. I'm only 23. And I keep googling things about celiac and making it worse for myself and freaking myself out. This sucks so bad. Even trying to be gluten free, it's just so hard. Everything has gluten. I'm just having a rough time coping with the idea of this already. Any tips on how to get better at This? And how long it takes to feel better? And if you have any amazing recipes, please do share. 

You should keep eating gluten for now....you have to for the test. They do a blood test that requires you to be eating gluten daily for 12 weeks then a endoscope with biopsies to check for intestinal damage. Doing this now instead of later is best....after going gluten free the "Gluten Challenge" of eating it daily for 12 weeks is MUCH worse, as most have much more severe reactions
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It is really not that bad..there is gluten free everything now days.....more of just changing brands. Many have to remove other foods at first til their intestines heal so we suggest only whole foods diet for awhile and removing dairy and oats for a month or so at first. (with damaged villi with this disease you often lack the ability to produce the enzymes to break it down, and oats are commonly contaminated and/or you might be the 10% of celiacs that react to oats also) I will show you a list of some trusted gluten free foods and brands...bit of everything.
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/
The testing is something you really might want to look into the scope will help identify any other issues you might have in the upper digestive tract.

 

Tabbmarie Newbie
Tabbmarie
Posted
  • Author
3 hours ago, Ennis_TX said:

You should keep eating gluten for now....you have to for the test. They do a blood test that requires you to be eating gluten daily for 12 weeks then a endoscope with biopsies to check for intestinal damage. Doing this now instead of later is best....after going gluten free the "Gluten Challenge" of eating it daily for 12 weeks is MUCH worse, as most have much more severe reactions
Open Original Shared Link

It is really not that bad..there is gluten free everything now days.....more of just changing brands. Many have to remove other foods at first til their intestines heal so we suggest only whole foods diet for awhile and removing dairy and oats for a month or so at first. (with damaged villi with this disease you often lack the ability to produce the enzymes to break it down, and oats are commonly contaminated and/or you might be the 10% of celiacs that react to oats also) I will show you a list of some trusted gluten free foods and brands...bit of everything.
https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/
The testing is something you really might want to look into the scope will help identify any other issues you might have in the upper digestive tract.

 

I 100% get that. But I can't handle the pain of eating gluten. My stomach hurts so bad and I get so nauseous the rest of the day, it hurts my back so much that it hurts to even breath if it gets bad enough. Ruins the whole rest of the day when I do. 

Ennis-TX Grand Master
Ennis-TX
Posted
35 minutes ago, Tabbmarie said:

I 100% get that. But I can't handle the pain of eating gluten. My stomach hurts so bad and I get so nauseous the rest of the day, it hurts my back so much that it hurts to even breath if it gets bad enough. Ruins the whole rest of the day when I do. 

This is your choice, though you do not need to eat much just a half slice of bread, a few crackers, or a tsp of wheat germ a day, eating at night before bed let some people sleep it off for the worst of it.

If you decided to go gluten free chocking it up to celiac or non celiac gluten sensitivity that is your choice, we have a few member who have had the same issues with the challenge. They are saying they are working on new testing methods that will forgo the poison ritual to prove it damages our intestines and is causing a immune reaction....about time right?

Anyway welcome to the forum, I am sort of the Sheldon cooper of the lot lol. I do baking and chef work for my income, but I have many other food issues as my disease was not addressed early enough and I developed complications with other disease and multiple food intolerance and allergies. So most my stuff is Keto/Paleo base and many vegetarian options. I do have recipes for grain free baked goods etc. But best you be off breads til you forget what gluten taste like before trying them or any gluten-free bread for that matter.
Here is the newbie 101 thread to review if your going to be assuming you have celiac.
https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

mom2boyz Apprentice
mom2boyz
Posted

I'm a new to gluten free also, it helps that my husband was already grain free, so we didn't have much of an adjustment other than no cookies or dining out for me anymore.  You're going to have to change the way you eat.  Look up the no sugar no grains diet, or the paleo diet, start trying new recipes, eating new foods, and stay away from processed food substitutes, it's really tough the first couple of weeks, but you'll find that after a few months you'll like veggies a lot more, and foods that weren't sweet before will be much sweeter later. 

It's probably going to sound gross, but my favorite easy to make, feel good comfort food is sardines mashed with avacado on rice cakes.  Roasts in the slow cooker are really good and easy to make too.

I suspect I have had celiac (not confirmed, and until there is a gluten free test it will stay that way) since I was in my mid teens, and I had 2 kids in my 20s but was infertile when trying for #3 at about 30, but that was about the time my digestive system refused to digest anything at all and I was also super skinny size 0, which can't be good for a baby anyway.  So, hopefully, if you keep up with the diet, you'll have more time to have kids than I did.

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