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How Soon After Eating Gluten Do You Have Breakouts?

zzzzlm456

By zzzzlm456
in Dermatitis Herpetiformis

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zzzzlm456 Newbie
zzzzlm456
Posted

I've searched the posts on this forum, but I can't seem to find a good answer to this question. I was diagnosed with DH four years ago, and started on a high dapsone dosage together with the gluten-free diet. I stepped my dapsone dose down over time and haven't taken any for about five months.

 

I believe I'm pretty good about the gluten-free diet, but sometimes I slip up and get a small breakout. I'm interested in knowing how soon after eating gluten do other DH-folks see breakouts? This will help me pinpoint what I ate that caused the breakout. My sense is that if I eat something with gluten during the day, I'll notice either during that night or the following morning. Do other people have the same experience?

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squirmingitch Veteran
squirmingitch
Posted

Sorry, but there's no real answer to that. Everyone is different & I think a lot depends on how long you went undiagnosed & therefore how many antibodies were hiding under your skin, how long you've been strict gluten free, how sensitive you are and probably more variables enter the picture. 

I am ultra, ultra, unbelievably sensitive but did not always know that. Either that or I became more sensitive during the gluten-free journey. Who could really say? Anyway, I am 6+ years gluten-free now & for 1 year at least, I had not eaten anything that was processed. Everything was fresh food period! That was when I TRULY got rid of all the rash --- ALL OF IT. Now I've been trying to add foods back in, with failures & successes along the way. Slow going! One food at the time. I have been able to add almond flour but ONLY Barney Butter Almond Flour & I have been able to add Smuckers Natural Peanut Butter (peanuts & salt only). The Barney Butter Almond Butter was a bust for me --- the palm fruit oil in it got me -- that is a new food intolerance for me. I just tried Nutiva Coconut Flour (certified gluten-free) --- I used 3 Tbls. in a peanut butter cookie recipe that made 20 cookies. I ate those over about 7 days time & made another batch & in about 2 days began getting dh blisters & GI symptoms so it was a case of EXTREMELY low level continuous  exposure & it took a while to present. 

  • 2 weeks later...
girlinthesun Newbie
girlinthesun
Posted

My rash reacts within 3 minutes of consuming gluten, but as the person above stated reaction time may vary person to person.

Moggy Apprentice
Moggy
Posted

Im the same way. Which is why low gluten foods, under 20ppm, should be labelled low gluten. Free of gluten means nothing, nada, no gluten. 

My rash comes up within 20 mins or so, definately within 24 hours. I have a few new patches, despite being very careful. I suspect I'll get worse unless my kids and husband stop eating gluten, and spraying the house with cookie crumbs. 

Im allergic to sulpha drugs, so no dapsone for me.

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