Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease and Fusarium Infection?

Raelynne

By Raelynne
in Related Issues & Disorders

Recommended Posts

Raelynne Rookie
Raelynne
Posted

I’m not sure if  I’m posting this in the right place on here (my apologies)

i was diagnosed with Celiac Disease May 2017. I also had symptoms of what I thought was just an eye problem. Fast forward to now, turns out I’ve had a systemic, very serious infection from prolonged exposure to fusarium mold. 

 

I am only 30 years old. I just got married, and right after the honeymoon is when the illness had established itself in my skin, bones, joints, internal organs etc. 

 

I'm still hopeful but I’m becoming more ill. 

 

I was wondering if other celiacs have had other issues like this? Systemic infections from mold or long term ingested toxins etc? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Wow!  Can you share how you were exposed to mold?  Did you get an eye infection from wearing contacts and from there it went systemic?  The FDA recalled some contact lens solution a few years back due to this type of mold.  

I do not think it is related to celiac disease, but mostly those severely compromised immune systems.  Do you have an immune deficiency?  

It can take time to heal from celiac disease.  Have you had your celiac antibodies retested?  Many of your symptoms could be celiac disease related still.  Joint issues can take a while to resolve.  I would insure your celiac disease is not flaring.  That could make a mold issue worse in my non-medical opinion.  

Posterboy Mentor
Posterboy
Posted

Raelyne,

Cyclinglady beat me to it.

here is the information on the recall a few years ago of the contact lenses.

Open Original Shared Link

You have a serious infection and need to see a doctor ASAP if you have not already.

this infections can be very serious epecially in immune compromised individuals.

did you have cancer or some other serious infection like lyme that caused neurtopenia?

quoting definition of neutropenia

"Neutropenia (noo-troe-PEE-nee-uh) is an abnormally low level of neutrophils. Neutrophils are a common type of white blood cell important to fighting off infections — particularly those caused by bacteria.J"

Or maybe  have Hepatitis and was undiagnosed?

Open Original Shared Link

This is a serious medical condition if left unchecked that could be life threatening.

**** * I am not trying to scare you but you need to see a doctor about this condition.

posterboy,

 

kareng Grand Master
kareng
Posted

Are you seeing a a medical doctor for this?  If you are this badly " infected" with "mold" I can't believe you aren't in the hospital . It's really hard to get a fungus out of internal organs and usually, from my experience, you are in the hospital and very sick.  

Raelynne Rookie
Raelynne
Posted
  • Author

It didn’t start in my eyes but that’s surprisingly the first symptoms I had noticed. I have never worn contacts. I have seen doctor after doctor for over a year now and just got diagnosed with a wound culture of a skin lesion on my abdomen. My doctor looked back on my first endoscopy scan taken in May of 2017 (right before my celiac was diagnosed) and the lesions were already all over my GI tract. The mold was growing in a garden, and in my basement, in my water heater, in my house etc. 

 

it was in my foood. God only knows how long id been exposed so it is likely that is was in my eyes because it was in my intestines first :( 

 

 

Raelynne Rookie
Raelynne
Posted
  • Author

To answer other replies I was in the hospital and just came home 

kareng Grand Master
kareng
Posted
2 minutes ago, Raelynne said:

It didn’t start in my eyes but that’s surprisingly the first symptoms I had noticed. I have never worn contacts. I have seen doctor after doctor for over a year now and just got diagnosed with a wound culture of a skin lesion on my abdomen. My doctor looked back on my first endoscopy scan taken in May of 2017 (right before my celiac was diagnosed) and the lesions were already all over my GI tract. The mold was growing in a garden, and in my basement, in my water heater, in my house etc. 

 

it was in my foood. God only knows how long id been exposed so it is likely that is was in my eyes because it was in my intestines first :( 

 

 

Interesting.,,. Maybe the damage they attributed to Celiac is not from Celiac but this mold?  Something to look into once you get this problem fixed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
Just now, Raelynne said:

To answer other replies I was in the hospital and just came home 

I asked because there are a lot of people, pretending to be doctors, that tell people they have all sorts of things like fungus , parasites, and yeast , so they can get a lot of money from them.

Raelynne Rookie
Raelynne
Posted
  • Author

True. I wish that were true in this case because I would rather this not be a fungus but sadly it is.

squirmingitch Veteran
squirmingitch
Posted

OMG Raelynne! You poor thing! You certainly have my sympathy and I hope you get completely well very quickly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,124
    • Most Online (within 30 mins)
      7,748
    Stanner
    Newest Member
    Stanner
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • StaciField
      My bone structure is disintegrating and I’m having to have my teeth removed

      By StaciField · Posted

      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      Celiac Maybe a Possibility?

      By Wheatwacked · Posted

      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      Weird Symptoms

      By Scott Adams · Posted

      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Weird Symptoms

      By cristiana · Posted

      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...