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Celiac Disease and Fusarium Infection?

Raelynne

By Raelynne
in Related Issues & Disorders

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Raelynne Rookie
Raelynne
Posted

I’m not sure if  I’m posting this in the right place on here (my apologies)

i was diagnosed with Celiac Disease May 2017. I also had symptoms of what I thought was just an eye problem. Fast forward to now, turns out I’ve had a systemic, very serious infection from prolonged exposure to fusarium mold. 

 

I am only 30 years old. I just got married, and right after the honeymoon is when the illness had established itself in my skin, bones, joints, internal organs etc. 

 

I'm still hopeful but I’m becoming more ill. 

 

I was wondering if other celiacs have had other issues like this? Systemic infections from mold or long term ingested toxins etc? 

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cyclinglady Grand Master
cyclinglady
Posted

Wow!  Can you share how you were exposed to mold?  Did you get an eye infection from wearing contacts and from there it went systemic?  The FDA recalled some contact lens solution a few years back due to this type of mold.  

I do not think it is related to celiac disease, but mostly those severely compromised immune systems.  Do you have an immune deficiency?  

It can take time to heal from celiac disease.  Have you had your celiac antibodies retested?  Many of your symptoms could be celiac disease related still.  Joint issues can take a while to resolve.  I would insure your celiac disease is not flaring.  That could make a mold issue worse in my non-medical opinion.  

Posterboy Mentor
Posterboy
Posted

Raelyne,

Cyclinglady beat me to it.

here is the information on the recall a few years ago of the contact lenses.

Open Original Shared Link

You have a serious infection and need to see a doctor ASAP if you have not already.

this infections can be very serious epecially in immune compromised individuals.

did you have cancer or some other serious infection like lyme that caused neurtopenia?

quoting definition of neutropenia

"Neutropenia (noo-troe-PEE-nee-uh) is an abnormally low level of neutrophils. Neutrophils are a common type of white blood cell important to fighting off infections — particularly those caused by bacteria.J"

Or maybe  have Hepatitis and was undiagnosed?

Open Original Shared Link

This is a serious medical condition if left unchecked that could be life threatening.

**** * I am not trying to scare you but you need to see a doctor about this condition.

posterboy,

 

kareng Grand Master
kareng
Posted

Are you seeing a a medical doctor for this?  If you are this badly " infected" with "mold" I can't believe you aren't in the hospital . It's really hard to get a fungus out of internal organs and usually, from my experience, you are in the hospital and very sick.  

Raelynne Rookie
Raelynne
Posted
  • Author

It didn’t start in my eyes but that’s surprisingly the first symptoms I had noticed. I have never worn contacts. I have seen doctor after doctor for over a year now and just got diagnosed with a wound culture of a skin lesion on my abdomen. My doctor looked back on my first endoscopy scan taken in May of 2017 (right before my celiac was diagnosed) and the lesions were already all over my GI tract. The mold was growing in a garden, and in my basement, in my water heater, in my house etc. 

 

it was in my foood. God only knows how long id been exposed so it is likely that is was in my eyes because it was in my intestines first :( 

 

 

Raelynne Rookie
Raelynne
Posted
  • Author

To answer other replies I was in the hospital and just came home 

kareng Grand Master
kareng
Posted
2 minutes ago, Raelynne said:

It didn’t start in my eyes but that’s surprisingly the first symptoms I had noticed. I have never worn contacts. I have seen doctor after doctor for over a year now and just got diagnosed with a wound culture of a skin lesion on my abdomen. My doctor looked back on my first endoscopy scan taken in May of 2017 (right before my celiac was diagnosed) and the lesions were already all over my GI tract. The mold was growing in a garden, and in my basement, in my water heater, in my house etc. 

 

it was in my foood. God only knows how long id been exposed so it is likely that is was in my eyes because it was in my intestines first :( 

 

 

Interesting.,,. Maybe the damage they attributed to Celiac is not from Celiac but this mold?  Something to look into once you get this problem fixed.

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kareng Grand Master
kareng
Posted
Just now, Raelynne said:

To answer other replies I was in the hospital and just came home 

I asked because there are a lot of people, pretending to be doctors, that tell people they have all sorts of things like fungus , parasites, and yeast , so they can get a lot of money from them.

Raelynne Rookie
Raelynne
Posted
  • Author

True. I wish that were true in this case because I would rather this not be a fungus but sadly it is.

squirmingitch Veteran
squirmingitch
Posted

OMG Raelynne! You poor thing! You certainly have my sympathy and I hope you get completely well very quickly.

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