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hands - weird...


LookingforAnswers15

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LookingforAnswers15 Enthusiast

Hi all,

Almost four years ago, I was diagnosed with Celiac. I did everything I could to avoid gluten, never cheated, but last year my tests were horrible, as bad as they were when I first found out I had celiac. I realized that some products were not safe as they claimed to be. So, I stopped eating them and if I was stressed out, I would only buy the most expensive ones from Germany since I thought that they had to fulfill certain standards. Anyhow, soon after I was diagnosed , I noticed that my ring finger, right hand, used to tremble. Now, it still trembles but I feel like my pinky is moving toward the right (maybe it is because of this that i felt that the ring finger was shaking). Also, the pinky on my left hand involuntarily just rises. I have to admit it is very freaky and terrifying. I noticed that when I eat gluten free chocolate or other sweet products, that my hands and even wrists hurt so much. So, since February 15, I have not had any gluten free products. What do you think? 


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knitty kitty Grand Master

Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies.  

Here's an article that explains how vitamin deficiencies might be the cause of your finger problems.

Open Original Shared Link

I found I felt much better after going on the AutoImmune Paleo Protocol (AIP) diet and a low histamine diet.  Others follow the Fasano diet with good results.  The AIP diet cuts out most processed foods.  Gluten free versions of processed foods often contain additives like microbial transglutaminase (called meat glue) which is used to enhance texture and flavor.  It's even used in yogurt.  But, it causes inflammation in Celiacs.  Here's an article about it.

Open Original Shared Link

You might want to discuss deficiencies with your doctor before starting supplementing on your own in order to get a base line, an accurate measurement of your nutritional status.   

Hope this helps.  

 

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    • cristiana
      As a parent myself, I find we feel these things very keenly, it is completely understandable that you feel the way you do. It won't always be easy for your son, of course, but honestly most of the coeliacs I know are very healthy individuals who enjoy life to the full and have adapted very well.  Family support is a massive factor in this, and your son has a wonderfully supportive family which will give him the best start possible.  He is very fortunate to have such an understanding mum.   On the response to gluten question you posed earlier - yes, many people when they come off gluten completely, after a while when they are exposed to gluten by accident or intentionally they react much more strongly than before, compared to when gluten was regularly being ingested.  I read once that once stop eating gluten completely, it is a bit like your system is fully rested, like a resting army, so when gluten does appear your body it goes all out to deal with the "enemy", throwing everything it can at it.   I am sure someone more scientific can better explain this to you.  But that said, I do have a friend who was diagnosed with coeliac disease just a few weeks before me, is strict with her diet, and she NEVER reacts physically to gluten, bizarrely.  It does happen! As regards blood tests which your son will no doubt be offered, these are to check for compliance to the gluten free diet as well as to check no other health issues are arising.  But on that first point, the blood test is unlikely to pick up one or two glutening experiences that happen in a year,  it tends to be more helpful to show if there is regular cross-contamination or ingestion of gluten.   When I was unintentionally taking an iron supplement that had gluten in it, it was a blood test that drew my attention to the fact that something was going wrong with my diet.
    • Kathleen JJ
      Well, we have an appointment with a pediatrician who specializes in gastrointestinal issues, and subsequently an appointment with a nutritionist on December 6d. So till then it will be google for the win I guess... I have already found a lot of reassuring alternatives for most of his favorite things, which puts my mind at ease. Now we're just having to see how we will navigate the skitrip in march in an all-in hotel and food on the slopes. And how we will manage offering him warm meals daily as he used to eat at school as we can't manage to cook in time before his soccer practice starts as our commute doesn't allow for it... That kind of thing. But we will manage in the end.   I do feel a lot of sadness for him though. He's so small, will never remember the time before the diagnosis when he didn't have to see (some) food(s) as the enemy and even thought that is comforting in a way, it also is quite sad as a notion... I know we now have the opportunity to help him in the best way and help his health, I do. But I also grieve. I can't help it.
    • DDirasi
      I’m having a terrible time with my employer on this, they put me in an office next to where everyone places food for the department and have reactions when foods containing gluten are present. I’m extreme celiac and have a reaction in some bakery isles at the grocery store. Airborne gluten reactions are real in my world.
    • cristiana
      Thank you for the update.  At least now you know what you are dealing with.  Is the system similar to that in the UK in that you will have a follow-up with the gastroenterologist where you can ask any questions you have, and also a referral to a nutritionist?
    • Kathleen JJ
      We just had his diagnosis confirmed. The biopsy showed Marsch 3B.
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