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News: Celiac.com: Caulipower Launches in Canada

Scott Adams

By Scott Adams
in Publications & Publicity

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Scott Adams Grand Master
Scott Adams
Posted

The naturally gluten-free pizzas are lower in calories, sugar, fat, and sodium and higher in protein, fiber, and vitamins than most traditional and ... line of frozen pizzas and plain crust that quickly became the fastest growing frozen pizza brand in the U.S. Inspired by her two sons with celiac disease, Gail ...

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Pilgrimgirl Newbie
Pilgrimgirl
Posted
On 3/28/2018 at 8:11 AM, Scott Adams said:

The naturally gluten-free pizzas are lower in calories, sugar, fat, and sodium and higher in protein, fiber, and vitamins than most traditional and ... line of frozen pizzas and plain crust that quickly became the fastest growing frozen pizza brand in the U.S. Inspired by her two sons with celiac disease, Gail ...

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I have recently been diagnosed with gluten sensitivity and I just purchased this pizza. Thank you for doing an article on this brand.  I am still learning what I can safely eat. I noticed you published something on gluten and neuropathy.  On September 1st. I had an episode where my lips and the fingers on my right hand were tingling. It lasedt about 30 minutes. I still get numbness now and then in my lips and tongue and a couple of my fingers on my right hand. Do you think this could be what I am dealing with? My doctor ordered an MRI and Cat scan. Both came back normal. I never thought to tell him about the gluten sensitivity. Thanks for all you do to monitor this site.

trents Grand Master
trents
Posted
1 hour ago, Pilgrimgirl said:

I have recently been diagnosed with gluten sensitivity and I just purchased this pizza. Thank you for doing an article on this brand.  I am still learning what I can safely eat. I noticed you published something on gluten and neuropathy.  On September 1st. I had an episode where my lips and the fingers on my right hand were tingling. It lasedt about 30 minutes. I still get numbness now and then in my lips and tongue and a couple of my fingers on my right hand. Do you think this could be what I am dealing with? My doctor ordered an MRI and Cat scan. Both came back normal. I never thought to tell him about the gluten sensitivity. Thanks for all you do to monitor this site.

But you do not have celiac disease, correct?

Pilgrimgirl Newbie
Pilgrimgirl
Posted
7 hours ago, trents said:

But you do not have celiac disease, correct?

No, my nutritionist said I have gluten sensitivity.

trents Grand Master
trents
Posted
4 minutes ago, Pilgrimgirl said:

No, my nutritionist said I have gluten sensitivity.

How were you diagnosed with gluten sensitivity? Really, the only reliable way to arrive at that diagnosis is to first rule out celiac disease through testing designed to detect celiac disease. Many of the symptoms between the two are essentially the same. Testing for celiac disease can be done in one or two ways or both. The first way involves a blood draw looking for elevated antibodies that are produced from the damage celiac disease does to the small bowel lining. The other way is to have an endoscopy done with biopsy of the small bowel lining. The biopsy is sent to a lab for microscopic examination of the "villi" that line the small bowel. Celiac disease damages the villi whereas gluten sensitivity does not. I would not trust a nutritionist to make that call.

Pilgrimgirl Newbie
Pilgrimgirl
Posted
On 10/26/2021 at 10:34 PM, trents said:

How were you diagnosed with gluten sensitivity? Really, the only reliable way to arrive at that diagnosis is to first rule out celiac disease through testing designed to detect celiac disease. Many of the symptoms between the two are essentially the same. Testing for celiac disease can be done in one or two ways or both. The first way involves a blood draw looking for elevated antibodies that are produced from the damage celiac disease does to the small bowel lining. The other way is to have an endoscopy done with biopsy of the small bowel lining. The biopsy is sent to a lab for microscopic examination of the "villi" that line the small bowel. Celiac disease damages the villi whereas gluten sensitivity does not. I would not trust a nutritionist to make that call.

I had an IGga test, which involved blood. It showed sensitivity to gluten, legumes, soy, yeast etc. I have always had a problem with dairy.  I also did a breath test for bacteria. I'm realizing I really have to do my detective work. Even though something says gluten free, it still can have yeast, soy and other ingredients that I am sensitive to. I had some Progresso gluten free soup and had a real problem with gas afterwards, then I read the other ingredients and knew why! I am 73 yrs. old and this has been a challenge for me. Is it common to discover these things later in life? I live in New England and we had power outages yesterday. Sorry I didn't get back to you sooner.

trents Grand Master
trents
Posted

IGga test? Do you mean IGG?

Pilgrimgirl,

You really need to get screened for celiac disease with tests that are specifically for celiac disease. You need to get several IGA tests run. Sounds like you got allergy/food sensitivity testing done but not celiac disease testing. Do you understand there is a difference between gluten sensitivity and celiac disease even though both involve a reaction to gluten?Here's a primer: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

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  • Recent Activity

    1. trents
      - trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      New Guy Here...

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    2. TerryinCO
      - TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      New Guy Here...

      Here's the test result I was refering to. I may not be understanding this correctly.
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    • trents
      New Guy Here...

      By trents · Posted

      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      Here's the test result I was refering to.  I may not be understanding this correctly.
    • trents
      New Guy Here...

      By trents · Posted

      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
    • Jordan23
      Shortness Of Breath (the "sighs")?

      By Jordan23 · Posted

      I would stop Xanax. It will eat away at your DAO enzymes needed to break down histamine . No energy drinks will do the same. I use to have all reactions in stomach now it's changed and started in my chest , which completely sucks and bummed. Maybe your reacting to high histamine foods. But it's hard to avoid cross contamination.  I would get pea milk made by ripples .it's a blue bottle . Ru getting cross reactions? Corn gets me. If it says gluten free it's probably not. Nibble at new foods and wait for reactions. Could be sudden or take 2 hours but some people think it hits 2 days later no way. Avoid coffee. Stick to free range chicken and steak or fish . Do lentils package by kroger works for me it doesn't even say gluten free but works for me just rinse well. Make big soups with sweet potatoes, cauliflower,  brocoli,  cucumbers, and add lentils or cook lentils separate taste better. If you can do potatoes add those inn huge plus. If you can do dairy yogurt try Noosa or a certified gluten free one. Don't smoke I had to quit creates heat and acid in your stomach which lowers your vitamins to break food down. Your reactions are in your chest . Do smoothies everymorning with apple.  🥒 cucumbers, arugula , oranges or add what you can tolerate with water. Try a peppermint tea certified gluten free that works for you. Watch out for spices like turmeric they add flour fillers to prevent caring. I got hit hard by that.  If you have a huge attack get the pin or eat oranges quick. If quinoa works for you get certified huge plus. I could go on and on . Just nibble first wait and see then continue eating it.  It's hard to find nuts that work for you. Maybe try nuts.com..... enter with caution
    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      I haven't been on the site for a while and I have some update info.   Genetic tests show I have the Celiac markers and high risk for Celiacs's  (10X it shows).  Immoglobulin A and G are low - just below the 'green' range; immoglobulin M is in the 'green'.  Zinc, Iron, magnesium, ferritin, and b12 are all in the 'green' range. I've been off the PPI for two weeks now and no real problems...minor heart burn and OTC antacids fix that.  So that's good to be off of that for good. I switched to a b complex sub lingual vitamin. I was surprised about the genetic results on Celiac markers. To my knowledge no one in my family had it or were diagnosed with it.  But they could have had and never been diagnosed.  And at 76 this has come up for me. Gluten free diet is going well and I do feel better on it - nothing major in changes - just better. I appreciate all the advice I've gotten on this site - lots of experience knowledge to draw on here. So thank you, all.
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