Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2 months post diagnosis

sarahbee1989

Recommended Posts

sarahbee1989 Rookie
sarahbee1989
Posted

I’m just about 2 months post diagnosis and being 100% gluten free. My diet is good and my stomach, fatigue, insomnia, body aches and headaches are much better. However this week I’ve been starting to get dizzy spells and my body just feels weird. I’m not sick so just wondering if this happens to anyone else?? I don’t think I’m accidentally eating gluten. We eat at home since my diagnosis so I’m cooking everything. 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Maddiecl Explorer
Maddiecl
Posted

This same thing happened to me.  After I had been gluten-free for about a month and a half I began having dizzy spells and lightheadedness.  On top of this, I also developed the sensation of having pressure on my chest.  I am now 5 months gluten-free and this has gotten much better!

Link to comment
Share on other sites
knitty kitty Grand Master
knitty kitty
Posted

Symptoms of vitamin B12 deficiency include dizziness, anemia, chest tightness, tingling, and depression.  You may want to have your doctor check to see if you have any nutritional deficiencies.  Celiac Disease causes malabsorption which results in malnutrition.  

Products containing wheat are required to have vitamins and minerals added back to replace those removed in processing.  Gluten free versions are not required to be enriched.  So when you begin a gluten free diet, you need to be sure to get enough vitamins and minerals, preferably by consuming nutrient dense foods.  However.... 

Intestinal damage may make proper absorption difficult.  To be properly absorbed, B12 needs an intrinsic factor produced in the stomach.  PPI's may deactivate this intrinsic factor.  Low stomach acid (also a Celiac thing) will also negatively affect B12 absorption.  Certain other prescription medications (like Metformin) can also affect B12 absorption.

Your liver can store a small amount of B12, but stores of B12 may be depleted quickly.  

Nitrous oxide (laughing gas like at the dentist or when you were given anesthesia for an endoscopy) WILL deplete B12 stores within weeks.  

Until damaged intestines heal, taking a multivitamin or a B Complex supplement may help ensure you get enough.  Remember there are eight B vitamins that all work together.  You're much more likely to see benefits if you take a B Complex supplement. 

Discuss supplementation with your doctor before starting supplementing in order to get an accurate measurement of vitamin levels in your system.  

Hope this helps! 

 

 

Link to comment
Share on other sites
sarahbee1989 Rookie
sarahbee1989
  • Author
Posted

Thanks so much for replying. I’m glad to know I’m not the only one who has had this happen! It’s like learning about your body all over again. I did just have blood work done about 2 weeks ago and everything was ok but I think I will definitely talk with my doctor about adding in some supplements to help with everything. And I hope my dizziness/lightheadedness will start to get better too. 

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted

I just want to add too, that the first 6 months, sometimes even the first year, can be somewhat wonky with ups & downs & progress & seemingly backslides. This is, oddly enough, normal. Things don't often get a little bit better each & every day. Sometimes they get worse EVEN when you haven't gotten cross contaminated. Just hang in there hon & keep moving forward. It never hurts to question whether you got cross contaminated because that keeps us on our toes but don't drive yourself crazy with it. 

Link to comment
Share on other sites
sarahbee1989 Rookie
sarahbee1989
  • Author
Posted

It has been very frustrating and I’m obviously pretty new on my journey. I just want to feel “normal” whatever that is for me now. Hopefully in a few months I guess I can get there ! 

Link to comment
Share on other sites
squirmingitch Veteran
squirmingitch
Posted
14 minutes ago, sarahbee1989 said:

It has been very frustrating and I’m obviously pretty new on my journey. I just want to feel “normal” whatever that is for me now. Hopefully in a few months I guess I can get there ! 

Oh you poor dear. Yes, I do understand. All of us have been there. It's like you were broken & you've been taken to the repair shop & you look good on the outside but they still have some work left to do on the inside; meanwhile your sitting at the starting gate revving your engine ready to put the pedal to the metal but they won't open the starting gate.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,730
    • Most Online (within 30 mins)
      7,748
    mswhis
    Newest Member
    mswhis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • jmiller93
      What do my test results mean?

      By jmiller93 · Posted

      I’m have a vitamin D deficiency. I’m still waiting on a qualitative fat test to see if I have malabsorption. 
    • knitty kitty
      What do my test results mean?

      By knitty kitty · Posted

      @jmiller93, Some of us are seronegative and don't test positive on tTg IgA tests.  Anemia, diabetes, and Thiamine deficiency can cause false negatives on Celiac panels.  Have you been checked for nutritional deficiencies?  Iron? Thiamine?  Vitamin B12?  Vitamin D?  Only one Celiac markers is needed to develop the active disease.   I agree a gluten free diet trial is worth a try.
    • knitty kitty
      strange symptoms/ diagnosis accuracy

      By knitty kitty · Posted

      @HWB, Have you been checked for SIBO?  Small Intestinal Bacterial Overgrowth will cause constipation and chemically breath.   The best way to get rid of SIBO is to go on a ketogenic/Paleo diet, like the Autoimmune Protocol Diet.  It starves out the carbohydrate loving bacteria and allows good bacteria to repopulate the small intestine.   The SIBO bacteria can communicate with the brain along the gut-brain axis, making you crave carbs, and in return, the SIBO bacteria can mess with your immune system by lowering inflammation and producing endorphins.  So, it's no wonder you feel better eating sugar.   I took high dose (500-1000 mg/day) Benfotiamine (Thiamine) which promotes intestinal healing and helps keep bacterial in check.  Thiamine and Benfotiamine are safe and nontoxic even in high doses.  High doses (500-1000 mg) every day are required to get results.  The body responds differently to high doses.  Got rid of my SIBO like this.  It was tough, but Celiac makes you stronger.
    • Wheatwacked
      strange symptoms/ diagnosis accuracy

      By Wheatwacked · Posted

      Try whole milk yogurt.  I eat Stoneyfield vanilla.  Add fruit if you like.  Cultured Pasteurized Organic Whole Milk, Pectin, Vitamin D3. Live Active Cultures S. thermophilus, L. bulgaricus, Bifidobacterium BB-12®, L. acidophilus, L. paracasei and L. rhamnosus. Looking at the NO Fat Greek Yogurt, consider that to give the mouth feel of real yogurt ahd Manufacterers of no fat yogurt add various processed ingrediant that many Celiacs have digestive issues with such as gums.  Consider it processed food.  Fat is an important factor in our appestat to tell us we've eaten enough.  Remove fat and we eat more.  Compared to whole milk yogurt Chobani no fat greek yogurt has a cardboard mouth feel. Chobani no fat greek: Cultured Nonfat Milk, Cane Sugar, Black Cherries, Water, Fruit Pectin, Guar Gum, Natural Flavors, Cherry Juice Concentrate, Locust Bean Gum, Lemon Juice Concentrate. 6 Live and Active Cultures: S. Thermophilus, L. Bulgaricus, L. Acidophilus, Bifidus, L. Casei, and L. Rhamnosus Funny that since recommending low fat diets in the 1970's the US population has gone from 15% to 50% obese.
    • sh00148
      Nighttime Soiling (5 year old)

      By sh00148 · Posted

      Just had my daughter diagnosed and am currently awaiting blood test results for my son. As well as many bowel issues, mostly loose stools with mucus and lots of gassy moments sometimes leading to leaning stool, he has recently soiled himself in his sleep twice. He has been toilet trained for a long time, but is not waking up with the poo. It’s not just a little, it’s a lot.    We have had to make an appointment re his blood test results next week so will find out if it is coeliac too but I’m just wondering whether anyone else has had this? Ive read online that it could mean he’s constipated, but he poos all the time and it’s often soft, never hard. 
×
×
  • Create New...