Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calling all Celiacs in the military(navy) PSA (for those just diagnosed)


Cheerymarie

Recommended Posts

Cheerymarie Apprentice

So I just wanted to put this information out here for anyone diagnosed while in the military. (Specifically the navy) 

You wont automatically get kicked out. I assumed this to be true because it’s all there was for me to read online... a bunch of people saying they were getting kicked out. (Which makes sense since you aren’t allowed to join if you are already diagnosed) 

if you are already on a ship and experiencing problems, I feel like you would have to get kicked out. I was at a shore command when diagnosed, and was able to switch my diet easily and contamination free because I lived alone off base. I got orders to a ship that just entered the shipyard and doesn’t have an operational galley so I can bring my own food that isn’t contaminated. 

Idk if since being gluten free you feel better already, but it’s been 6 months since diagnosis and I still feel like garbage and have bathroom troubles. I personally don’t think I’m suited to be on the ship. I still suffer abdominal pain frequently and it’s often debilitating. 

If you are reading this and wish to join. You cannot and would not want to. In boot camp pretty much everything to eat is gluten. And anything that isn’t... is probably heavily contaminated. You will likely be screwed when it comes time to go to an operational billet, as you will get sick eating the galley food there as well. When you bring your own food people make fun of you for being gluten free even though you have a disease. It’s not a good environment for a celiac, unless you don’t eat gluten free.

This information is elsewhere but :

if you are deemed not fit for full duty you will be placed on light duty (maybe) or the will go straight to LIMDU. With limdu you will receive orders to a non operational command. You will be assessed every 6 months and after 3 limdu periods will go to a medical evaluation board. You can request a medical evaluation board at any time and the doctor can send you straight there as well if they don’t think your condition will improve. 

If you are deemed unfit by the med board you will be medically separated. You will unlikely receive disability payments (from what I’ve heard from others ) because celiacs is a hereditary condition. But you will receive a separation package ($) . 

 

My experience : 6 years active duty, 2 limdu cycles (for knee problems), worked at an MTF, had a friend that went through the entire med board/ separatation process. 

If anyone else ***THAT SERVED IN THE MILITARY*** has anything else useful/additional to add. That would be cool too ! If anyone has any questions I can answer also here is cool. 

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Media query Newbie
I am composing a piece for national publication about how to send gluten-free items to soldiers
Who can I ask about policy (has it changed) and the # of gluten-free soldiers?
Thanks

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,387
    • Most Online (within 30 mins)
      7,748

    Tim Semas
    Newest Member
    Tim Semas
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...