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TotalFitness

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TotalFitness Newbie

I got sick almost 4 years ago out of the blue. I had a lot of work stress and long overs, developed a sinus infection and took antibiotics, after that all hell broke loose. I had so many things wrong with me. Unbearable fatigue, stomach pains, body turns red, severe constipation, foggy head, hair thinning, wounds slow to heal, both my big toes were numb at one point, memory issues, cold hands and feet, really bad irritability,etc.

I went through so many doctors and all my blood work was good. Before all this I had went to a doctor because I always felt tired and I was only 28 years old. Only thing the doctor found was low T. My gastro did upper and lower GI and only found a hiatal hernia and abnormal tissue color at the opening of my stomach to my small intestine. He said he found nothing wrong and I did not have celiac.

I dealt with 8 months of pure hell not knowing what was going on before my trial and error dieting started working. I found I was lactose intolerant and they helped give me a little relief. Then biggest help that got me back to almost normal was a paleo diet. I did that for over a year and was feeling pretty close to normal. Missing carbs, I wanted to try and put them back in my diet, but after about a week, i get fatigue, red skin, irritable, constipation. After awhile longer, I start having digesting problems. Carbs, sugars, anything hard to digest makes me feel sick. I also have become allergic to soy. So now I am at the point where I can tolerate a handful of foods. Turkey, chicken, avacodo are the staple of my diet. i used to be able to eat nuts, but now i cant digest them properly and get weird stomach feeling followed by horrible smelling gas a hour after eating them.

I am thinking of getting retested for celiac, it seems like gluten is destroying my small intestine causing lots of other problems in my opinion. I take probiotics and digestive enyzmes with every meal but thats not cutting it. Anyone have any advice or similar experience?


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Ennis-TX Grand Master

Celiac would require a gluten challenge......eating gluten daily for 12 weeks straight to get your antibodies up. Not much just a half slice a day but would be hell after being gluten free so long.
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I have the constipation issues...or used to with my celiac...it now flares the other way. same with my other disease Ulcerative Colitis. Magnesium Citrate by Natural Vitality helps with the C issues. Just start off with small 1/4tsp (1-2g) dose and over a week slowly bring it up another 1-2g at a time til you get loose stools then dose back down (doseing to tolerance) Damaged intestines can have issues getting magnesium from your foods and signs can be nerve pain. constipation, cramps, and in some extreme issues I found fire like skin feeling with red prickly dots.

B-vitamins are another issue, I use a liquid version, and a blend of 2 for helping with my fog, stress, and mental clarity. Liquid Health Stress & Energy and Liquid Health Neurological Support 1tbsp each 3 times a day.

I manage with a Paleo/keto diet myself Ulcerative colitis I have flares to carbs, sugars and the stanard gluten, soy, dairy....So I know your pain with the foods and missing things, the nuts might be a bit hard right now, after flare ups I have to go to a blended diet, with nut meal/nut butter porridge, sometimes sunflower butter is easier..whole nuts and seeds become to rough on the gut. I do get rolling intolerances but most go away in a few weeks...perhaps your lucky and a few weeks on your current safe diet and you can go back on nuts?  I can not eat meats other then small amounts of fish or crab, I have pancreas issues and can not digest them, I get undigested meat in my stool, vomiting, and really foul body odor from meats. Dairy...been intolerant to it with a whey allergy going on 11 years now.
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Enzymes I found I have to take Porcine Enzymes, and take betatine HCL to make my stomach more acidic to break down food and activate the enzymes.
https://www.celiac.com/forums/topic/119919-digestive-enzymes/
PS if you need help finding low carb, grain free foods...I have sources for many, Pizza crust, muffins, breads, etc...but most use coconut flour and egg whites some use almond meal. extracts that make drinks/porridge/smoothies taste like deserts etc. I pray you can get back on nuts soon....I live on them since I can not eat much else other then leafy greens, egg whites, and avocados.

 

 

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    • trents
      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
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    • aattana
      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
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