Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sagar

Recommended Posts

Sagar Newbie

Hi All,

I do not have celiac disease, but have been gluten free for almost 15 years due to other long term health conditions.

I sometimes get Sore Throat, Increased Fatigue (with fast and heavy onset) and loss of bladder control, come on together as a symptom set (sometimes also accompanied by stomach pain and/or runny nose). I'd previously just assumed this was a part of the ME/CFS that I have lived with long term, but now wonder if it is in response to an allergen or intolerance.

I have sometimes noticed these symptoms near consumption of Rice Bran(Oil), (Pop) corn and Buckwheat. DO these 3 foods have any common components that could potentially be a problem for me?

Environmental triggers could also be a potential trigger but are unknown to me.

Any insights would be a huge help.

Thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
7 hours ago, Sagar said:

Hi All,

I do not have celiac disease, but have been gluten free for almost 15 years due to other long term health conditions.

I sometimes get Sore Throat, Increased Fatigue (with fast and heavy onset) and loss of bladder control, come on together as a symptom set (sometimes also accompanied by stomach pain and/or runny nose). I'd previously just assumed this was a part of the ME/CFS that I have lived with long term, but now wonder if it is in response to an allergen or intolerance.

I have sometimes noticed these symptoms near consumption of Rice Bran(Oil), (Pop) corn and Buckwheat. DO these 3 foods have any common components that could potentially be a problem for me?

Environmental triggers could also be a potential trigger but are unknown to me.

Any insights would be a huge help.

Thank you

Almost sounds like a form of allergy, you can test this theory by taking antihistamines with said offenders and see if you noticed less of a effect. But honestly if you keep a food diary and rotate your diet keeping track of what makes you feel good and bad and cause what symptoms you can build a diet for yourself. I do suggest rotating foods if your prone to food issues....remove certain staples for at least a week at a time and try to rotate you cusines and sources for each nutrient category. This way you are less prone to get a allergy or food intolerance.

I removed all grains from my diet, I had various issues most notably I have another AI disease other then cealic that flares up with carbs/sugars...and a allergy to corn. You might benefit from a paleo/keto or a AIP diet.

The rice bran oil is a amusing thing I just noticed a similar issue with it when I found some Trader Joe's Dried Okra with it. The low carb high fat made it suited to my diet of keto and I did not think much of Rice Bran Oil....but I got stuffy, and fatigued, after eating a few and decided I am affected by something in them.
Here is a good article that might be of some use on food sensitivities Open Original Shared Link

Sagar Newbie

Thanks so much for writing. Very helpful, it's been a long time since I've done food journaling.... and i'm kind of resisting doing it again... but I think it is time! Thank you for your input :) 

  • 2 weeks later...
moodslayer Newbie

I do not have celiac but had multiple grain allergies.  I had an allergy test done and it came back with wheat, coffee, and teff as a high allergy and barley, rye, spelt, polish wheat, oats, buckwheat, amaranth and tapioca as a mild allergy.  I just found out a month ago that I had egg, sugar, artificial sweeteners, coffee, chocolate, caffeine and nut allergies.  It is completely possible for you to have an undiagnosed allergy.  

Sagar Newbie
6 hours ago, moodslayer said:

I do not have celiac but had multiple grain allergies.  I had an allergy test done and it came back with wheat, coffee, and teff as a high allergy and barley, rye, spelt, polish wheat, oats, buckwheat, amaranth and tapioca as a mild allergy.  I just found out a month ago that I had egg, sugar, artificial sweeteners, coffee, chocolate, caffeine and nut allergies.  It is completely possible for you to have an undiagnosed allergy.  

Thank you for writing. What method of testing did you have to determine your allergies?

moodslayer Newbie
14 hours ago, Sagar said:

Thank you for writing. What method of testing did you have to determine your allergies?

I had allergy testing for the grain allergies through a company called Cyrex Labs.  I had their Array 3 and 4 tests.  That test was ordered by my DR.  The other allergies/ intolerances were discovered through personal reactions that I had experienced after consuming the products and confirmed using muscle response testing and Nambudioad Allegy Elimination Technique (NAET).  I Was having many of the same symptoms you described.  I know NAET is controversial and it doesn’t work for everyone and I don’t know if it can eliminate Celiac disease but it definitely eliminated my allergies!      There are also standard tests called RAST, and Eliza.  Cyrex Labs has many different tests.  here is a link to their available tests. Open Original Shared Link  

Sagar Newbie

I'll look up those tests. Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,939
    • Most Online (within 30 mins)
      7,748

    Ladyliv
    Newest Member
    Ladyliv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
×
×
  • Create New...