Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last time I ever eat out

CholoeS

By CholoeS
in Coping with Celiac Disease

Recommended Posts

CholoeS Rookie
CholoeS
Posted

Hi everyone my name is chole, I’ve been diganosed for 3 years now. Anyway 

Recently went to a place which has gluten free sandwiches and pizza, I ordered a sandwich only to realize that it had been crossed contaminated it had some knid of strange  sauce substance on it and particles from other food.

this upsets me a little but I think it’s best I just make my own food since people are so careless in the kitchen. Most don’t understand what cross contamination is (either that or they don’t care) if it’s cross contaminated then it’s not gluten free. Some of us are extremely sensitive 

Have a bit of a stomach ache just a wake up call I suppose the only person you can trust with your food is you.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Oh, so sorry you became ill.  We rarely eat out.  When we do, we try to find restaurants recommended by celiacs (like “Find Me Gluten Free”).    We read the reviews, if a few celiacs are happy and did not get sick, we’ll take the risk.  

    I hope you recover fast!  

squirmingitch Veteran
squirmingitch
Posted

Or eat only at places that are 100% gluten free.

Rob S. Contributor
Rob S.
Posted

I bought the NIMA.  If I go out , I test the meal. I have had many surprises where the most sophisticated staff brought cross contaminated food while the "dive" spots food was safe.   It is a pretty safe bet that any place that makes gluten-free pizzas or other baked item, along with non-gluten-free items that it will have cross contamination.

TrinaP Newbie
TrinaP
Posted
On ‎4‎/‎12‎/‎2018 at 10:23 AM, CholoeS said:

Hi everyone my name is chole, I’ve been diganosed for 3 years now. Anyway 

Recently went to a place which has gluten free sandwiches and pizza, I ordered a sandwich only to realize that it had been crossed contaminated it had some knid of strange  sauce substance on it and particles from other food.

this upsets me a little but I think it’s best I just make my own food since people are so careless in the kitchen. Most don’t understand what cross contamination is (either that or they don’t care) if it’s cross contaminated then it’s not gluten free. Some of us are extremely sensitive 

Have a bit of a stomach ache just a wake up call I suppose the only person you can trust with your food is you.

 

I tried to tell myself for a long time that I could eat out and just make sure what I ordered was gluten free and tell the kitchen. It doesn't work. I've stopped going out to eat altogether unless it's a place 100% gluten free. You are right, the only one you can trust with your food is you. My family tries to offer to do gluten free stuff for holidays and such; problem is it's hard enough for me to make food for me and they don't have the knowledge and awareness that I do. I bring all of my meals for family events and if I bring something there to "share" I make sure to be the first to take food or put mine completely separate. Others walk by and stick a cracker in a dish of dip not even realizing it's now off limits for me. It's tough but you do adjust and it's so much better then being sick.

Gemini Experienced
Gemini
Posted

Eating out safely is totally do-able but it highly depends on where you live.  The larger the city, where there would be more awareness and having a lot of teaching hospitals and medical really helps.  New England has very high awareness here and there are a few places where the owners are Celiac so those are the restaurants that I go to.  I have never been glutened in the ones where there are Celiac owners.  They get it right every time.  I would trust a Celiac owned restaurant before I would eat anything my family would prepare.  I have other Celiac's in my family and yes, they cheat and are careless.  So annoying.................

CholoeS Rookie
CholoeS
Posted
  • Author
On 4/13/2018 at 12:18 PM, squirmingitch said:

Or eat only at places that are 100% gluten free.

Haven’t found a place ? gluten free near me. Only gluten free Options never completely. Wish I lived near that...

16 hours ago, Gemini said:

Eating out safely is totally do-able but it highly depends on where you live.  The larger the city, where there would be more awareness and having a lot of teaching hospitals and medical really helps.  New England has very high awareness here and there are a few places where the owners are Celiac so those are the restaurants that I go to.  I have never been glutened in the ones where there are Celiac owners.  They get it right every time.  I would trust a Celiac owned restaurant before I would eat anything my family would prepare.  I have other Celiac's in my family and yes, they cheat and are careless.  So annoying.................

Ha maybe I should move to England 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,797
    • Most Online (within 30 mins)
      7,748
    JuneRose
    Newest Member
    JuneRose
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
      Potato Intolerance

      By Jordan23 · Posted

      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By trents · Posted

      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Doris Barnes · Posted

      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
×
×
  • Create New...