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Blood pressure spikes and adrenalin rushes?


LizardQueen

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LizardQueen Newbie

Hi, this is my first post here.

I have been tested multiple times for celiac - have passed 2 TTGA tests, passed the ones that begin with D (one is IGA based and other is IGG based), and have also been endoscoped/biopsied 2x for gastric bleeding and both times the villi sample came up negative.  So I have been assuming I am not celiac, as the doctors have said as well.

But I am going through a bad time right now where when I eat certain things (and I am still trying to figure out what items) my BP spikes through the roof at about an hour after I eat. 

It did it this am after breakfast (eggs, bell pepper, 1 slice light  wheat toast, peanut butter), went from 123/70 to 140/86. And I had another spike at lunch after venison and mixed vegetables that had no wheat but had corn in it. Last nights dinner was steak, broccoli, a small potato, and some sauteed onions and I had no spike at all.

I am going to start eliminating grains and see where that gets me but I wanted to ask you all:

Was this a symptom any of you had, where you got a  massive adrenalin rush, blood pressure spike, and panicky feeling an hour or so after you ate?  If so are you celiac or non-celiac but gluten sensitive?

Thanks for reading this.

Liz

P.S. My IGA is a little bit low (80 on a scale of 81-250something) and I am not deficient in any vitamin other than iron which came from a bleeding hiatal hernia about a year ago.

I have no real digestive problems or skin issues, but I am asthmatic and have been since I was a child (I am 53 right now). I do tend to be an allergic person.


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cyclinglady Grand Master
30 minutes ago, LizardQueen said:

Hi, this is my first post here.

I have been tested multiple times for celiac - have passed 2 TTGA tests, passed the ones that begin with D (one is IGA based and other is IGG based), and have also been endoscoped/biopsied 2x for gastric bleeding and both times the villi sample came up negative.  So I have been assuming I am not celiac, as the doctors have said as well.

But I am going through a bad time right now where when I eat certain things (and I am still trying to figure out what items) my BP spikes through the roof at about an hour after I eat. 

It did it this am after breakfast (eggs, bell pepper, 1 slice light  wheat toast, peanut butter), went from 123/70 to 140/86. And I had another spike at lunch after venison and mixed vegetables that had no wheat but had corn in it. Last nights dinner was steak, broccoli, a small potato, and some sauteed onions and I had no spike at all.

I am going to start eliminating grains and see where that gets me but I wanted to ask you all:

Was this a symptom any of you had, where you got a  massive adrenalin rush, blood pressure spike, and panicky feeling an hour or so after you ate?  If so are you celiac or non-celiac but gluten sensitive?

Thanks for reading this.

Liz

P.S. My IGA is a little bit low (80 on a scale of 81-250something) and I am not deficient in any vitamin other than iron which came from a bleeding hiatal hernia about a year ago.

I have no real digestive problems or skin issues, but I am asthmatic and have been since I was a child (I am 53 right now). I do tend to be an allergic person.

Have you trialed the gluten free diet?  Positives in both the TTG and the DGP rue sound like celiac disease.  Maybe the GIs missed the damage.  The small intestine is like the size of a tennis court.  My own little niece was diagnosed with Crohn’s (celiac disease firmly ruled out for now) after a pill camera reveal severe intestinal damage located beyond the reach of both scopes.  Consider a pill camera, because something is wrong!  

Did you get a wheat allergy test?  You can be allergic (IgE) to wheat.  That occurs much faster than celiac disease.  Celiac Disease is autoimmune and it can taketime for the body to ramp up antibodies in the small intestine unlike an IgE reaction.  

LizardQueen Newbie

Actually I passed (meaning I was negative) to all the antibody tests .Nothing yet has turned up positive.   

I havent had any food allergy testing since I was a child.  I was allergic to a lot of things then, both food and environmental, though other than the asthma I didnt have a lot of problems with them.   I did have some of the environmental ones recently redone and had outgrown all  of them except for animal dander and amoxycillin.

I'm going to cut out grains now and maybe can convince my pcp to get me an allergist referrral.

Another thing I have going is possible histamine intolerance, Ive shown signs of allergy to aged meats etc when I know that I am not allergic to the meat itself.

cyclinglady Grand Master

What was the cause of the gastric bleeding?  

LizardQueen Newbie

They never found an active bleed either time in there, just a hiatal hernia and signs of gastritis. The scopes were done weeks after they found my hemoglobin was around 7 (both times) so its highly likely that whatever active bleed there had stopped.

I did however have black tarry stool on the 2nd bleed that sent me to the ER last year. It was definitely upper GI blood,  looked like tar and smelled metallic.

cyclinglady Grand Master

Did they biopsy the stomach and identify the type of gastritis?  

Hemoglobin of 7!  That can make you very tired and difficult to catch your breath.  Been there!  

 

aquaholical Apprentice

Hi there,

I'm still trying to figure out if I have full blown celiac or just gluten intolerance myself, but I have had issues with food intolerances for over 7 years and my blood pressure is absolutely reflective of a food reaction. My normal BP is around 110/70, but if I eat a food (ANY trigger food, not just ones with gluten) my blood pressure jumps to around 140/90. Sometimes I'm in a lot of pain from other conditions (I have lyme disease and mast cell disorder) and I can't tell if I'm reacting to a food. BP is usually what gives me the answer. If my BP is elevated I am definitely reacting to a food. 


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  • 3 months later...
Tmitch1108 Newbie

I've been having a fairly similar thing. I was diagnosed with ulcerative colitis 8 years ago second coloscopy 2 years ago found no signs of colitis but was diagnosed with Crohn's after. I have never been checked for celiac but I use to have gerd went on the keto diet found relief coming off keto had gerd again cut out gluten and gerd went away again so I just follow gluten free menu out of convenience. And in the past month I've had a few issues similar to what you describe after breakfast from time to time I'll get hot, shaky, lightheaded, fast heart rate 140- last time which I normally run 80 and my blood pressure will spike 160/100 which I normally run 120/72 it hits hard making me feel like I'm going to pass out but then subsides for the most part within 5 mins but my bp will take 3-4 gotta to fully return to normal I'm currently wearing a heart monitor for 24 hours to see if this can lead to an ideas.I discussed pancreatitis with my Dr who said or want a good fit so just hoping have you found anything out on your time??

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    • trents
      I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc will want to do more testing for celiac disease, either antibody testing or an endoscopy with biopsy, you should not cut back on gluten consumption until all celiac disease testing is done. Otherwise, you will invalidate the testing.
    • shell504
      Hello. I apologize. I didn't know there wasn't a standard.  The standard listed  for the IGA is normal range 47-310.  The others were all listed as <15.0 u/l is antibody not detected and 15> antibody is detected.  And the negative one the standard is negative.  It is a normal PCP dr. I do have a second opinion appt scheduled with a GI specialist in 2 weeks. Honestly, I haven't cut out gluten at all. I just switched to whole fibers and everything has been getting better. She wanted to do the test just to check, which I was fine with. We'll see what the GI dr says. Thank you for commenting. 
    • trents
      It is also possible that since eating the fries you have been glutened again during the week. I would double check the food in your cupboard and reread the ingredient lists. Food companies can and do change their formulations from time to time such that something that used to be gluten free is no more. What I am saying is, don't assume the distress you are experiencing comes from one incident of glutening. There could, coincidentally, be another one on it's heels. 
    • trents
      Welcome to the forum, @shell504! The IGA 401mg/dl is not a test for celiac disease per se but a check to see if you are IGA deficient. People who are IGA deficient will produce celiac blood test antibody scores that are artificially low which can result in false negatives for the individual antibody tests such as the TTG IGA. You did not include reference ranges along with the test scores and since each laboratory uses custom reference range scales, we cannot comment with certainty, but from the sheer magnitude of the IGA score (401) it does not look like you are IGA deficient. And since there are no annotations indicating that the other test scores are out of range, it does not appear there is any antibody evidence that you have celiac disease. So, I think you are warranted in questioning your physician's dx of celiac disease. And it is also true that a colonoscopy cannot be used to dx celiac disease. The endoscopy with biopsy of the small bowel is the appropriate procedure for diagnosing celiac disease. But unless there is a positive in the antibody testing, there is usually no justification for doing the endoscopy/biopsy. Is this physician a PCP or a GI doc? I think I would ask for a second opinion. It seems as though this physician is not very knowledgeable about celiac disease diagnositcs. Having said all that, it may be that you suffer from NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease. The two gluten disorders share many of the same GI symptoms. The difference is that NCGS does not damage the villous lining of the small bowel as does celiac disease. NCGS is 10x more common than celiac disease. The antidote for both is complete abstinence from gluten. Some experts believe NCGS can be a precursor to the development of celiac disease. There is not test for NCGS. Celiac disease must first be ruled out. So, if it becomes apparent that gluten is causing distress and testing rules out celiac disease, then the diagnosis would be NCGS. Hope this helps. 
    • shell504
      I apologize i can't figure out how to get the picture on here.  Results were: IGA 401mg/dl Deamidated Gliadin IGG. <1.0 Deamidated Gliadin IGA. <1.0 Tissue Transglutaminase IGA AB. <1.0 Endomysial IGA. Negative.  Is she just going based off of the IGA alone? And because that is elevated, it's positive? The test states: "Results do not support a diagnosis of celiac disease." 
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