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  • Recent Activity

    1. - ognam replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Increasing symptoms after going gluten free

    2. - trents replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Increasing symptoms after going gluten free

    3. - ognam replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Increasing symptoms after going gluten free

    4. - Scott Adams replied to Den Copper's topic in Gluten-Free Restaurants
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      Chili's Gluten-Free Dining Experience – What’s Your Take?

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      Tampere, Finland Celiac Disease Symposium 2025


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  • Posts

    • ognam
      Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats.   Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic response (though realistically,  I don't know how likely that is to occur)
    • trents
      Although it is true that FDA regulations don't require gluten to be included in allergy info, it does require wheat and ingredients made from wheat to be listed. Of course, that doesn't preclude gluten from barley being found in a product.
    • ognam
      I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure out if things are gluten free as us law doesn't require it to be declared. The only labeling rule is that if the product says gluten free, it must have less than 20ppm gluten.
    • Scott Adams
      You had the wrong link to the menu, so I fixed that for you 😉. Trying to eat gluten-free at Chili's is risky due to cross-contamination, even if you go with items marked gluten-free on their menu. Every person with celiac disease has a different level of sensitivity, and you've not mentioned anything about your situation in that regard. Whenever I eat out I take GliadinX (a sponsor here), but of course, the best option would be to avoid eating out. 
    • Nicbent35
      She has had problems with constipation, they actually prescribed miralax for her but I have changed some other things about her diet that seemed to have helped, so I never gave it to her..but she still doesn’t always go daily 
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