Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain management


Cindy Lee

Recommended Posts

Cindy Lee Newbie

So, my 18 year old daughter recently was diagnosed with celiac disease and is now beginning to get educated about all gluten related topics.  However, in the meantime, she is experiencing excruciating pain, cramps, nausea and bowel challenges.  This seems to go on and on around the clock with brief pauses of being okay.  What can she do to relieve severe pain issues while she waits for her new diet to start to have affect?  Her life is not enjoyable at all and she is all-consumed dealing with the pain of it all.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tessa25 Rising Star

I'd try soups, stews and cooked zucchini for a couple of weeks to see if that helps settle things down. If you listed a typical days food perhaps some here could help you make slight changes to eliminate irritating foods.

 

Link to comment
Share on other sites
GFinDC Veteran

She can cut out all dairy for a few months to start.  Celiac disease inhibits our ability to digest dairy.  That means eating dairy can cause bloating and gas which can make an already irritated gut hurt.  Dairy may not be a problem after several months of healing though.

Also she should switch to an all whole foods diet with very little sugar and reduced carbs.  Sugar in an irritated gut with poor digestive capabilities causes gas and discomfort.  Carbs are turned to sugar in the gut and do the same thing.

For pain she can try Pepto Bismol which can provide a temporary soothing effect in the gut.  Also peppermint tea can help get the gas out and magnesium may help too.

The simpler her diet is to start with the better.  Even if her food is a little boring it's better than being in pain all night.  So go easy on hot spicy foods too.  An irritated, inflamed gut doesn't need hot sauce in it.

I hope she feels better soon trying some of these tips.  I know celiac pain can be very tough to handle.

Link to comment
Share on other sites
cyclinglady Grand Master

I agree with Tessa.  When celiac disease is activated eating ANYTHING can cause pain.  Try sticking to easy-to-digest foods (aka mushy or well-cooked) with little or no seasoning for a week or so and that includes fruit (think applesauce).  

Link to comment
Share on other sites
Cindy Lee Newbie

Thank you all.  We appreciate your answers.  Some of the suggestions we have already started.  Just found out that Heinz ketchup is a big no no.

What about toilet paper or paper towels?  Is/should this be an issue?

 

Link to comment
Share on other sites
kareng Grand Master
2 hours ago, Cindy Lee said:

Thank you all.  We appreciate your answers.  Some of the suggestions we have already started.  Just found out that Heinz ketchup is a big no no.

What about toilet paper or paper towels?  Is/should this be an issue?

 

Heinz ketchup is gluten-free.

 Toilet paper does not contain gluten ( except 1 odd “natural” brand that boasts about that).  Even if it had gluten, you would have to eat it for a Celiac reaction

Link to comment
Share on other sites
AllergyFreeDiva Rookie

Heinz? Gluten? I gotta check that for myself - i didn't even know that one!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Heinz catsup does not have gluten in it!

Link to comment
Share on other sites
pikakegirl Enthusiast

I took levsin when things were the worst however it constipates. Found that a 10 food elimination diet stoped the pain and a food diary showed me all my intollerences which can get better over time. Reflexology of the feet and hands is a gentle and effective pain reliever. Worked for my cramps and nausea. 

Link to comment
Share on other sites
  • 2 weeks later...
GFinDC Veteran
On 5/7/2018 at 2:58 PM, kareng said:

Heinz ketchup is gluten-free.

 Toilet paper does not contain gluten ( except 1 odd “natural” brand that boasts about that).  Even if it had gluten, you would have to eat it for a Celiac reaction

Agree, but not having gluten doesn't mean it can't cause a reaction.  Some of us have developed reactions to non-gluten foods like eggs, tomatoes, corn, nightshades etc.  OP never claimed ketchup has gluten, just that it caused her daughter pain.

Link to comment
Share on other sites
Juca Contributor

During my initial recovery period I found that having digestive enzymes with meals (look for ones that also have some acid in it) helped a lot. I keep the ones from Solgar around for any tummy issues. 

I later found peppermint oil to be quite useful. Whenever necessary, I take a capsule 30min before a meal. 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,728
    • Most Online (within 30 mins)
      7,748

    Jessmn
    Newest Member
    Jessmn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @jmiller93, Some of us are seronegative and don't test positive on tTg IgA tests.  Anemia, diabetes, and Thiamine deficiency can cause false negatives on Celiac panels.  Have you been checked for nutritional deficiencies?  Iron? Thiamine?  Vitamin B12?  Vitamin D?  Only one Celiac markers is needed to develop the active disease.   I agree a gluten free diet trial is worth a try.
    • knitty kitty
      @HWB, Have you been checked for SIBO?  Small Intestinal Bacterial Overgrowth will cause constipation and chemically breath.   The best way to get rid of SIBO is to go on a ketogenic/Paleo diet, like the Autoimmune Protocol Diet.  It starves out the carbohydrate loving bacteria and allows good bacteria to repopulate the small intestine.   The SIBO bacteria can communicate with the brain along the gut-brain axis, making you crave carbs, and in return, the SIBO bacteria can mess with your immune system by lowering inflammation and producing endorphins.  So, it's no wonder you feel better eating sugar.   I took high dose (500-1000 mg/day) Benfotiamine (Thiamine) which promotes intestinal healing and helps keep bacterial in check.  Thiamine and Benfotiamine are safe and nontoxic even in high doses.  High doses (500-1000 mg) every day are required to get results.  The body responds differently to high doses.  Got rid of my SIBO like this.  It was tough, but Celiac makes you stronger.
    • Wheatwacked
      Try whole milk yogurt.  I eat Stoneyfield vanilla.  Add fruit if you like.  Cultured Pasteurized Organic Whole Milk, Pectin, Vitamin D3. Live Active Cultures S. thermophilus, L. bulgaricus, Bifidobacterium BB-12®, L. acidophilus, L. paracasei and L. rhamnosus. Looking at the NO Fat Greek Yogurt, consider that to give the mouth feel of real yogurt ahd Manufacterers of no fat yogurt add various processed ingrediant that many Celiacs have digestive issues with such as gums.  Consider it processed food.  Fat is an important factor in our appestat to tell us we've eaten enough.  Remove fat and we eat more.  Compared to whole milk yogurt Chobani no fat greek yogurt has a cardboard mouth feel. Chobani no fat greek: Cultured Nonfat Milk, Cane Sugar, Black Cherries, Water, Fruit Pectin, Guar Gum, Natural Flavors, Cherry Juice Concentrate, Locust Bean Gum, Lemon Juice Concentrate. 6 Live and Active Cultures: S. Thermophilus, L. Bulgaricus, L. Acidophilus, Bifidus, L. Casei, and L. Rhamnosus Funny that since recommending low fat diets in the 1970's the US population has gone from 15% to 50% obese.
    • sh00148
      Just had my daughter diagnosed and am currently awaiting blood test results for my son. As well as many bowel issues, mostly loose stools with mucus and lots of gassy moments sometimes leading to leaning stool, he has recently soiled himself in his sleep twice. He has been toilet trained for a long time, but is not waking up with the poo. It’s not just a little, it’s a lot.    We have had to make an appointment re his blood test results next week so will find out if it is coeliac too but I’m just wondering whether anyone else has had this? Ive read online that it could mean he’s constipated, but he poos all the time and it’s often soft, never hard. 
    • captaincrab55
      I know this isn't an IBS Forum, but it looks like they may have cracked the code on treating it.  They think the new discovery may make it possible to treat other autoimmune diseases.  Even if they develop a treatment I think I would continue eating strict gluten-free, but it may allow me to eat out gluten-free without the fear of being glutened.  That would be especially helpful when traveling.   I hope you find this article as promising as I did.   https://www.msn.com/en-us/health/other/scientists-have-discovered-a-cause-of-inflammatory-bowel-disease-they-said-it-s-a-holy-grail-discovery-
×
×
  • Create New...