Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kitchen and other questions


Bookgirl32

Recommended Posts

Bookgirl32 Explorer

Endoscopy biopsy results have not come back, but the doc saw "cracked-mud" everywhere he looked during the endoscopy. So now that I can officially go gluten free, I'm trying to figure out what order to do things. Obviously day one I have no longer voluntarily put any gluten into my mouth, but we are waiting on my son's diagnosis (he's a really weak positive, two points over, but has mild symptoms, so I'm assuming it's positive) so we still have gluten in the kitchen. Once his diagnosis is finished the whole house is going gluten free (my husband and I are going paleo), even if he doesn't have it right now. As a small silver lining, we had already decided to replace our old kitchen appliances before I was even diagnosed with the blood test. So I really don't feel like cleaning out my appliances like crazy. They come in two weeks. I'm thinking I'll just be really careful in the kitchen until then, slowly get rid of wooden/plastic things, etc. New pots and pans coming too but ours were all scratched nonstick coating. So basically, if I take things at a steady pace over the next two weeks, by the time my new appliances come in I'll have everything else cleaned out, and I'm hoping my son will have had the endoscopy by then. I feel like I'm not doing this fast enough. Like I need to have it all done perfectly by the morning. Someone talk me down off the ledge!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Get down off that ledge! NOW!:lol::lol:

Settle down. It will be okay. You have time. Why don't you pick one cabinet or shelf in a cabinet & put all the gluten containing food in there. So go through each cabinet, one by one, & read ingredient labels. Take a magic marker & write gluten-free on all the stuff that does not contain gluten. In a different color marker, write GLUTEN!! on everything containing gluten & put those items in that one special cabinet/shelf. Clean all the other cabinets & put the gluten-free food back in them. Now, when the 2 weeks is up, all you have to do is the one cabinet/shelf.

Bookgirl32 Explorer
45 minutes ago, squirmingitch said:

Get down off that ledge! NOW!:lol::lol:

Settle down. It will be okay. You have time. Why don't you pick one cabinet or shelf in a cabinet & put all the gluten containing food in there. So go through each cabinet, one by one, & read ingredient labels. Take a magic marker & write gluten-free on all the stuff that does not contain gluten. In a different color marker, write GLUTEN!! on everything containing gluten & put those items in that one special cabinet/shelf. Clean all the other cabinets & put the gluten-free food back in them. Now, when the 2 weeks is up, all you have to do is the one cabinet/shelf.

That's a great idea! I also haven't completely restocked utensils and stuff, so for example tonight cooked gluten free but had to use my old pots and pans. But I got into my endoscopy on a cancellation, and it hadn't happened I'd be waiting till June 15th anyway and still eating gluten. It's amazing what it does for your motivation when you realize every inch of your small intestine that the dr looked at had visible evidence. I read that once it's visible that means it's really bad. But he also said that he didn't think it was that bad all the way throughout my small intestine or I would be having much worse symptoms. Hope he's right. 

Ennis-TX Grand Master

Quick changes I tell some people to get by with old cookware and and being extra careful.
Butcher Paper/Freezer Paper, lay it out for a clean prep surface/eating surface, it also makes clean up a breeze...I buy commercial counter wide rolls of it and replace it every few days to keep my counters clean and bakery clean (gluten free bakery)
Foil, you can buy dispensable sheets or rolls, use it to line cookie sheets, and baking dishes again no CC and easy clean disposable liner no mess
Crockpot Liners, Again disposable liners for easy clean and no CC
Nordic Ware microwave cookware, they have steamers, omelette makers, grill plates with splatter covers (a must), etc. Cheap disposable if you mess up and allows quick easy meals.
For a quick replacement of good array of spice blends just get a set of spices from Big Axe Spice, they have great gluten free blends, no salt added, and you do not have to replace a tone of differnet spices right off the bat, I suggest them and Spicely Organics. I use Big Axe for meal prep, I do unseasoned bland batches often, then just season a portion different with meals using a different one.
Here are some useful links
https://www.celiac.com/forums/topic/91878-newbie-info-101/
https://www.celiac.com/forums/topic/121148-gluten-free-food-alternative-list-2018-q2/

 

I follow a keto/paleo diet mostly, with other limitation due to allergies etc. I do chef jobs often and lately been doing sheet pan meals for catering as they are super simple. Foil line a lipped baking sheet, put your meat, veggies on it and season and bake, Arrange so some of the veggies are over the meal to drip the flavor of say bell peppers into the meats, season over the entire pan evenly and sometimes a bit of water and a bit of a cooking wine in the bottom of the pan to simmer everything a bit and combine flavors. Look up sheet pan recipes for ides. Crock pot meals are also simple things and can be done with chicken or roast real easy.

 

Bookgirl32 Explorer

I also get migraines from red wine. Are white cooking wines ok with paleo? Also does cooking seem to remove the effects of the red wine? I don’t know if it’s sulfites that give me the headache or something else. 

cyclinglady Grand Master
20 minutes ago, Bookgirl32 said:

I also get migraines from red wine. Are white cooking wines ok with paleo? Also does cooking seem to remove the effects of the red wine? I don’t know if it’s sulfites that give me the headache or something else. 

If just red wine causes you grief, it is most likely the tannins that are the cause and not sulfites.  

Beverage Proficient

Cooking wine is the worst of wines with lots of sugar and salt, just stay away from it.  You can use vinegars (gluten free ones of course like apple cider) or lemon juice instead.  There might be some low tannin wines available, I don't know, but I am sensitive to sulfites and get mail order from dryfarmwines.com, but it's expensive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cap6 Enthusiast

Slow and easy.  !!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

    3. - cristiana replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - EssexMum posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,636
    • Most Online (within 30 mins)
      7,748

    Sonnenblume327
    Newest Member
    Sonnenblume327
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.