Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

HELP not sure if i'm on the right path


birdie761

Recommended Posts

birdie761 Newbie

I wanted to see if you could give some insight to this; if Celiac is a real possibility

I have struggled with digestive issues on and off for years but last few years, have been the worst lately.  I had some bowel issues (blood in stool, change in bowel movements) recently more. I immediately went to my doctor and he ordered a colonoscopy. They did find some very small polyps but rest was clear.    I’ve always felt “pressure” or bloating so I pushed my doctor as I feel something is off. I work out extensively including multiple running activities (did an 8K run a few weeks ago and training for 10k).

I see my gynecologist to rule out anything with my issues ovaries just to be sure (I had a hysterectomy but left ovaries years ago). In the process of all the blood test, a celiac test was done and my doctor referred me to a GI specialist, saying something about having the markers for it. Not sure what that means.  Since the colonoscopy in March 2018, I’ve had discomfort in my upper abdomen, feeling gassy (feels like I have to burp all the time), nausea, continue loose stools or diarrhea. Always tired.  

Here are my blood test

DQ ALPHA 1 (CELIAC HLA-DQ)

01:03,02:01  

 

DQ BETA 1 (CELIAC HLA-DQ)

02:02,06:03

 

 

My pictures I attached showed my stomach in September 2017 at the Tough Mudder I did and now (this last Sunday)

 

Not sure I’m going down the wrong path or not… any thoughts or tests I could do or maybe I’ve done already, to determine this or not

stomach.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

The distention looks like what some of use get with celiac or in my case even my ulcerative colitis but it is more around the outside rim and lower abdomen.

I can not read panels very well, and in most cases they vary from lab to lab and require a reference range to determine how relative the actual numbers are. You have to be eating gluten daily prior to the labs, and they are not always accurate as some do not test positive on the blood but will have villous atrophy in the endoscope biopsies and even then with a surface area the size of a tennis court...they sometimes miss the damaged areas. You can look up more on the testing here. If you do test positive then at least you can look forward to a cure without meds and getting most of your life back with a very strict diet change. Open Original Shared Link

RMJ Mentor

Those blood tests are for genetics, to see if you have the genes that predispose one to celiac.  Almost a third of the population has the genes for celiac but only 1-2% develop it.  You’d need antibody tests, and if those are positive an endoscopy, to find out if you have it.

Juca Contributor

You need to get tested.

In the meantime, stop eating sugar and artificial sweeteners. It helps with all sorts of digestive issues and it won't mess with you tests (keep eating bread and pasta).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,650
    • Most Online (within 30 mins)
      7,748

    NancyW
    Newest Member
    NancyW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jenn D
      Hi. Did your ema levels ever go negative? My son is 2 years in gluten free and they are still positive.  I'm scared he has refractory celiac disease. Please if anyone has any info greatly appreciate it. His ttg is 3 which is considered normal.
    • MomofGF
      I will have that info soon but it was a laundry list of a test and 9 viles. ok so there were some days she was gluten she barely ate because of the reactions. I told her 3 weeks of atleast 10g’s a day and no gluten-free days. Thanks so much for your help! I didn’t know my suggestion for gluten-free days would have hurt her.    I will come back with the list to make sure the req was proper!! 
    • trents
      A "gluten challenge" of two weeks would be the bare minimum for expecting to render valid testing, and that would have been paired with eating a minimum of 10 g of gluten each day (the equivalent of 4-6 slices of wheat bread). And with the three gluten free days in the midst of that two week gluten challenge I would not have confidence in the results of the testing. Was there a blood test done for IGA deficiency? Can you post the test names that were done with the scores and with the reference ranges used by the lab? By the way, with celiac disease the issue is not being able to digest gluten. Celiac disease is an autoimmune disorder defined by the fact that ingestion of gluten triggers an immune system response that attacks the membrane that lines the small bowel. The immune system mistakenly identifies the protein gluten as a biologic invader.
    • MomofGF
      Hey all!! M i want to thank everyone for their suggestions and advice - I am a single mother of 4 (now 3) and was helping with my oldest leaving the nest. I have another child with medical issues and with work (it’s our end year), life has been crazy and I haven’t had the time to answer.    so we got a blood test done for my daughter that can’t digest gluten. She had been eating gluten for 2 weeks. The blood work came back normal? How is that possible. I see her with my own eyes and it’s not normal. Is that not long enough?  I am thinking about having her eat gluten another week then go to the hospital and see what they say.    She did have 3 gluten-free days in those 2 weeks but she was getting afraid to eat and I told her to may take a day off - was this a bad thing to do? Girl was having constant back pains and muscle soreness as well. Headaches/migraines…should I wait longer. I did see 4-6 weeks of Gluten consumption prior to testing… kind of at a loss now.    Thanks to everyone for whatever advice you can give.   Enjoy your Sunday 😃👋👋      
    • Scott Adams
      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...