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negative genetic testing, still celiac?

Lou may

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Lou may Apprentice
Lou may
Posted

Hi, it's me again. A quick question for you guys! 

Im waiting to see a gastro in June, but as symptoms have been almost unbearable, i decided to do a DNA test in the interim to see if I had the hladq2 or hladq8 markers. Got the results back a couple days ago, and i have neither of those markers, and have been told i have a low risk of developing the disease. 

What I would like to know is this, can you test negative for the dq2/dq8 markers and still go on to develop celiac disease? 

Any thoughts, opinions etc would be very appreciated! 

 

Thank you 

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      Advice needed

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      Okay, so two issue here: 1. Your brother is creating CC (Cross Contamination) problems by using your gluten free food items and mixing into them gluten containing food. I would suggest you consider keeping your gluten free food items in your bedroom instead of the kitchen. Consider getting a small fridge that will fit in your bedroom for things that need refrigeration. 2. Your dad is not giving proper attention to avoiding gluten containing ingredients when he prepares meals for the family. Do you think he has a good understanding of what gluten is and where it is found in mainline food products? Is he doing this out of carelessness or ignorance? Most people do not have a good understanding of where gluten is found in the food supply. Even those with celiac disease find there is a considerable learning curve involved to this. I mean, who would ever suspect that wheat is an ingredient in soy sauce and in most canned tomato soups, even some chocolate syrups and pancake syrups? Is your dad open to being educated about sources of gluten? Do you think your family members understand that celiac disease is not an allergy but is an autoimmune disorder that can permanently damage your body over time if gluten is not avoided? I think you may need to struggle with this until you are in a position to move out of your family home into your own dwelling where you have complete control over what you eat. I also want you to know that you are not alone in this problem. On this forum, we have had a number of threads started by young people in your same situation.
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