Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need some help

Jenm072289

Recommended Posts

Jenm072289 Rookie
Jenm072289
Posted

I was recently referred to a rheumatologist because of some joint pain I had been having. He was unable to determine the source of the pain so I was tested for many different things. I was vitamin D deficient and started on supplements to bring my levels back to normal. Today I went back to the rheumatologist for a follow up appointment. He had ordered a Celiac Disease Panel and told me the results came back with a gluten intolerance and I should begin a gluten free diet. Can a celiac panel show a gluten intolerance? What is the difference between that and Celiac Disease? Should I have been referred for a scope to make sure I don't in fact have Celiac? I also developed a rash recently on both of my elbows that is very itchy. I am concerned it might be DM which would point to celiac as well. Just feeling a bit confused and not really sure if I should just start the diet or if I need follow up and make sure I have and intolerance and not celiac. Thank you for your advice and help.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RMJ Mentor
RMJ
Posted

There is no lab test for gluten intolerance  Could you post your results, or at least the names of the tests within the celiac panel?  Probably good to keep eating gluten and see a gastroenterologist for further testing.

squirmingitch Veteran
squirmingitch
Posted

If the  rheumatologist ordered a celiac panel then he ordered a celiac panel b/c as Ennis stated, there is no such thing as a non celiac gluten intolerance test. So the rheumy was saying you have celiac disease. Yes, you really should get an endoscopic biopsy so you will need to see a gastroenterologist. YOU NEED TO CONTINUE EATING GLUTEN EVERY SINGLE DAY UNTIL THE ENDOSCOPY IS DONE.

Yes, it sounds like you have dh. As long as you have a celiac dx then you do not need to get a separate dx of dh. DH IS celiac disease & the prescription is the same --- a strict gluten free diet. 

Be glad that the rheumy knew what he was doing & ordered a celiac panel for you. Keep that doctor! Also thank him for saving you a mountain of pain. I had joint & bone pain so severely that I was positive I would be in a wheelchair for life in 6 months time. That was just before I found out it was all due to celiac. All that is gone now. 

  • 1 month later...
Jenm072289 Rookie
Jenm072289
Posted
  • Author

Sorry it has taken me awhile to reply and thank you both for your help! The panel that was done included Gliadin IgA which was in normal range, tTG IgA which was in normal range, Gliadin IgG which was in normal range, and tTG IgG which was high. Unfortunately a IgA serum was not done so I do not know if I have a deficiency. I unfortunately went gluten free at the encouragement of my rheumatologist and wasn't able to get in to see a dermatologist until 4 days after being gluten free. She took a biopsy anyway and it came back saying I have psoriasis. I am now going back to the rheumatologist to see if my joint pain could be psoriatic arthritis. I feel better on the gluten free diet but would still like to know if I am gluten intolerant or have celiacs. I am a little apprehensive about eating gluten again as I do not want the psoriasis to flare up again. The psoriasis began to clear up within days of starting the gluten free diet. Anyone have a similar experience? Should I pursue further testing or just continue on the gluten free diet?

frieze Community Regular
frieze
Posted
Quote
Quote

go to pubmed and type in celiac psoriasis

 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,509
    • Most Online (within 30 mins)
      7,748
    Mr-Collateral531
    Newest Member
    Mr-Collateral531
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certified gluten free oats

      By trents · Posted

      Your doctor may or may not be well-informed about the issue you raise so I would not agree that he/she would necessarily be the best person to rely on for a good answer. The question actually raises two issues.  The first issue has to do with cross contamination and individual sensitivity as dublin55 alluded to. Oats and wheat are both cereal grains that are typically grown in the same areas, transported in the same trucks, stored in the same silos and processed on the same equipment. So, there is usually significant CC (Cross Contamination). With gluten free oats, there is some effort to separate these processes that would otherwise cause significant CC and "gluten free" oats should meet the FDA requirement of not exceeding 20 ppm of gluten. But this 22 ppm standard is not strict enough for more sensitive celiacs. "Certified gluten free" oats (and other food products are held to a stricter standard, that being not exceeding 10 ppm. But even that is too much gluten for some super sensitive celiacs and will cause a reaction. The second issue with oats has nothing to do with gluten per se but with the protein found in oats called "avenin". Avenin has a structure similar enough to gluten to cause a reaction in some celiacs. This is called "cross reaction" not to be confused with "cross contamination" discussed in the previous paragraph. So, for whatever reason, whether cross contamination or cross reaction, it is estimated that about 10% of celiacs react to oats.
    • dublin555
      Getting rid of the belly bloat

      By dublin555 · Posted

      Karen, that sounds really tough. You must find both RA management and your new gut problems extremely irritating to handle at once. Together with your pain relief you still experience ongoing bloating complications that drag on without a resolution. Of course visiting a doctor to obtain a proper celiac diagnostic evaluation becomes necessary when no formal diagnosis has been received. Your journey toward recovery has been lengthy yet it brings comfort to notice your progress during this time. This support group offers you valuable help because there are people experiencing the same concerns with you. Working through your issues will be easier.
    • dublin555
      Certified gluten free oats

      By dublin555 · Posted

      Yeah, it’s tricky. I’ve seen a lot of mixed opinions too. Some folks can tolerate certified gluten-free oats without a problem, but others with celiac still react. Honestly, it really depends on your sensitivity. Your doctor would be the best person to ask about your specific situation.
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Hi guys! Can we eat them an can they cause villious atrophy? I saw multiple articles about it an they have very different opinions… so what did your doctor told you? Thanks!
    • robingfellow
      Can gallbladder issues cause symptoms of celiac disease?

      By robingfellow · Posted

      I can't edit my posts, but I forgot to note as well: I also had low iron and vitamin d according to my blood tests, despite already taking supplements for each
×
×
  • Create New...