Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Regaining a normal life


Dunnie

Recommended Posts

Dunnie Newbie

Hello all. I've been living with celiac for about 4 years now. I'm a type 1 diabetic and as mentioned have celiac. I have not followed the diet, never really feeling the effects until the past year. I'e always been in decent shape, but realized I was losing weight in such a way that I look malnutritioned. After trying my best to push weights, and do pushups, I realized I am the weakest I've ever been. I'm 22 and feel like I have the strength of a 14 year old. 

Is this the end? I want to dedicate my self to the diet, but feel like at this point there is no use.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Now, think of it like this, you lost the  weight you have no fat...now if you put muscle on that frame you would look awesome. I have been body building with celiac past few years. I use a hight fat/protein diet, hardly any carbs (my UC flares to carbs/sugars) almost a keto diet. The high fat/protein diet will be great for managing your diabetes. If you need help, I have found low glycemic breads, and even make cakes that my diabetic parents can eat without spiking glucose. These make for nice treats to help motivate you. I use vegan protein powders between meals in a shake of nut milks, nut butters, etc (non diary as with celiac your will not be able to break  down dairy well at first with damaged villi and lack of enzymes) between meals.
I am lean, with decent muscle coming on, I do resistance training, and some weight work and am 28. I went gluten free over 5 years ago now, I was scoped a bit over a year ago to find most of my small intestines had healed. SO there is hope. I can help you find stuff if you would like and give more suggestions on supplements etc. I am not a doctor and everyone is  different in the way they metabolize foods but perhaps we can build a idea diet and regime to help you out?

PS. Important thing now is to go 100% gluten free and start your healing, start slow with your training, resistant bands are great. As you heal you will absorb more nutrients and start putting on muscle mass, and step up your regime from there. As a Type 1 your not going to be able to go completely ketogenic and will have to closely monitor your blood sugar, I suggest constant snacking on lower glycemic higher protein foods like nuts, eggs, protein smoothies with added fiber, but again consult a nutritionist or doctor to your specific needs. Read up on the newbie 101 thread and clean out your kitchen of gluten foods, glutened cookware, and contaminated condiment jars from double dipped knifes/spoon. Drop dairy and oats as many have issues with them. If you crave bread check out stuff liek Julian Bakery, and KNOW foods they make low carb diabetic friendly breads for those "cravings" Mikey muffins makes great English muffins that low low gylcemic, and califlour foods makes a plant based pizza crust that you can have all kinds of fun with in the kitchen. See not that hard or depressing with food eh? Omelettes, sausage, eggs, avocado toast, english muffins, soups, stews, etc with all the above. Easy sheet pan meals and crock pot meals lining your pans with foil or your crock pot with a liner and clean up is a breeze with easy prep. You got this, cook for my diabetic parents and run a bakery that does low carb breads and cakes for some of my diabetic customers all grain and gluten free.
https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

GFinDC Veteran

Hi dunnie,

Celiac damage can impair our gut's ability to absorb nutrients.  Nice things like vitamins, minerals, fats and sugars may not get absorbed well.  Our bodies tend to work better when it gets the nutrients it needs.  Without those neato things our bodies cells can't work well and heal themselves.  We may be tired since our cells are starving for nutrients, even though we eat lots of food.

Going gluten-free is a bit of a challenge, but the rewards for a person with celiac are great.  Our guts can begin to heal.  They can begin to absorb the nutrients we need again.  The immune system can settle down and attack other things besides our bodies.

These are not overnight changes though.  It can take months for a person to recover from celiac damage.  The immune system doesn't stop attacking instantly.  But once it does and your gut is working right again, you may find you are feeling much, much better than you are used to feeling.

GFinDC Veteran

Hi dunnie,

Celiac damage can impair our gut's ability to absorb nutrients.  Nice things like vitamins, minerals, fats and sugars may not get absorbed well.  Our bodies tend to work better when it gets the nutrients it needs.  Without those neato things our bodies cells can't work well and heal themselves.  We may be tired since our cells are starving for nutrients, even though we eat lots of food.

Going gluten-free is a bit of a challenge, but the rewards for a person with celiac are great.  Our guts can begin to heal.  They can begin to absorb the nutrients we need again.  The immune system can settle down and attack other things besides our bodies.

These are not overnight changes though.  It can take months for a person to recover from celiac damage.  The immune system doesn't stop attacking instantly.  But once it does and your gut is working right again, you may find you are feeling much, much better than you are used to feeling.

Wheatwacked Veteran

Good advice from Ennis and GFinGC. Many years ago the health industry ridiculed Linus Pauling for proposing that high doses of vitamin C was beneficial to health, in particular in speeding recovery from the common cold. In the eighties they proved that zinc lozenges stops the common cold and flu viruses practically in their tracks. B5 helps peripheral neuropathy. D3 can reverse sadness and depression in high enough dose. Iodine is necessary for apoptosis (killing off of defective or diseased cells) and muscle tone and energy. I've read that one tablespoon of wheat converts to the equivilant of one tablespoon of sugar. How can that be good for a diabetic, type 1 or type 2. Now there are claims of a type 3.

Malabsorbtion Syndrome is co-morbid with Celiac Disease. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,136
    • Most Online (within 30 mins)
      7,748

    kfkynett
    Newest Member
    kfkynett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium.  B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy, that burning sensation.   (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC9804944/ ) Long Covid can be the result of nutritional deficiencies, as well.  Zinc, Selenium, Vitamin D, B12, Thiamine, Riboflavin, Pyridoxine, Niacin, and Choline.  (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC10015545/  and https://pubmed.ncbi.nlm.nih.gov/36587225/ ) I agree with @Wheatwacked to get Vitamin D level higher, 80 ng/ml.  Taking high doses of Vitamin D to correct a deficiency has been found to be beneficial.  I took Vitamin D3 supplements throughout the day when I had a severe deficiency.  It got my level up quickly and I started feeling much better.   (See... https://pubmed.ncbi.nlm.nih.gov/28167237/ , https://pmc.ncbi.nlm.nih.gov/articles/PMC4824637/) Vitamin D is a fat soluble vitamin.  Fats can be difficult to digest and absorb, so most of the newly diagnosed can be low in the four fat soluble vitamins (A,D,E,K).  A deficiency in Vitamin A can cause dry eyes.  Omega Threes and Evening Primrose Oil help with dry eyes, too.  (https://pmc.ncbi.nlm.nih.gov/articles/PMC10363387/) Blood tests are not accurate measurements of vitamin levels.  Blood tests will reflect any supplements being taken.  Blood tests do not measure how much of a vitamin is stored inside cells.  Supplementing with all eight essential B vitamins for several months will boost your ability to absorb the needed nutrients. A deficiency in Cobalamine, B12, can be aggravated by anesthesia.  Cobalt in Cobalamine binds irrevocably, irreversibly with the Nitrogen in anesthesia, rendering B12 useless.  Supplementing with B12 after exposure to anesthesia is beneficial.  (https://pubmed.ncbi.nlm.nih.gov/8250714/) Pyridoxine B6 and Riboflavin B2 as well as B12 are needed to lower histamine levels (produced during the inflammation process that occurs in Celiac Disease). This can help relieve the sinus pressure.  Riboflavin B2 and Thiamine B1 are helpful with headaches.   We need more Thiamine when we are emotionally stressed, physically ill, and physically active.  Benfotiamine, a form of Thiamine, has been shown to promote intestinal healing.  Thiamine is helpful in relieving anxiety.   (https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/  , https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ ) Celiac Disease causes malabsorption of vitamins and minerals.  It is rare to have a single vitamin deficiency.  Malabsorption in celiac disease affects all the nutrients we need.  Some vitamins just run out sooner than others because they can't be stored or we have a metabolic need for more.  (https://pmc.ncbi.nlm.nih.gov/articles/PMC10106602/ ) Hope this helps!
    • Jtestani
      My question is .. my test results Ttg (IgA 1.7 u/ml & IgG 3:3 u/ml)  both negative & DGP IGG 7.1025 negative but DGP IGA postive at 36.2007 U/ML.  Am I showing a negative test result?  any insight helps as I have to wait till new year for next Doctor’s appt.  Thanks 
    • StaciField
      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • John.B
      Hello, Target recently changed their branding on the Up & Up Loratadine and no long have it labeled gluten free. I've not been able to find any meds labeled gluten free for allergies. Some lists showed them but the the packaging isn't labeled.  Wondering if anyone knows of or has a list that would be safe for Celiac kiddos.
×
×
  • Create New...