Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being assertive about food prep?


Kalie A

Recommended Posts

Kalie A Newbie

Hi everyone! 

I was diagnosed with celiac about 2 years ago. I’m one of the unfortunate celiacs who has gotten more sensitive to gluten after being gluten free for a while. I used to be able to tolerate a little cross contamination without any symptoms but lately that’s not the case. I’m wondering how everyone else has learned to ask food service workers at restaurants to use clean tools and change their gloves while out? I’ve been super shy about it lately and know I need to learn to speak up. I’ve had a couple servers tell me that if I’m celiac and that sensitive I shouldn’t be eating out, which is embarrassing and unfortunate, because celiacs should be allowed to decide for ourselves what we will and won’t put in our bodies. 

 

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
7 minutes ago, Kalie A said:

Hi everyone! 

I was diagnosed with celiac about 2 years ago. I’m one of the unfortunate celiacs who has gotten more sensitive to gluten after being gluten free for a while. I used to be able to tolerate a little cross contamination without any symptoms but lately that’s not the case. I’m wondering how everyone else has learned to ask food service workers at restaurants to use clean tools and change their gloves while out? I’ve been super shy about it lately and know I need to learn to speak up. I’ve had a couple servers tell me that if I’m celiac and that sensitive I shouldn’t be eating out, which is embarrassing and unfortunate, because celiacs should be allowed to decide for ourselves what we will and won’t put in our bodies. 

 

Thanks!

I think the kinds of places where you have to ask to change gloves, etc may not be the kind of place for you to eat at.  Just changing gloves doesn't take care of the fact that there are gluten crumbs in the cheese, for example.  

And your comment about deciding what you want to put in your body - if you go to a place that can't give you safe food and decide to eat it anyway - you have decided what you are putting in your body.

Places that have actual chefs that make the food are better options.  Not all of them are a lot more expensive than Appleby's or chipolte.  But you have to find them.  Places with a good corporate gluten-free policy like Outback Steakhouse , Bonefish, Red Robin, Larkburger, etc are safer choices.  Places where the food is naturally gluten-free like Ethiopian or Salvadorean or fish or steak places are usually safer bets.  

You may have a local gluten-free or Celaic Facebook page.  Or try the Find me Gluten free site to get some ideas.  You can then call (at a not busy time like 11 a.m. or 3:00 pm)  or email or message with more specific questions.

Ennis-TX Grand Master

I tend to ask alot of questions and ask managers, I make sure they know about my issues. I choose menu options and eat at places that tend to be safer...IE do not eat at subway, a pizza place, or a gluten based bakery, the flour and CC risk are much greater. I go to the local chilis where they specifically use a conveyor oven for roasting veggies and fish on foil sheets they showed me it and how they did it and I only order stuff that can be done with that cooking method.

I know the owner of local sushi place and they have japanese sushi chef with dedicated knifes and prep area right in front of me. They will not "taint" the meat or the prep area with soy sauce, seasonings, etc....odd dedication but they are very professional about their fish. I sometimes get the plain fish slices from there.

I also show up RIGHT as they open NEVER go to a busy place and expect them to be in a good mood about extra precautions....yes your a customer...but your that one $10-20 order vs the other $400-1200 they make off the rest of everyone. And their main focus is getting as much food on and off the line as fast as they can...the whole stopping to clean down everything for one person is not going to happen, and their is a higher chance of cross contact.

Only other places you might consider are 100% dedicated gluten free restaurants. I found a few places like this and recently fell in love with a  English Pub in Dallas that is gluten free and the owner has kids with celiac and knows his stuff. Google Gluten Free Restaurants and check reviews with the App FindMeGlutenFree

But really most time I have given up on eating out, I meal prep and take my own foods, always have meal bars, snacks, MRE, etc for eating on the go. But I have a few more restrictions with my diet lol.

LauraH Newbie

If you are getting more sensitive over time, you know the gluten you are getting inadvertently is causing you actual damage, in addition to any symptoms. That damage is cumulative over time.  Personally, I choose not to eat out except very rarely, and only at restaurants that REALLY take it seriously.  Luckily I live in a place where nearly every restaurant has a gluten-free menu, but I still avoid pizza places, pasta places and bakeries, because they simply can't avoid cross contamination in the ovens/colandars/counters.    I have 45 years of untreated celiac disease in my past, and I don't want to risk *any* more damage to my poor innards.  That is more important to me than eating at any restaurant for any reason.  If I do end up at a restaurant because of a meeting/social thing I don't want to miss, I only eat drinks and stick to food items I KNOW FOR SURE are safe - steamed veggies (grilled can share a grill with buns), fruit plates, etc.  

Ultimately it's your choice whether you want to add to your symptoms and gut damage.  If you are having consistent symptoms every place and time you eat out, it is entirely possible that you will have to choose between having symptoms and eating out.  Many of us make that choice... 

 

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,025
    • Most Online (within 30 mins)
      7,748

    Captain173
    Newest Member
    Captain173
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StaciField
      I am so scared of going to my doctor because she didn’t give me any information on my condition just saying remove gluten. I have a number of things that relate to coeliac disease but the doctor never picked up on it years ago when I was questioning my health.
    • StaciField
      I was diagnosed with coeliac disease about 8 months ago. I have been on a gluten free diet since then but I am still struggling with symptoms.  My bones hurt all over my body, my hips and elbows especially. My arms are tingling a lot and feeling numb.
    • trents
      Welcome to the forum, @StaciField! That is a question for a dental professional. But let's get some background info from you in relation to things we are more qualified to give input about. Have you been diagnosed with celiac disease? If so, are you consistent in gluten free eating?  If you haven't been checked for celiac disease, you certainly should be as mineral depletion of the bones is a common symptom of the condition. Celiac disease results in vitamin and mineral malabsorption.
    • StaciField
      I had an ex ray yesterday and I was told that my bones in my jaw were broken and falling away. I have 2 front bottom teeth that are wiggling and I have to take them out. I am so scared of this as I have more broken teeth that I’m wanting removed. If I have them removed would I be able to get false teeth if I have a bone problem?? 
    • trents
      Welcome to the forum, @ShRa! First of all, celiac disease is not a food allergy. It is an autoimmune disorder. That is, the ingestion of gluten triggers the body's immune system to attack it's own tissues, primarily the tissues that line the small intestine. This causes inflammation. This inflammation produces certain antibodies that can be detected by serum testing. Over time, the inflammation damages the lining of the small intestine and compromises the efficiency of nutrient absorption since the small intestine (aka, small bowel) is the part of the intestinal track where essentially all of the nutrition in the food we eat is absorbed. Gluten is a protein found in three grains: wheat, barley and rye. In people with celiac disease, the immune system mistakes gluten as an invader. Two factors have to be present to develop active celiac disease. The first is the genetic potential. Two genes (and their variants), HLA-DQ2 and HLA-DQ8, have been tied to celiac disease. About 40% of the population has 1 or both of these genes but only about 1% of the population develops active celiac disease. That means there is a second factor that must come into play to turn the genes on such that they become active in producing celiac disease. This second factor is not well understood but it is thought to involve some kind of stress event. For example, a viral infection or other acute illness or even prolonged psychological/emotional distress. Apparently, for most with the genetic potential for celiac disease, this never happens. Your son has been diagnosed as a celiac via serum antibody testing. Normally, there is a second stage of testing involving an endoscopy with biopsy of the small bowel lining to microscopically check for damage. This second stage procedure is considered the gold standard of celiac disease diagnosis but is sometimes dispensed with if the serum antibody scores are quite high. Your son's tTG Ab-IGA score apparently qualifies for this in your PCP's opinion. The "normal" IGA (aka, "total IGA") score simply means he is not IGA deficient and is not a test for celiac disease per se. In the case of IGA deficiency, the tTG Ab-IGA score can present as a false negative. Since his total IGA is normal this is not an issue. The other celiac antibody test done was the Gliadin DGP Ab IgA and it was normal. Do not be concerned that one antibody test was high positive and the other was normal. This is typical. The tTG Ab-IGA is the most important one and the one test most ordered by doctors when checking for celiac disease. One concern I have going forward is the instruction from your PCP to have your son stop eating gluten before he sees the specialist. If the specialist wants to do an endoscopy with biopsy and a good amount of time elapses before that procedure happens, going gluten free now might allow for enough healing of the small bowel lining to invalidate the biopsy results. Kids heal fast! I would consider holding off on going gluten free unless your son's health is clearly in immediate danger by not doing so. I am linking two articles that might be helpful in. One is an overview of celiac serum antibody testing. The other is a primer for getting a handle on eating gluten free.  
×
×
  • Create New...