Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction to gluten but also BUTTER


soph93

Recommended Posts

soph93 Newbie

Hi all,

For years now I have been struggling with severe bloating and cramping after eating certain foods. I have been to the doctors several times and had scans, blood tests, the lot. However, eventually they gave up and told me that I just had IBS. I decided to try eliminating food groups myself, starting with gluten as I noticed particular flare ups every time after pizza, sunday dinners, chinese and burritos. I have been gluten free for approximately 2 weeks now and have been feeling lots better and no flare ups. 

It wasn't until this weekend that I had a cheese sandwich made with gluten-free bread, cheddar cheese, lettuce, pepper and butter - with this I had a packet of Walkers crinkle cut crisps. After this meal, I had a huge flare up and felt so sick and nauseous for the rest of the day - and I am now still suffering from this flare up as it takes days sometimes weeks for my stomach to deflate after. 

I've been trying to pinpoint what I have eaten in this meal to cause this and my instant thoughts was that I may have a dairy intolerance also. However, I had eaten cheese the day before and was fine, and also have normal milk with my gluten free cereal, as well as poached eggs without any flare ups (I do bloat after eating boiled eggs on their own however). The crisps didn't have any gluten allergy warnings on the back, only milk - however I was fine eating the same packet of crisps a few days prior also. 

This led me to the conclusion that it must of been the butter! I also ate a gluten free pie today and feel really ill after that so wondering if I'm starting to see a link. Is it possible to have a gluten intolerance and have a sensitivity to just butter and boiled eggs but fine drinking milk and eating eggs cooked another way?

I'm very confused and doctors seem to no help. I'm just sick of forever having to wear baggy clothes incase of a flare up and being in pain all the time!!

Thanks,
Soph93

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
1 minute ago, soph93 said:

Hi all,

For years now I have been struggling with severe bloating and cramping after eating certain foods. I have been to the doctors several times and had scans, blood tests, the lot. However, eventually they gave up and told me that I just had IBS. I decided to try eliminating food groups myself, starting with gluten as I noticed particular flare ups every time after pizza, sunday dinners, chinese and burritos. I have been gluten free for approximately 2 weeks now and have been feeling lots better and no flare ups. 

It wasn't until this weekend that I had a cheese sandwich made with gluten-free bread, cheddar cheese, lettuce, pepper and butter - with this I had a packet of Walkers crinkle cut crisps. After this meal, I had a huge flare up and felt so sick and nauseous for the rest of the day - and I am now still suffering from this flare up as it takes days sometimes weeks for my stomach to deflate after. 

I've been trying to pinpoint what I have eaten in this meal to cause this and my instant thoughts was that I may have a dairy intolerance also. However, I had eaten cheese the day before and was fine, and also have normal milk with my gluten free cereal, as well as poached eggs without any flare ups (I do bloat after eating boiled eggs on their own however). The crisps didn't have any gluten allergy warnings on the back, only milk - however I was fine eating the same packet of crisps a few days prior also. 

This led me to the conclusion that it must of been the butter! I also ate a gluten free pie today and feel really ill after that so wondering if I'm starting to see a link. Is it possible to have a gluten intolerance and have a sensitivity to just butter and boiled eggs but fine drinking milk and eating eggs cooked another way?

I'm very confused and doctors seem to no help. I'm just sick of forever having to wear baggy clothes incase of a flare up and being in pain all the time!!

Thanks,
Soph93

 

Did you get tested for Celiac?  Even if it isn't Celiac , it could take more than 2 weeks to see if gluten is the problem.  

If you have been tested for Celiac and it is negative.  You might want to try to start with a very simple gluten-free diet - just a few ingredients like chicken, salt, pepper, olive oil, rice, potatoes.  Get your self feeling better and then add things back in.  Eating so many different foods with so many ingredients makes it impossible to know what one thing is bothering you.  

Ennis-TX Grand Master

Ditto kareng, first are you celiac, and were you tested? You need to see about a firm diagnosis.
Open Original Shared Link
IF you are celiac then with damaged villi you do not digest or break down lactose.....the villi that are blunted/destroyed are responsible with the enzymes to break them down....so higher lactose dairy foods will be worse then lower ones. We normally suggest removing all dairy products when your first diagnosed for a few months. Mine never went away and I got whey allergy, so I use vegan cheese and butter flavored coconut oil for my cooking, baking, eating. I can give you a list to try later but normally we also suggest a WHOLE FOODS ONLY diet and simple meals of sheet pan meals, crock pot meals, omelettes, soups, stews, omelettes simple baked chicken etc.

For now a keep a food diary and see whats bother you, foods intolerance issues and sensitivities are very common with celiac.
Open Original Shared Link
Open Original Shared Link

Jenv47 Newbie

100% yes it can be dairy and eggs.  I have celiac but I have to avoid cow’s milk and eggs.  I’ve had eggs cooked in a gluten free product and have been ok but certainly no dairy and would never eat an omelet....  I was tested and the cow dairy and egg increase my IGG response which is inflammatory-  not hives etc.. and I feel horrible 

soph93 Newbie

Hi all, 

 

thanks for your comments. The blood tests for anything such as celiac came back negative, so I don't think I am celiac - more just a gluten sensitivity. 

I will try more of a simpler diet taking out both gluten and dairy and then see how I feel. thank you all for your comments.

cyclinglady Grand Master

But did you get all the celiac blood tests?  I test positive to ONLY the DGP IgA.  If my GI had not ordered the complete panel, my diagnosis would have been missed.  Then there are about 10% of celiacs who are seronegative.  In that case, a biopsy is required.  

 

Ciglee Newbie

You don’t have celiac, move on. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi soph,

You may still have celiac disease.  Celiac can be hard to diagnose.  Most people with celiac disease are still undiagnosed even today.

If you do have NCGS (non-celiac gluten sensitivity) you are part of a much bigger group of people who have a reaction to gluten foods but don't show up on the standard celiac tests.  Possibly 5% of people have NCGS, vs 1% who have celiac.

The treatment for both is the gluten-free diet.  However, there is some new research that suggests people with NCGS react to foods with FODMAP'S.  So a low FODMAP'S diet may help them.

But the advice to go on a simple, whole foods diet is good.  Reduce the variety of foods you eat each day so its easier to track reactions.  Recovering from celiac damage is a months to years thing, not days.  The immune system doesn't stop attacking right away.

Avoiding sugary foods and carbs can help with bloating.  Meat and veggies, and nuts are good.  There are lots of processed gluten-free baked goods available but it is better to avoid those at the gluten-free diet start.

You may want to do an elimination diet at some point.  But I'd wait on that awhile.

cyclinglady Grand Master
2 hours ago, Ciglee said:

You don’t have celiac, move on. 

What?  How can you (most likely not a doctor) make that call?  We try to be supportive on this forum which is dedicated to celiac disease, Non-Celiac Gluten Sensitivity or other autoimmune issues where a gluten free diet might help.  

What brings you back?  You last posted in 2013.  Are you experiencing current issues that may be attributed to a gluten exposure?  I am curious.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,735
    • Most Online (within 30 mins)
      7,748

    Mcosta
    Newest Member
    Mcosta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I would agree. The tests do not indicate you have celiac disease. So, if you are convinced that when you eliminate gluten from your diet your symptoms improve, I would conclude you have NCGS.
    • Jack Common
      My old results are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests as RMJ had suggested to do. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   As trents suggested I ate 6 slices of wheat bread before the tests during the challenge. My results: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   As I can understand I don't have celiac disease.
    • trents
      So it sounds like Global Foods has adopted the FDA standard for "gluten free" advertising.
    • cvernon
      Agreed, I am disappointed in the recent GFCO findings as well and definitely don't hold them in as high of a regard as I used to. I did find on the Global Foods website after posting that their required ppm limit is 20ppm, which isn't as low as I had hoped. I'll email and report back. Thx.
    • trents
      Never heard of them. They give an email address so if I were you I would contact them and ask those questions. It would be wonderful if they had tighter requirements than GFCO in the sense of more frequent batch testing and even random testing. Recent news articles on this forum from back in this summer have revealed that GFCO is letting us down.
×
×
  • Create New...