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Biopsy Results


zip2play

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zip2play Apprentice

My biopsy results came back negative with no evidence of celiac damage. I had a GI Dr, friend of my MOM'S, say go gluten free anyway. He said, if she thinks it's celiac, it quite possibly is.

We are taking a trip December 31st through January 7th, I think when we return, I will go gluten free. If my symptoms disappear or get a lot better, then I guess we know.

Is there a good book or quick resource guide for gluten free living?

Monica

My symptoms come and go. I have read that isn't totally uncommon. That is what makes Celiac so difficult to diagnosis. Is that true?


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My biopsy results came back negative with no evidence of celiac damage. I had a GI Dr, friend of my MOM'S, say go gluten free anyway. He said, if she thinks it's celiac, it quite possibly is.
Have you had the celiac blood test panel done? Sometimes the doctor can miss damage in the small intestine during a biopsy since the damage from gluten can be patchy.

Is there a good book or quick resource guide for gluten free living?
I think that Wheat-Free, Worry-Free: The Art of Happy, Healthy Gluten-Free Living by Danna Korn is a good book.

My symptoms come and go. I have read that isn't totally uncommon. That is what makes Celiac so difficult to diagnosis. Is that true?
Several months before my diagnosis some of my symptoms would come and go, but others were always there. However, closer to my diagnosis, I was sick almost all the time.
floridanative Community Regular

I agree with the idea that going on the gluten-free diet will either confirm Celiac or not, it will just take a while. My biopsy is in Jan. just so I can get through the holidays and a trade show trip without worrying about what I can eat. But since I really only have the anemia, my biopsy could surely come back negative - neither confirming or denying for certain the pressence of Celiac disease. Without going on the diet, there is no way to tell for sure. If I go gluten-free for six months and redo the tTg test is comes back in normal limits, I'll have my answer. I'd rather just get a positive biopsy so I'd know for sure soon as I'm tired of all this medical testing stuff already and I've only been at it for four months. Good luck to you and keep us posted on how the diet goes for you.

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    • trents
      Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
    • Connie Smitj
      I eat a gluten-free diet but hunger pains start within an hour of eating dinner. I  had h pylori infection before I was diagnosed. Occasionally I’ll have bouts of pain. Could it come back or is it just celiac disease?
    • trents
      Scott, am I missing something? For the TTG-IGA normal is anything 3 or less and his score less than 2. I think that one is in normal range. @Brown42186, if the GI doc is not interested in doing an endoscopy with biopsy of the small bowel lining based on the elevated TTG-IGG I would request a repeat on the bloodwork now that you have resumed gluten consumption again.
    • Joyes
      Interesting for sure. Have you heard of potential cross reactivity to casein (dairy), corn, milket, iats, rice, and yeast?
    • Brown42186
      Thanks for all the info! I'll see how my appointment next week goes. I think I'm going to push for having a blood test done again since I've been consistently eating gluten and go from there.
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