Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Psychosis Episode


Tina77

Recommended Posts

Tina77 Rookie

I wanted to know if anyone has had a kind of psychotic episode that last for a few minutes after being glutened? My symptoms are getting worse due to the fact that I feel the gluten is messing with my head. I recently got glutened and the next day as I was in the car as a passenger I wanted to jump out the car. It lasted maybe 5 mins but it was intense. Extremely scary. Can anyone relate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
54 minutes ago, Tina77 said:

I wanted to know if anyone has had a kind of psychotic episode that last for a few minutes after being glutened? My symptoms are getting worse due to the fact that I feel the gluten is messing with my head. I recently got glutened and the next day as I was in the car as a passenger I wanted to jump out the car. It lasted maybe 5 mins but it was intense. Extremely scary. Can anyone relate?

Have you been tested for celiac disease?  

Open Original Shared Link

Are you taking any medications that could cause a side effect like this?  I am sure that experience was frightening.  I hope you are able to figure it out.  

Ennis-TX Grand Master
4 hours ago, Tina77 said:

I wanted to know if anyone has had a kind of psychotic episode that last for a few minutes after being glutened? My symptoms are getting worse due to the fact that I feel the gluten is messing with my head. I recently got glutened and the next day as I was in the car as a passenger I wanted to jump out the car. It lasted maybe 5 mins but it was intense. Extremely scary. Can anyone relate?

Before diagnosis I used to get extreme brain fog with gluten, and my mind would loop, and not do things I wanted it to, thoughts would not move, I could not do something knowing I should be able to. This led to confusion and EXTREME bouts of anger out of the frustration sometimes punching walls or banging my head on the wall to make it work (attempt) Called it hyde mode, was scary as all hell when your own mind and body turn on you.

Gluten ataxia look it up was my symptom, it can be made worse with this disease if you are not absorbing enough B-vitamins, d, magnesium...look up the deficiency symptoms for these and see if it raises any flags.

Tina77 Rookie

Thank you for responding. That makes sense I have not been good on taking my vitamins lately. Did you feel wierd when you took magnesium? I have tried taking magnesium and it makes me feel a little wierd. 

Tina77 Rookie
6 hours ago, cyclinglady said:

Have you been tested for celiac disease?  

Open Original Shared Link

Are you taking any medications that could cause a side effect like this?  I am sure that experience was frightening.  I hope you are able to figure it out.  

Thank you for responding. I have and it came out negative but just the blood test. I have not done a biopsy. Its frustrating to find a doctor in Las Vegas that can understand but I am going to keep trying. I am not taking any medications at all. I know it has to do with at least being gluten intolerant. To be honest I haven't been really caring of cross contamination and maybe it has caught up with me. Thank you for the link.

2 hours ago, Ennis_TX said:

Before diagnosis I used to get extreme brain fog with gluten, and my mind would loop, and not do things I wanted it to, thoughts would not move, I could not do something knowing I should be able to. This led to confusion and EXTREME bouts of anger out of the frustration sometimes punching walls or banging my head on the wall to make it work (attempt) Called it hyde mode, was scary as all hell when your own mind and body turn on you.

Gluten ataxia look it up was my symptom, it can be made worse with this disease if you are not absorbing enough B-vitamins, d, magnesium...look up the deficiency symptoms for these and see if it raises any flags.

Thank you for responding. That makes sense I have not been good on taking my vitamins lately. Did you feel wierd when you took magnesium? I have tried taking magnesium and it makes me feel a little wierd. 

  • 2 weeks later...
Dwayne Rookie

   Hello,

I am Dwayne (celiac since 1957).

This happens in some celiac children because of bad (pathogenic) intestinal flora toxins. These pathogenic toxins are acquired sometime even before birth.

These pathogenic toxins can effect anywhere in the body, brain, liver, kidneys,lungs,etc, 

The pathogenic toxins must be eliminated and replaced with good biotics (probiotics) flora.

The toxins can go to the brain and affect the brain and can cause severe behavior problems even autism.                                                                                                                 d fisher

The Doctor Below Has all the information on the subject.                                                                                  

Dr. Natasha Cambell-Mcbride,  Cambridge England

Master Of Medical Science In Neurology 

Master Of Science In Human Nutrition

SUGGESTION :  Open Original Shared Link

KEYWORD : GAPS Gut And Psychology Syndrome

 

ch88 Collaborator

Are you sure that gluten caused the psychosis episode? A sudden psychotic episode can be caused by other medical problems so you should talk to a doctor about it.  There is also the Open Original Shared Link forum which is a good resource. It is possible for someone to develop schizophrenia at any time.

Gluten can cause panic attacks in some people and some people are more likely to have food sensitivities than other people. There is a link between digestive problems and anxiety or panic attacks. 

Autistic people are more likely to have digestive problems than normal.  Some people think that autistic people would do better on a wheat free diet. This has been tested though and they didn't find any improvement in general.  Also a study that I read found no statistically significant  correlation between celiac disease and autism. There are definitely exceptions though to this rule.

However, people with schizophrenia are much much more likely to be celiac than people without it. Other food sensitivities or allergies are strongly linked to schizophrenia. The ones that I have read about are corn, dairy, soy, sugar, caffeine and gluten. Another diet that removes all questionable ingredients is the AIP diet. 

There is medication that is available to treat different types of anxiety disorders.  I recommend talking to a doctor about your episode. 

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Posterboy Mentor

Tina77,

Where you by chance also taking Miralax? also known as Polyethylene Glycol.

This laxative can have terrible side effects one of them psychotic episodes.

Oneloved recently mentioned how her child was having a reaction to Miralax and why I mentioned it.

Psychotic episodes (especially rage) are more common in children but if it does that to children who knows what it does in adults.

Here is a FDA adverse event report on it.

Open Original Shared Link

but they (FDA) say " as they often do "no action is necessary" as they often do until someone dies.

Polyethylene Glycol (PEG) 3350 over-the-counter oral laxative
(Miralax)

Neuropsychiatric events

FDA decided that no action is necessary at this time based on available information.

***this is not medical advise but I hope this is helpful.

To answer you original question psychosis is common in celiac's.

Open Original Shared Link

But it is unclear if it the celiac disease specifically or associated Vitamin deficiency that occur  when someone develop's celiac disease.

see this research as first posted by knitty kitty that indicates OCD can be an early sign of a B12 deficiency entitled "Obsessive Compulsive Disorder as Early Manifestation of B12 Deficiency"

Open Original Shared Link

And B-12 and your B-complex in general are often low in Celiac's.

Again I hope this is  helpful. . . but this is not medical advice just some other places to look to see if they are also contributing to your pyschosis like the helpful link ch88 provided.  Along with gluten.

posterboy, (sorry for the hanging chad) I couldn't delete it.

   
ch88 Collaborator

A few other things that may be helpful include:

  • Stress reduction techniques. There are some websites that offer helpful advice on the topic.
  • Eating more fish as it is high in omega-3 fatty acids. 
  • Glutamine powder (food for the gut)
  • Eating lots of fruit and vegetables. Grapefruit, for example, has lots of inositol which may improve cognitive function. Fruit and veggies are high in flavinoids which are beneficial. 
  • 3 weeks later...
Tina77 Rookie
On 6/9/2018 at 7:51 AM, ch88 said:

Are you sure that gluten caused the psychosis episode? A sudden psychotic episode can be caused by other medical problems so you should talk to a doctor about it.  There is also the Open Original Shared Link forum which is a good resource. It is possible for someone to develop schizophrenia at any time.

Gluten can cause panic attacks in some people and some people are more likely to have food sensitivities than other people. There is a link between digestive problems and anxiety or panic attacks. 

Autistic people are more likely to have digestive problems than normal.  Some people think that autistic people would do better on a wheat free diet. This has been tested though and they didn't find any improvement in general.  Also a study that I read found no statistically significant  correlation between celiac disease and autism. There are definitely exceptions though to this rule.

However, people with schizophrenia are much much more likely to be celiac than people without it. Other food sensitivities or allergies are strongly linked to schizophrenia. The ones that I have read about are corn, dairy, soy, sugar, caffeine and gluten. Another diet that removes all questionable ingredients is the AIP diet. 

There is medication that is available to treat different types of anxiety disorders.  I recommend talking to a doctor about your episode. 

Open Original Shared Link

Thank you for your response. I feel more like maybe I need to see a doc. I never knew this. 

Tina77 Rookie

UPDATE:

First, I would like to thank everyone that took the time to respond. It means so much. I feel so alone in this especially because no one around me understands. I realized my gluten intolerance at age 33 so it's been 2 yrs. It's been really hard for me to adjust. I am so thankful to God for this forum.

It's been a couple of weeks since my psychotic episode and I feel way better. I have been trying really hard not to eat anything contaminated with gluten. Especially when eating out. I have been taking vitamin B complex and fish oil every day. I have not had another psychotic episode. Thank God! My anxiety and brain fog have diminished more and more each day. I really do believe  that it was the gluten messing with my neurological system. I feel like it was being exposed to a lot of gluten that led to that episode. During that time I had been exposed to a lot of gluten. Accidently of course. ?I will take everyone's advice to heart. Thank you again. Much Love Tina:)

GFinDC Veteran

Hi Tina,

It's great that you are feeling better! :)

Gluten ataxia could be the cause of your symptoms.  Gluten ataxia is when the immune system affects the brain after eating gluten.  It can even make white spots appear on the brain during an MRI.  Anyway, it's important to stay well away from gluten if you have gluten ataxia.  Eating out in restaurants would be a bad idea IMHO.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
    • Scott Adams
      Since nearly 40% of the population have the genes for celiac disease, but only ~1% end up getting it, a genetic test will only tell you that it is possible that you could one day get celiac disease, it would not be able to tell whether you currently have it or not.
    • KDeL
      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
×
×
  • Create New...