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Restaurant Owners Don't Believe Gluten Allergy/Celiac is Real

Skeeball

By Skeeball
in Gluten-Free Restaurants

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Skeeball Newbie
Skeeball
Posted

Hello, everyone! I currently work at a small restaurant where I make sandwiches. We have griddles where we toast all breads and I was told to toast our gluten-free bread on the same griddle and place them on the same racks as the other breads to go through the oven. I mentioned how harmful this could be for someone with a serious gluten intolerance and we started taking extra precautions to keep this from happening. HOWEVER, two of the store owners said that this was "BS", that "most people are lying about being gluten-intolerant" and they are going out of their way to "talk to me" about this issue. How can I show them that this is a REAL issue that could eventually lead to SERIOUS pain for people with genuine afflictions? Any case studies, articles from reputable sources, or personal testimonies on cross-contamination and what it does are greatly appreciated. Thanks!

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GFinDC Veteran
GFinDC
Posted

The FDA has issued rules on the labeling of foods as gluten-free.  The standard is less than 20 PPM of gluten.  The FDA set that level because their studies showed most people with celiac do not react to foods with that level of gluten.  Some do react though.

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  1. Does the final rule apply to gluten-free claims made for foods served in restaurants, including cafeterias and buffets? 
    The gluten-free final rule applies to packaged foods, which may be sold in some retail and food-service establishments such as some carry-out restaurants. However, given the public health significance of “gluten-free” labeling, FDA says that restaurants making a gluten-free claim on their menus should be consistent with FDA’s definition.
  2.  
tracihollis Newbie
tracihollis
Posted

I appreciate you taking a stand on being safer in the kitchen.   I have celiac and it seems almost every time we eat out I have a reaction no matter how many questions we ask or how specific we are.  symptoms vary from severe migraines to joint pain that could be equivilent to being hit by a truck not to mention brain fog, vertigo, vomiting, and not being able to go #2 for 5 to 7 days from the inflammation.   needless to say when we go out to eat I suffer panic attacks and anxiety.   Gluten intolerance is not just a myth it's a nightmare!

 

cyclinglady Grand Master
cyclinglady
Posted

Maybe your restaurant owners might consider this model for their sandwich shop.  It would be a win-win for everyone.  An increased bottom line for the restaurant and another safe place to eat for celiacs.  

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We eat there!  So nice to order and see that your food is assembled safely!  

hookedongolf Newbie
hookedongolf
Posted

Many restaurant owners want to believe that because it is simply a hassle for them to comply with the requirements for separate areas and utensils.  They must know that we are the very last to want to do that!

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      Need Advice on Doctors

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      Welcome to the forum, @Jason Hi! First, we need to deal with some squishy terminology. There are two terms which are, unfortunately, used interchangeably and indiscriminately to refer to two different gluten-related disorders. The two terms are "gluten sensitive" and "gluten intolerant". Because these terms are used carelessly we are not certain what you mean when you say your doctor told you that your are likely "gluten sensitive". The actual medical terms for these two gluten disorders are: "celiac disease" and "Non Celiac Gluten Sensitivity" or NCGS for short. The test you had run by the GI doc are intended to check for celiac disease. There is no test for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out.  Because these terms are used by many people interchangeably I'm not sure that your doctor, after running the tests, was intending for you to understand that he believes you have celiac disease or NCGS. So, to clear up the confusion, can you post the results of your blood test, not just the test scores but the reference ranges used by the lab analyzing the blood sample to determine negative/positive or normal/high? The difference between celiac disease and NCGS is that celiac disease damages the lining of the small bowel over time whereas NCGS does not. However, they may share many of the same gastro intestinal symptoms. Both need to be addressed with a gluten free diet but the tax breaks and work place accommodations you speak of would likely only accrue from an official celiac disease diagnosis. So, can you post the blood test results along with the reference ranges and also the endoscopy report. We can help you decipher whether or not the doc was suggesting you may have celiac disease or NCGS if you will do that.
    • Jason Hi
      Need Advice on Doctors

      By Jason Hi · Posted

      I recently had an upper gastrointestinal endoscopy and blood tests, and my gastroenterologist concluded that I’m “likely gluten sensitive.” However, they wouldn’t provide a prescription or a formal doctor’s note—just a test result saying I’m likely gluten sensitive, along with the advice to avoid gluten. I’m frustrated because I know that proper documentation could help with tax breaks for gluten-free foods and even workplace accommodations. I’m also not willing to go through another gluten challenge—it was rough! Does anyone have recommendations for a doctor (U.S. based preferably Texas) who is more understanding and willing to provide the necessary documentation for gluten sensitivity? I’d really appreciate any suggestions!
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      By ALBANICKAP · Posted

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    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
    • Celiacandme
      Waiting on Blood test results…

      By Celiacandme · Posted

      Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
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