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Dapsone reaction

Freephilly

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Freephilly Newbie
Freephilly
Posted

Has anyone here ever had a bad experience with Dapsone?  I think I am either allergic to it or at least having a sensitivity to it as my rash has gotten even worse just 2 days into taking it.  

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kareng Grand Master
kareng
Posted
  On 6/5/2018 at 2:24 AM, Freephilly said:

Has anyone here ever had a bad experience with Dapsone?  I think I am either allergic to it or at least having a sensitivity to it as my rash has gotten even worse just 2 days into taking it.  

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Are you eating completely gluten free?  I am not sure how many days it takes to start working.  Maybe that is a good question for your doctor?

knitty kitty Grand Master
knitty kitty
Posted
  On 6/5/2018 at 2:24 AM, Freephilly said:

Has anyone here ever had a bad experience with Dapsone?  I think I am either allergic to it or at least having a sensitivity to it as my rash has gotten even worse just 2 days into taking it.  

Expand Quote  

Foods high in iodine can make DH rash flare.  Avoid shellfish, idolized salt and dairy products.  

Dapsone contains sulfur.  Some Celiacs develop a sensitivity to Sulfites and other forms of sulfur.  Here's an article that explains it.

http://www.thepatientceliac.com/tag/celiac-disease-and-sulfite-intolerance/

I have a hypersensitivity to sulfur containing compounds and can't use Dapsone or other sulfa medications.   I need to avoid gluten, shellfish, idolized salt, seaweed, and dairy.  

DH is sometimes associated with vitamin B12, iron, or folate deficiencies.  Some Celiacs have a MTHFR gene mutation and require the methylated form of B12 and methylfolate.

Hope this helps.

 

squirmingitch Veteran
squirmingitch
Posted

One of the side effects of Dapsone is a skin rash. See:

Open Original Shared Link

 

Numerous people with dh who have taken Dapsone have had unacceptable side effects from taking Dapsone & some of those were rash. 

  • 2 weeks later...
Susan Cameron Newbie
Susan Cameron
Posted
  On 6/6/2018 at 2:29 PM, squirmingitch said:

One of the side effects of Dapsone is a skin rash. See:

Open Original Shared Link

 

Numerous people with dh who have taken Dapsone have had unacceptable side effects from taking Dapsone & some of those were rash. 

Expand Quote  

I have been using Jamaiican Black Castor Oil on my DH. It stops the itching and burning instantly and is starting to clear up.  I will not take Dapsone. 

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