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Anyone diagnosed with UC/Indeterminate Colitis have it go into remission with gluten-free diet?

Carolina

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Carolina Contributor
Carolina
Posted

Curious to learn more about those diagnosed with Ulcerative Colitis/Indeterminate Colits that are also Celiac. Was the gluten-free diet enough to keep colon inflammation at bay? I know microscopic colitis is fairly common with Celiac, but I am more curious about those that presented with more severe UC/IC cases during colonoscopy. Thanks for any insight! 

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cyclinglady Grand Master
cyclinglady
Posted

Have you seen this small study out of UC San Diego using the AIP diet (which is gluten free).   They had an amazing remission rate (over 70%).  Patients remained on their medications (except 1), so it was not all diet.  It is definitely worth trying.  Just avoiding non-processed foods alone has got to be healthier!  

Open Original Shared Link

Easier to read summation of the study:

Open Original Shared Link

I hope this helps!  

Carolina Contributor
Carolina
Posted
  • Author

Thanks! I am trying to find evidence that my daughter was in fact misdiagnosed and that all of her colon inflammation is a result of the Celiac. The wait is torture! 

Ennis-TX Grand Master
Ennis-TX
Posted

My celiac led to ulcerative colitis......mine also flares to dairy, soy, gluten, and the rare triggers of fructose and glucose.
I had to adapt a paleo/keto diet bit closer to a atkins diet to keep it under control and watch out for spices. And some other things.

I posted on some treatments I use.....my RX got to expensive without insurnace and I had to build up a safe diet and alternative treatment. https://www.celiac.com/forums/topic/120672-ulcerative-colitis-treatments/?tab=comments#comment-988035

 

  • 3 weeks later...
Carolina Contributor
Carolina
Posted
  • Author

Well my daughter just finished up her 1 month of weaning from Lialda and will go med-free. She will do a fecal calprotectin this week to check inflammation levels and then again in a month off all meds. I am praying it was the untreated Celiac (asymptomatic) that caused the colon inflammation versus another disease on top. I wish I could find more people that presented this way, I have researched relentlessly. We are holding out hope her 3rd opinion GI is correct and that all her symptoms can be explained from the Celiac only and that she does not have Celiac and IBD.

  • 2 weeks later...
Lifelong Celiac Newbie
Lifelong Celiac
Posted

I am a Celiac and have been on a strict gluten-free diet for seven years and after recent stomach pains sent me to the hospital over a weekend went and saw my GI. Had colonoscopy and endoscopy done and am now diagnosed with Ulcerative Colitis as well. While each individual is different and our bodies all react differently despite our common diagnosis', gluten free diet did not help me with colitis flare ups at all. Hope and pray the best for you and your daughter.

Ennis-TX Grand Master
Ennis-TX
Posted
17 minutes ago, Lifelong Celiac said:

I am a Celiac and have been on a strict gluten-free diet for seven years and after recent stomach pains sent me to the hospital over a weekend went and saw my GI. Had colonoscopy and endoscopy done and am now diagnosed with Ulcerative Colitis as well. While each individual is different and our bodies all react differently despite our common diagnosis', gluten free diet did not help me with colitis flare ups at all. Hope and pray the best for you and your daughter.

Ditto I had to remove carbs, sugars, fruits, grains, some spices, and a few other things, then take a herbal regime to get it to stay in remission. We all have different triggers and took me awhile to find mine...luckily most were avoided for other health reasons already, or I had noticed that caused me issues and were in moderation prior so cold turkey was not a HUGE thing.

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