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Help Toddler, weak positive lab help


Bproctor88

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Bproctor88 Newbie

My child’s doctor is dragging her feet. A little history. My father, and Brother both have Celiac Disease I have the genetic markers. My son is 3 years old, ever since he was 1 he’s had severe Ezcema, hes always constapated, his stools smell sweet but so bad it’s a weird gross sweet, and he’s small as well. They tested him for celiacs, and the doctor said she doesn’t believe his results point it this.

Heres his results

Ab IgA result  3

< 0 Neg 0-19 weak positive 20-30 moderate positive >30 strong positive 

Ab IgG result 4

< 0 Neg 0-19 weak positive 20-30 moderate positive >30 strong positive 

Tissue trans Ab IgA result <2 

<0 negative 0-3weak positive 4-10 positive >10 strong positive 

tissue Trans Ab IgG result <2

<0 negative 0-5 weak positive 6-9 positive >strong positive 

 IgA results 52 lower than normal ref range 70-400

IgE results 21.2 higher than normal ref range 0-15

Creatinine <0.3 Lower than normal ref range o.66-1.25

Urea nitrogen <3 lower than normal ref range 9-20

Glucose <73 lower than normal ref range 75-110

what do you guys think? Should I fight for more testing?


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cyclinglady Grand Master

Yes, your doctor is right.  Your child had a negative on the TTG, but  Celiac disease researchers have found that small children may not develop antibodies to the TTG.  The DGP tests are better at catching celiac disease.  Here is one link.  Goggle for more and share with your doctor.  

Open Original Shared Link

I am “elderly” (at least according to studies).  This can apply to elderly patients (I guess over 50 is elderly).  I have never had a positive on the TTG, even in follow-up testing.  

Your child, like mine, should always be screened  using the entire celiac disease panel every two to three years regardless of symptoms.  

Get a new doctor who is more celiac-savvy if this current PED is not willing to order the complete test.  Keep him on gluten though!  

 

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    • trents
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    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
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