Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heat Sensetivity

SheenaM

By SheenaM
in Related Issues & Disorders

Recommended Posts

SheenaM Apprentice
SheenaM
Posted

I have an abominable sensetivity to heat that makes it nearly impossible to do things in the summer. I'm writing this with one eye closed right now because of a migraine I've had since Monday when I was at a local theme park. I did everything I could to keep cool and hydrated, but apparently failed, resulting in this migraine that I've had since then. My question for you folks is, does anyone else get this sort of symptom, and were you able to do anything for it? I'm still very anemic after 6 months on the gluten free diet and I'm wondering if that is related? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

It seems like I read that thyroid issues can cause heat sensitivity.

cyclinglady Grand Master
cyclinglady
Posted

Hyperthyroid can cause you to feel hot all the time even in winter.  Being actually sensitive to heat, like it causes severe fatigue, sounds like my MIL who had multiple sclerosis.  There might be other illnesses, but that is one to check out.  But migraines (only had two in my life), might cause you to be heat sensitive.  

I was anemic, but I was fatigued all the time. It had nothing to do with the weather.   It took me just a few months to build up iron stores  using a supplement and consuming iron-rich foods.    Are you iron or B-12 deficient (both are common in celiac disease)?

Make sure you are getting follow-testing for celiac disease:

Open Original Shared Link

 

SheenaM Apprentice
SheenaM
Posted
  • Author

They didn't test blood levels of anything besides the antibodies when they did blood tests. I only know I'm anemic because of the fatigue and the purple fingernail beds. I'm definitely not hyperthyroid as I have more trouble losing weight than gaining.

cyclinglady Grand Master
cyclinglady
Posted

When was your last lab test to check your anemia (CBC is a good starting point).   Those should  be re-checked after six months, along with follow-up celiac testing that I mentioned previously.  Lab results can let you know where you stand. 

 

Maverita Rookie
Maverita
Posted

I am not saying it is not the heat, but ozone could be a contributing factor.  Where I live, hot sunny days often come with high ground ozone levels.  High ground ozone can cause migraines.  I am pretty much guaranteed a migraine when ozone levels get too high, and it can take a couple of days to get rid of it.  

Bree J Apprentice
Bree J
Posted

I can sort of relate, when I'm not properly nourished (I'm very sensitive to that-- have to have the correct amount of protein and veggies/fruit with any sugar or dairy just to feel good), heat bothers me a LOT. Makes my anxiety bad too (i hate being hot). I've been gluten free for 4 years (when my intolerance showed up) and ever since then go crazy when I'm too hot. Weird that someone else feels this way.

I've never ever thought about checking if I'm anemic. My sores/cuts do take forever to heal..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SheenaM Apprentice
SheenaM
Posted
  • Author
On 6/11/2018 at 3:00 PM, Bree J said:

I can sort of relate, when I'm not properly nourished (I'm very sensitive to that-- have to have the correct amount of protein and veggies/fruit with any sugar or dairy just to feel good), heat bothers me a LOT. Makes my anxiety bad too (i hate being hot). I've been gluten free for 4 years (when my intolerance showed up) and ever since then go crazy when I'm too hot. Weird that someone else feels this way.

I've never ever thought about checking if I'm anemic. My sores/cuts do take forever to heal..

Yes exactly this. And if I'm out in the heat I get way more exhausted than I should. Like my body just can't process it correctly.

 

On 6/10/2018 at 8:06 PM, cyclinglady said:

When was your last lab test to check your anemia (CBC is a good starting point).   Those should  be re-checked after six months, along with follow-up celiac testing that I mentioned previously.  Lab results can let you know where you stand. 

 

They never tested anything other than the antibodies that cause the intestinal damage, and that was in January. 

cyclinglady Grand Master
cyclinglady
Posted

@SheenaM  What?  How were you diagnosed with anemia?  It is a standard blood test given to most when they see their doctors.  Maybe you did not get copies of the lab results.  You should ask for them.  It is your right!  

Anemia is very serious.  You could have a heart attack.  You might need a blood transfusion.  Please follow-up with your doctor.  You also need to know what type of anemia you have so your doctor can treat you accordingly.   Ask also for a complete thyroid panel as autoimmune thyroiditis is commonly associated with celiac disease.  Were you able to get an endoscopy?  You can have other autoimmune disorders that can destroy your small intestinal intestine.  Those should be ruled out.  Get your antibodies for celiac disease re-checked.  They will help determine if your are adhering to the gluten free diet or are at least improving.  It can take time for antibodies to come down, but they should be on a downward trend.  

RMJ Mentor
RMJ
Posted
On 6/10/2018 at 3:19 PM, SheenaM said:

 I only know I'm anemic because of the fatigue and the purple fingernail beds. I'm definitely not hyperthyroid as I have more trouble losing weight than gaining.

Purple fingernail beds and fatigue can have other causes besides anemia.  You may want to get checked out by a doctor to see if you truly have anemia or if something else is going on.

hookedongolf Newbie
hookedongolf
Posted

I am being tested for Celiac tomorrow, and feel that I have sjogenes but has not been proven as of yet.  I have had heat problems for years and have many of symptoms of sjogenes, thus putting myself on a gluten and dairy free diet while I wait months for Doctors to figure it out. I was tested last week for daily intolerance and I passed, yea, can now put weight back on.  As of the heat sensitivity, I have had it for as long as I can remember.  I gave up tennis and took up golf and drink Gatorade for 18 holes which I understand is good for the auto-immune. 

cyclinglady Grand Master
cyclinglady
Posted
42 minutes ago, hookedongolf said:

I am being tested for Celiac tomorrow, and feel that I have sjogenes but has not been proven as of yet.  I have had heat problems for years and have many of symptoms of sjogenes, thus putting myself on a gluten and dairy free diet while I wait months for Doctors to figure it out. I was tested last week for daily intolerance and I passed, yea, can now put weight back on.  As of the heat sensitivity, I have had it for as long as I can remember.  I gave up tennis and took up golf and drink Gatorade for 18 holes which I understand is good for the auto-immune. 

I am not sure I understood.  Are you already gluten free?  All celiac testing requires you to be on a gluten diet or the tests will be invalid. 

SheenaM Apprentice
SheenaM
Posted
  • Author
On 6/13/2018 at 8:13 AM, cyclinglady said:

@SheenaM  What?  How were you diagnosed with anemia?  It is a standard blood test given to most when they see their doctors.  Maybe you did not get copies of the lab results.  You should ask for them.  It is your right!  

So I went back and looked and they did do a blood panel and my RBC count is within normal limits. Also, I didn't test positive for both celiac antibodies just the Tissue Transglutaminase Ab, IgA. I lost health insurance due to a job change but I'm getting it back again at the beginning of July so I'll be able to do my follow up then. I guess I need to tell them that I also have the heat sensetivity and ask about thyroid stuff? Also should I ask my gastro about this or my family doc? 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. fritz2
      - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

      So what relieves the joint pain?
    2. trents
      - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient...
    3. Nikki03
      - Nikki03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help? my labs results read as follows immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range. Thanks...
    4. trents
      - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease...
    5. fritz2
      - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

      Well, as much pain as gluten has caused in the past, there's no way in hell I'm taking gluten on purpose. What is NCGS? And are there any remedies to quickly get over the swollen joints? My joints are swollen and hot to the touch and hurt. For about two weeks they were too painful to even think about using them. Six weeks later, I still can barely...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,769
    • Most Online (within 30 mins)
      7,748
    S4M
    Newest Member
    S4M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • fritz2
      Question

      By fritz2 · Posted

      So what relieves the joint pain?
    • trents
      Confused about test results.

      By trents · Posted

      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw test scores without reference ranges are not necessarily helpful as different labs used different reference ranges. Here is an article that describes the various antibody tests that can be ordered when checking for celiac disease: As you can see, there are IGA tests and there are IGG tests. What are your symptoms? There is another gluten disorder known as Non Celiac Gluten Sensitivity (NCGS) that shares many GI symptoms with celiac disease and is 10x more common than celiac disease. There are no tests for NCGS so celiac disease must first be ruled out by formal testing.
    • Nikki03
      Confused about test results.

      By Nikki03 · Posted

      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      Question

      By trents · Posted

      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200 symptoms on a growing list. And many of them present as non-GI related.
    • fritz2
      Question

      By fritz2 · Posted

      Well, as much pain as gluten has caused in the past, there's no way in hell I'm taking gluten on purpose.  What is NCGS?  And are there any remedies to quickly get over the swollen joints? My joints are swollen and hot to the touch and hurt.  For about two weeks they were too painful to even think about using them.  Six weeks later, I still can barely use my hands.  I struggle to get a bottle cap unscrewed they hurt so badly.  Edema in my legs and the knees hurt to walk.  And that was probably a minor exposure as the wheat was listed towards the end of the "contains" list in very fine print we couldn't read without a magnifying glass.
×
×
  • Create New...