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My Gluten Challenge

pdm1981

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pdm1981 Collaborator
pdm1981
Posted

In my last post I told the story about how I had almost every possible test done and there was no sign of Celaic Disease that they could find. In fact, my diagnosis stems from a single blood test taken over six years ago. One test. I told this story in which some people said that I should ignore my new results and get new doctors and that they must be wrong. Well I've been eating gluten for a week today and haven't had any of the symptoms so far. When I say "eating gluten", that means eating sandwiches made from 4 Hawaiian Rolls. They taste great. All I've been taking is a probotic called Florastor. Now to be clear, I'm not saying that this is a cure for Celiac Disease. If you were properly diagnosed with celiac disease, taking this will not make you able to eat gluten. If you have celiac disease you need to avoid gluten at all costs. This means that I may have been misdiagnosed. All this time I thought I was being "glutened" might have been something else. I go for the breath test on the 15th and see the doctor on the 29th. We'll see how this goes but so far there is nothing to say as far as celiac disease goes. I know there a people that are going to jump right on this and think this is foolish to believe these doctors and I should stay on a gluten-free diet but I would be foolish to not want to definitely check all the boxes and find out for sure. I'm not changing doctors. I'm seeing it through to the end. Plus, the food is sooooo much better on this challenge than not doing it at all. I'll post all the results as they come in but here's what I got so far:

I have 1 blood test that says I have celiac disease taken over 6 years ago

I had a scope done 6 years ago in which they did no biopsy and things appeared normal

I have the genes for celiac disease which means I can potentially develope it in my lifetime

This year, I have had biopsies, blood, s$#&, scopes on each end, and soon to have a breath test, and so far, NO SIGNS OF CELIAC DISEASE. ( also I'm doing the gluten challenge with no diarrhea, vomitting, etc.,)  

So what are your thoughts?

 

 

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kareng Grand Master
kareng
Posted
2 minutes ago, pdm1981 said:

In my last post I told the story about how I had almost every possible test done and there was no sign of Celaic Disease that they could find. In fact, my diagnosis stems from a single blood test taken over six years ago. One test. I told this story in which some people said that I should ignore my new results and get new doctors and that they must be wrong. Well I've been eating gluten for a week today and haven't had any of the symptoms so far. When I say "eating gluten", that means eating sandwiches made from 4 Hawaiian Rolls. They taste great. All I've been taking is a probotic called Florastor. Now to be clear, I'm not saying that this is a cure for Celiac Disease. If you were properly diagnosed with celiac disease, taking this will not make you able to eat gluten. If you have celiac disease you need to avoid gluten at all costs. This means that I may have been misdiagnosed. All this time I thought I was being "glutened" might have been something else. I go for the breath test on the 15th and see the doctor on the 29th. We'll see how this goes but so far there is nothing to say as far as celiac disease goes. I know there a people that are going to jump right on this and think this is foolish to believe these doctors and I should stay on a gluten-free diet but I would be foolish to not want to definitely check all the boxes and find out for sure. I'm not changing doctors. I'm seeing it through to the end. Plus, the food is sooooo much better on this challenge than not doing it at all. I'll post all the results as they come in but here's what I got so far:

I have 1 blood test that says I have celiac disease taken over 6 years ago

I had a scope done 6 years ago in which they did no biopsy and things appeared normal

I have the genes for celiac disease which means I can potentially develope it in my lifetime

This year, I have had biopsies, blood, s$#&, scopes on each end, and soon to have a breath test, and so far, NO SIGNS OF CELIAC DISEASE. ( also I'm doing the gluten challenge with no diarrhea, vomitting, etc.,)  

So what are your thoughts?

 

 

Any Celiac blood or biopsies taken while you have been gluten-free for six years should be negative.  You may not have Celiac, but those tests don’t mean that you don’t have Celiac.  After you eat gluten for a few months, you could test again if you want.  

pdm1981 Collaborator
pdm1981
Posted
  • Author

Turns out the reason a biopsy wasn't taken the 1st scope 6 years ago is that everything looked normal. I'm still moving along with this gluten challenge and so far nothing has changed. The symptoms of these "flare ups" are still the same whether gluten is there or not. I actually improved slightly with the probotics (Florastor). The gas didn't go away but there wasn't nearly as much and I'm actually sleeping better. I had to stop it today because it's 1 week before the breath test. I have 1 gluten containing meal a day and I don't worry about CC anymore til this is over. Things that irritate my gut are pasta sauce and onions. Onions really kick my ass. Also things with a lot of garlic. Tomorrow I might just have a couple slices of real pizza. If not a restaurant then a kroger's 3 minute pizza.

What would you eat on this challenge?

10 hours ago, kareng said:

Any Celiac blood or biopsies taken while you have been gluten-free for six years should be negative.  You may not have Celiac, but those tests don’t mean that you don’t have Celiac.  After you eat gluten for a few months, you could test again if you want.  

 

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