Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Highest Levels of IGA-TTG tests

sanjlika

Recommended Posts

sanjlika Newbie
sanjlika
Posted

I recently took a blood test and went over the results with my family doctor who has confirmed me having the celiac disease as my levels were 1500 whereas the normal level should be 7 or less and so are extremely high, I believe he was talking about my IGA-TTG levels I am not sure of the same as I did not write it down as I was in a kind of shock. I think he was talking about IGA-TTG but I'm not sure. He has referred me to a GI but unfortunately I have to wait 9 months for the first available appointment. He has asked me to stop Gluten and I am sure feeling better since I have stopped with very less abdominal cramps and less bloatedness, but as a newbie I am making mistakes and getting glutened  once in a while with now more severe reactions than before I stopped eating gluten.

For people who have done this test what were your high levels ?

Thanks In Advance.

Sanjeev

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MichelleSC Newbie
MichelleSC
Posted

Omg you poor thing! Mine were also super high, but they only specified that it was over 100. So I don’t know how high mine was, but I had the same symptoms of pain and bloating. Don’t worry, it gets A LOT easier with time. Something that can help, is a medication called Dicyclomine, which is basically a muscle relaxer for your intestines. If I take it within 10-20 of accidentally eating gluten, I don’t get all the bad symptoms. It’s technically for IBS, but it helps when I accidentally get “glutened.” Worth asking your dr about! 

I hope you start to feel better soon! And good luck! There are lots of good groups on Facebook and Twitter, with lots of resources and recipes for great gluten-free food. I personally loved GlutenFreeOnAShoestring.com for recipes, and found the BEST gluten-free flour ever there. Called Better Batter All Pourpose gluten-free Flour. I get big boxes on Amazon for cheap. It can be used in a 1:1 ratio for regular flour, for any recipe! Others can have weird ratios, that can make cooking and baking hard. But this stuff has been tested HARD by my family, and nobody can tell a difference! 

sanjlika Newbie
sanjlika
Posted
  • Author

Thanks Michelle for the info, appreciate the revert.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,966
    • Most Online (within 30 mins)
      7,748
    Deema99
    Newest Member
    Deema99
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jy11
      Conflicting results

      By Jy11 · Posted

      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      Increasing symptoms after going gluten free

      By Pasballard · Posted

      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Colonoscopy with large area of inflammation

      By growlinhard1 · Posted

      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
×
×
  • Create New...