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Highest Levels of IGA-TTG tests

sanjlika

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sanjlika Newbie
sanjlika
Posted

I recently took a blood test and went over the results with my family doctor who has confirmed me having the celiac disease as my levels were 1500 whereas the normal level should be 7 or less and so are extremely high, I believe he was talking about my IGA-TTG levels I am not sure of the same as I did not write it down as I was in a kind of shock. I think he was talking about IGA-TTG but I'm not sure. He has referred me to a GI but unfortunately I have to wait 9 months for the first available appointment. He has asked me to stop Gluten and I am sure feeling better since I have stopped with very less abdominal cramps and less bloatedness, but as a newbie I am making mistakes and getting glutened  once in a while with now more severe reactions than before I stopped eating gluten.

For people who have done this test what were your high levels ?

Thanks In Advance.

Sanjeev

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MichelleSC Newbie
MichelleSC
Posted

Omg you poor thing! Mine were also super high, but they only specified that it was over 100. So I don’t know how high mine was, but I had the same symptoms of pain and bloating. Don’t worry, it gets A LOT easier with time. Something that can help, is a medication called Dicyclomine, which is basically a muscle relaxer for your intestines. If I take it within 10-20 of accidentally eating gluten, I don’t get all the bad symptoms. It’s technically for IBS, but it helps when I accidentally get “glutened.” Worth asking your dr about! 

I hope you start to feel better soon! And good luck! There are lots of good groups on Facebook and Twitter, with lots of resources and recipes for great gluten-free food. I personally loved GlutenFreeOnAShoestring.com for recipes, and found the BEST gluten-free flour ever there. Called Better Batter All Pourpose gluten-free Flour. I get big boxes on Amazon for cheap. It can be used in a 1:1 ratio for regular flour, for any recipe! Others can have weird ratios, that can make cooking and baking hard. But this stuff has been tested HARD by my family, and nobody can tell a difference! 

sanjlika Newbie
sanjlika
Posted
  • Author

Thanks Michelle for the info, appreciate the revert.

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    • Ann13
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      By Ann13 · Posted

      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
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      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
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      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
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      By trents · Posted

      Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers. 
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