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celieacresearch

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celieacresearch Newbie

 

Do you or someone you know have Celiac Disease?

Do you or someone you know have a Gluten Intolerance or Sensitivity?

We Want to Hear Your Story!

We are two cultural anthropology students from Linfield College conducting research on Celiac disease and how it affects the lives of those who have it. Cultural anthropologists aim to learn about human lives within their society and how different variables affect them. Celiac disease is one of those variables. Your story is what we’re looking for and everyone has something to tell. If you are interested in participating, email Rose or Carmen at celiacresearch24@gmail.com or reply to this post for more details or to set up an interview time and date.


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    • trents
      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Thanks,Scott. Yes, I had already seen those 
    • Scott Adams
      Unless your blood antibody levels are 10x the celiac disease positive level they usually do an endoscopy to confirm the diagnosis.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • growlinhard1
      I haven't had any of this blood work and my GI doctor immediately scheduled the endoscopy with biopsy based on the large area of inflammation found during my colonoscopy and me relating all the other symptoms I'm experiencing. If the blood testing is positive do you still have to have the endoscopy with a positive biopsy to be definitively diagnosed with celiac? Seems like a waste of money and risk to do it backwards 😕 
    • Scott Adams
      Many super sensitive celiacs do have issues with this, especially if they work in a bakery or area where flour may be in the air. Some even seem to have issues being in areas where bread is being baked. Here are some threads here on this:    
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