Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Which Test?


chrismikayla

Recommended Posts

chrismikayla Rookie

Good morning everyone. I’m brand new to the Forum and strongly suspect I have at the very least a gluten intolerance. I’ve had general fatigue, sinus issues and post nasal drip, severe reflux, and skin rashes. I initially thought it was a lactose or milk allergy as I was a serial “cereal” eater haha. I cut out all milk but my symptoms haven’t improved but I still eat bread, fried foods almost daily. I now believe it wasn’t the milk causing my issues but the gluten in the cereal itself. Would either the basic wheat allergy test or the gluten ige test help me with a diagnosis? Or is it best to eliminate gluten for a while to see if it helps? Thanks and I look forward to learning from all the posters here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi,

The testing for celiac disease is a two part-er.  They do a blood test for DGP (deamidated gliaden protein) antibodies in IgA or IgG form.  Also an EMA IgA antibodies and total serum IgA.  Then if there is a positive on any one of the different types of antibodies, an endoscopy is performed.  During the endoscopy they take 4 to 6 small biopsy samples of the small intestine lining.  These are checked under a microscope for celiac type damage.

An IgE test is an allergy test and does not tell anything about celiac disease, which is IgA or IgG.  You need to stay on gluten until all celiac testing is completed.  Or we will tell your mom! :)  No, seriously, if you don't stay on gluten the test results won't be accurate.

Welcome to the forum! :)

chrismikayla Rookie
5 hours ago, GFinDC said:

Hi,

The testing for celiac disease is a two part-er.  They do a blood test for DGP (deamidated gliaden protein) antibodies in IgA or IgG form.  Also an EMA IgA antibodies and total serum IgA.  Then if there is a positive on any one of the different types of antibodies, an endoscopy is performed.  During the endoscopy they take 4 to 6 small biopsy samples of the small intestine lining.  These are checked under a microscope for celiac type damage.

An IgE test is an allergy test and does not tell anything about celiac disease, which is IgA or IgG.  You need to stay on gluten until all celiac testing is completed.  Or we will tell your mom! :)  No, seriously, if you don't stay on gluten the test results won't be accurate.

Welcome to the forum! :)

Thanks. I think in the meantime I’ll eliminate gluten for a month or two to see if I feel better.

kareng Grand Master
Just now, chrismikayla said:

Thanks. I think in the meantime I’ll eliminate gluten for a month or two to see if I feel better.

Just remember, if you want to know if you actually have Celiac, you will have to go back on a regular gluten diet for a few months before you can be tested.  It is usually easier to get the blood test before you go gluten-free.  If you are feeling better, you might not want to eat gluten again.  But if you do not know if you actually have Celiac, you may not be as careful as you need to be or be treating things that Celiac causes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,069
    • Most Online (within 30 mins)
      7,748

    Sashley
    Newest Member
    Sashley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
    • Scott Adams
      I also want to mention that using prednisone would likely also make the endoscopy results invalid. This steroid will cause gut healing and could mask the damage caused by celiac disease. 
    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
×
×
  • Create New...