Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac testing done and still not sure

shad

Recommended Posts

shad Apprentice
shad
Posted

Hi all 

So I have done a few tests done and I'm still unsure what I have. 

My initial stomach issues began 8 years ago. And the gastrointrologist kept saying IBS. 

I was used to stomach pain and being bloating specially if I  ate ambiguously. But things changed after last September after I dated a girl who apparently had an autoimmune disease but she said her autoimmunity is fibromyalgia!! 

I started having semi- diarrhea and lost around 5 to 10 lbs and hair started to fall. 

LAST MARCH:

1.

I did a serology test 

And my IgG came borderline high 

IGA antibody WAS NORMAL

And I was not IGA SERUM DEFICIENT.

2. ENDOSCOPY

and the doc said your Vili looks beautiful and no sign of h.poly. tho I asked for pictures and he said he didn't take any.

 

3. Did generic testing and it came back as dq2.5 and DQ7.  Not sure what it means, I wish I could post a picture of it here. I know dq2.5 is not good for celiac .

4. I don't feel much different when on gluten-free diet. However due to my strict first of rice and meat and no dairy , fruct... And not eating too much. Severe stomach pain is very rare. I did another IgG test and this time I came back in normal levels. I should also mention, I have had floating poop for a long time. Its almost impossible for me to gain weight. (Since I was young).

If I eat a lot or late at night I pretty much get a soft stool next morning. I have a very deserve  stomach and I think I don't absorb my food properly. I don't yet know about food intolerance but I am doing the endolab soon. 

I have lost an extra 10 to15 lbs since going on this diet for the past two months as I now have malnutrition. I used to eat alot before and I love food. I'm now depressed and confused and always scared to eat ?

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Hi Shad,

Welcome to the forum!

Sometimes we just don't get firm answers from the medical world.  Especially when it comes to celiac disease diagnosis.  That doesn't mean we can't treat it ourselves anyway.  Once all the celiac testing is done, it's a good idea to trial the gluten-free diet for 3 to 6 months and see what happens.  If you feel better not eating gluten then that's generally a good reason not to eat it.

tessa25 Rising Star
tessa25
Posted

The full celiac panel includes:

TTG IGA
TTG IGG
DGP IGA
DGP IGG
EMA
IGA

You have to be eating gluten daily for 12 weeks before the blood test. A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to confirm a celiac diagnosis.


It looks like you only had the TTG tests and IGA done. If you have been eating gluten you can get the DGP and EMA tests done.

It looks like your doctor did not do any biopsies during the endoscopy.  Maybe get a new gastroenterologist to do the biopsies.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,073
    • Most Online (within 30 mins)
      7,748
    David Croft
    Newest Member
    David Croft
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised.
    • KRipple
      Celiac or Addison's complications? Can someone share their experience?

      By KRipple · Posted

      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Celiac pain relief

      By Jmartes71 · Posted

      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Positive gliadin (deamidated) IgG, normal everything else?

      By aattana · Posted

      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...