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Acne And Gluten

MinnesotaMark

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MinnesotaMark Newbie
MinnesotaMark
Posted

I was diagnosed with celiac disease as a child, this was back in the early 70's before there was definitive testing I believe.  I was told by a doctor in my teens that probably outgrew the problem and could start eating gluten again.  I didn't develop stomach problems until much later but it didn't take long for me to start breaking out, moderate to sometimes severe acne.  I had super clear skin before that.  I went to a dermatologist at 18 (or so) and was told that there was no connection between diet and acne, I think this was the prevailing thought in the late 80's.  I would eventually develop IBS too in my early 30's but was given an endoscopy and told I did not have celiac, I believe they did a blood test too.

Stomach problems continued into my 30's and 40's until I came across a young vegan online.  She had really beautiful skin and I had remarked how fortunate she was.  One thing led to another and she gave me a bit of an education on diet and skin problems, including acne.  She told me that Gluten was an irritant and that it was probably causing my gut issues and skin problems.  So basically we have a 20 year old girl, no college education who was able ascertain the root of my problems, not the guy who went to school for 12 years to learn about skin.  Once I took her advice, my skin issues improved by about 80 percent, far better than any acne medication I've ever tried.  The last 10 years my issues had been less acne and more hives, rashes and eczema. 

I had a series of life-changing events that put me into a hotel for a few weeks recently.  I made the mistake of going back on gluten, since I was pretty much in survival mode, I didn't think much about it.  Of course within about a week, IBS, pimples, blotches and hives came back.  I finally moved into my home a few days ago and my skin looks awful, quite a few boils on my neck and a couple on my face, huge pores and several whiteheads.  Since I am starting a new job in a couple weeks, I'm wondering how long it might take for things to clear up, now that I am off gluten again.  Also wondering how accurate celiac testing is via endoscopy or blood tests. 

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GFinDC Veteran
GFinDC
Posted

Hi MM,

Welcome to the forum! :)

Celiac testing for people with DH (dermatitis herpetiformis) can be different than others.  Your rash could be DH, but a test will tell.  If you have DH, you have celiac disease, because only people with celiac disease get DH.

The testing for DH is to take a biopsy sample of the skin next to a lesion, not on the lesion.  They check the skin sample for IgA antibodies.  You don't need a blood test or endoscopy to determine if a person has DH.  That's a good thing, because people with DH are less likely to show positive on the blood tests or endoscopy.

So, if I suggest you do a search for a celiac support group in your area.  Contact them and ask them to recommend a good celiac aware doctor.

If you did want to get tested thru endoscopy, you should eat gluten every day for at least 2 weeks.  For the blood tests you need to eat gluten for 12 weeks.

susan french Rookie
susan french
Posted

DH is probably responsible for the skin issues.  One can be gluten free and still have the DH outbreaks along with severe itching.  Sounds like celiac because you never get over that.  A competent dermatologist can take a skin biopsy of one of the lesions.  Like you, I was diagnosed with lactose intolerance, irritable bowel and stress.  Eventually, going to the dermatologist was the best thing ever for me, and I was 67 years old. I have several medications to help with the itching, foremost is dapsone.  Unfortunately dapsone can cause anemia.  

MinnesotaMark Newbie
MinnesotaMark
Posted
  • Author

I'm almost certain I've had DH before but have not had it confirmed by a dermatologist, will see if I can find one who's willing to work with me on that.  When I've experienced what I assume to be DH, mainly on my lower back and further down, almost like insect bites.  What I've lately is more like acne, it all started with eating gluten again after 3 years of not having a pimple.  I have 2.5 cortisone cream, doesn't seem to have any affect.  Seeing my regular doc tomorrow so I'll run the whole thing by her.  Great group, glad I found it and many thanks!

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    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess I’ll call it lucky my Dr ordered a rescreen of a liver ultrasound from 5 years ago that triggered this or I would likely have tripped into cirrhosis. It’s all pretty jarring.
    • Heather Hill
      Does this definitely suggest Coeliac Disease?

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    • trents
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      By trents · Posted

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    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Test uncertainty

      By trents · Posted

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
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