Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acne And Gluten


MinnesotaMark

Recommended Posts

MinnesotaMark Newbie

I was diagnosed with celiac disease as a child, this was back in the early 70's before there was definitive testing I believe.  I was told by a doctor in my teens that probably outgrew the problem and could start eating gluten again.  I didn't develop stomach problems until much later but it didn't take long for me to start breaking out, moderate to sometimes severe acne.  I had super clear skin before that.  I went to a dermatologist at 18 (or so) and was told that there was no connection between diet and acne, I think this was the prevailing thought in the late 80's.  I would eventually develop IBS too in my early 30's but was given an endoscopy and told I did not have celiac, I believe they did a blood test too.

Stomach problems continued into my 30's and 40's until I came across a young vegan online.  She had really beautiful skin and I had remarked how fortunate she was.  One thing led to another and she gave me a bit of an education on diet and skin problems, including acne.  She told me that Gluten was an irritant and that it was probably causing my gut issues and skin problems.  So basically we have a 20 year old girl, no college education who was able ascertain the root of my problems, not the guy who went to school for 12 years to learn about skin.  Once I took her advice, my skin issues improved by about 80 percent, far better than any acne medication I've ever tried.  The last 10 years my issues had been less acne and more hives, rashes and eczema. 

I had a series of life-changing events that put me into a hotel for a few weeks recently.  I made the mistake of going back on gluten, since I was pretty much in survival mode, I didn't think much about it.  Of course within about a week, IBS, pimples, blotches and hives came back.  I finally moved into my home a few days ago and my skin looks awful, quite a few boils on my neck and a couple on my face, huge pores and several whiteheads.  Since I am starting a new job in a couple weeks, I'm wondering how long it might take for things to clear up, now that I am off gluten again.  Also wondering how accurate celiac testing is via endoscopy or blood tests. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi MM,

Welcome to the forum! :)

Celiac testing for people with DH (dermatitis herpetiformis) can be different than others.  Your rash could be DH, but a test will tell.  If you have DH, you have celiac disease, because only people with celiac disease get DH.

The testing for DH is to take a biopsy sample of the skin next to a lesion, not on the lesion.  They check the skin sample for IgA antibodies.  You don't need a blood test or endoscopy to determine if a person has DH.  That's a good thing, because people with DH are less likely to show positive on the blood tests or endoscopy.

So, if I suggest you do a search for a celiac support group in your area.  Contact them and ask them to recommend a good celiac aware doctor.

If you did want to get tested thru endoscopy, you should eat gluten every day for at least 2 weeks.  For the blood tests you need to eat gluten for 12 weeks.

susan french Rookie

DH is probably responsible for the skin issues.  One can be gluten free and still have the DH outbreaks along with severe itching.  Sounds like celiac because you never get over that.  A competent dermatologist can take a skin biopsy of one of the lesions.  Like you, I was diagnosed with lactose intolerance, irritable bowel and stress.  Eventually, going to the dermatologist was the best thing ever for me, and I was 67 years old. I have several medications to help with the itching, foremost is dapsone.  Unfortunately dapsone can cause anemia.  

MinnesotaMark Newbie

I'm almost certain I've had DH before but have not had it confirmed by a dermatologist, will see if I can find one who's willing to work with me on that.  When I've experienced what I assume to be DH, mainly on my lower back and further down, almost like insect bites.  What I've lately is more like acne, it all started with eating gluten again after 3 years of not having a pimple.  I have 2.5 cortisone cream, doesn't seem to have any affect.  Seeing my regular doc tomorrow so I'll run the whole thing by her.  Great group, glad I found it and many thanks!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,808
    • Most Online (within 30 mins)
      7,748

    Gerri Branley
    Newest Member
    Gerri Branley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iris Kraft
      I do not use menthol lozenge, but I have found a brand of oral probiotics that has same ingredients as Prodentim but without spending $50  bottle. I bought Naturewise Oral probiotics from Amazon at $29 a bottle for 50 chewables instead of the 30 qty. The Simbicort upset the bacteria is my mouth, had white tongue and created a dental problem with a tooth, plus the inflammation in throat, vocal cords. Used the chewable and rested it along the gum where tooth hurts 4 x on Monday. Tuesday, went to dentist and she looked at what I thought was my problem tooth and she said all looked pink and happy. No problem.  Also, I spoke with my Allergist and he said instead of two puffs am and pm, try one puff only in am.Can always add one puff in PM if needed. Rinse mouth twice and gargle twice, and brush tongue. Use the Rescue inhaler Albuterol if needed (which I didn't need to). Know that Flucasolone, Simbicort, Advair are interchangeable.
    • Ann13
      I have the exact same symptoms for a couple of wks now but I've been taking Symbicort for quite awhile at this point. I read you can get yeast infection in the vocal cords so I may ask my Dr. for antifungal meds cos I cant wait for an ENT exam. Also read on this site the connection between Vit D and K2 deficiency and asthma...doesn't apply to me cos mine is from mold in a house years ago but still might try and see if my asthma improves. I am Celiac and gluten causes the same symptoms but it says this inhaler is gluten free and it only started acting up so that option is out. I use Ventolin on occasion but using that for many many years. For me I will see if can switch inhalers to a brand that doesn't affect vocal cords as much, Advair is NOT one of them, plus will try the supplements. Do not suck on menthol lozenges cos menthol dries out cords more...sleeping elevated and sucking on ice chips gets the swelling down...at night this can really help especially. I can't continue like this so will get on everything this coming week.  
    • Rhenriksen
      Did a little more research just now and found out that even though the max methane should not exceed 10. It is normal to be around 3 and not rise. Again, I was at 13 so this does make me a bit suspicious. This was done back in May of 2024. I do recall being put on 14 day Antibiotic called Rifaximin but I'm really not sure if it made a difference, but if it did, then the problems still came back:( 
    • Rhenriksen
      I did a SIBO Test about a year ago, and I barely elevated on the Methane portion (max was 10 and I hit 13). Dr wasn't too concerned.    
    • trents
      Have you looked into SIBO (Small Intestine Bacterial Overgrowth)?  Also, MCAS (Mast Cell Activation Syndrome)/histamine intolerance (they go together like a hand and glove).  Both of the above are common in the celiac community.
×
×
  • Create New...