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The more I'm "in," the worse it gets!

Igiveup

By Igiveup
in Dermatitis Herpetiformis

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Mandykins Newbie
Mandykins
Posted
On 7/15/2018 at 4:25 PM, Igiveup said:

It seems as though the more I research, and dedicate myself to becoming gluten free(only 6-8 weeks now), the worse my dh is getting! I know I am probably missing some things, but my diet compared to several weeks ago, is hugely improved! I have learned that humility, and always remaining teachable will be one of my best allies in this battle. Just this morning, after making a dreaded assumtion that what I heard earlier about coffee, was not all inclusive, and that I might very well been poisening myself, with about 40 - 60 ounces of instant coffee every morning! Plus relying on a cheap variety(great value) of hazelnut creamer( just because it said gluten free, not certified! ) So off to the store for a new coffee maker, ground Folgers, and...we'll see! I am sorry to be so lengthy, but if I can save anyone, or only one person from dh of this magnitude, I will be at least a happier camper! 

As I stated earlier, it seems my outbreaks have only been getting worse. I (so far) have only experienced dh, but don't know how much more I can tolerate, and find it impossible to believe that I am using "only" and "dermatitis herpediformus" in the same sentence!!! I still have two months to go in a new job, until my insurance kicks in, and in the meantime will have to see a dermatologist, instead of a gastro-intestinal dr. Believe me, I can ill afford to not tell this dr. that I had a preliminary diagnosis via, skin biopsy, that indicated celiac. This is hideous. Please, any ideas????????

Thank you for the posts I've read so far, and hopefully, if anyone is doing the instant coffee thing.... it might be wise to reconsider! 

 

Hi, 

my doctor recommended using psyllium fibre for treating celiac symptoms, and I can say it has saved me many many times from horrible gluten reactions.  I use the capsules which help reduce DH breakouts. 
Ive also stopped eating corn and  anything made from corn. It has made a huge difference in reducing DH breakouts on my skin. I found a corn allergies list (its extensive) which guides  me thru eliminating all things  corn. Time consuming? You bet ! But worth the effort:) 

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