Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does this look like DH?


jenna3

Recommended Posts

jenna3 Rookie

Hi everyone and thanks in advance for any advice you can give me. And apologies for the TMI.

A little history, 38 yo female, I have had autoimmune problems since I was 12, when I developed vitiligo. Thyroid is gone from Graves Disease. Autoimmune hives which have been in remission for years, but suffered for years at a time. Anemia at times. Gallbladder gone. Just this morning I had Balloon Sinuplasty for a nasty sinus infection that has my Eustachian tubes swollen shut. Skin allergy test for things like dust, pollens, mold, animals, was negative. Been on and off antibiotics and prednisone for a month. I have had both meningitis and shingles.

I posted a year ago, I had asked my doctor to test me for Celiac as I have stomach issues. Blood work came back 'weakly positive' and my Endoscopy only found chronic gastritis. So the whole idea was dismissed by my doctors. At the time, I also had a rash on my scalp, which I thought was heat/sweat related. This week, I am finding these 'sores' on my scalp, neck, back, chest, and shoulder. Both sides of my body, but not really symmetrical in any way that I can tell. Itching is not extreme, but they are painful. My head is just throbbing, probably at least 20 sores there. Some have a white head, clear liquid when popped, then blood. Leaves a rather large hole that scabs over. 

I really can't find what else this could be. I will be making a derm appointment as soon as I can.

Gliaden, IGA value 30.1   reference shows <20.0 is negative >30.0 is positive

T Transglutamin IGA value 7.7   reference range <4.0 is negative and 4.0-10.0 is 'weak positive'

Celiac Disease Cascade value 167   reference range 61 to 356

 

dh2.webp

dh3.webp

dh1.webp

Just some more images.

dh7.webp

dh5.webp

dh6.webp

dh8.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bree J Apprentice

I get similar sores. My scalp is also a mess, and it doesn't help that I pick at it...

I don't really have an answer for you because my testing wasn't super conclusive either, but I can definitely relate to those pictures. I get tiny ones on my hands a lot.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,994
    • Most Online (within 30 mins)
      7,748

    Aine Farley
    Newest Member
    Aine Farley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Tyoung
      Before my diagnosis I would consider myself pretty much asymptomatic other than a few flare ups of what I previously thought were ibs symptoms. After having iron deficiency as well I had a positive blood test and EGD. I have now been gluten free for about a month but my symptoms have gotten worse. I now have bloating, acid reflux, and pain in the upper abdomen on and off most days. I am pretty positive I am not being glutened as we overhauled our whole house to be gluten free and haven’t eaten out since the diagnosis. Has anyone else experienced a worsening of symptoms after going gluten free? Will it subside? Or is there something else I should be concerned about. Thank you! 
    • RMJ
      That is strange.  Other pages talk about testing. The one thing I like about GFCO is that the handbook for their certification process is available on their website.  I may not agree with the whole process, especially the reduced testing, but at least I can see what the process is. I wish the other certifying organizations would publish their processes. GFCO 2024 manual
    • RMJ
      GFCO does not require testing of each lot, so the “periodic laboratory analyses” fits their requirements. They say testing is done by certified bodies.  I’m not sure what that means for an Italian company. The GFCO requirement is less than 10 ppm.  Other gluten-free certifying companies may use other limits.
    • cvernon
      Thanks for the info on Nuts.com! Looks like they are certified by GFFP which has a 5ppm limit, which is awesome. I was looking on the GFFP website ( https://glutenfreefoodprogram.com/gluten-free-certification-manufacturing/ ) as I was curious about what their certification requirements are, and stumbled on an odd statement. On a page where they're explaining the benefits of getting a certification through them, it says "No mandatory gluten testing requirements." Ummm, what?! I've included screenshots and a link below to where that information is. I've also emailed GFFP to try and get additional info on what that statement actually means, and what requirements (testing, audits, ingredient tracing) if any manufacturers have to go through to obtain/retain a certification through them. They're endorsed by The National Celiac Association so you'd sure think that GFFP would be requiring 3rd party testing for their certification, but at this point not much would surprise me with these gluten-free certifying companies. https://glutenfreefoodprogram.com/gluten-free-certification-manufacturing/
    • Jsingh
      I second Nuts.com. Theirs seems to be good. My daughter can have their certified items without any problem. I don't even know how to process this!!
×
×
  • Create New...