Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does this look like DH?


jenna3

Recommended Posts

jenna3 Rookie

Hi everyone and thanks in advance for any advice you can give me. And apologies for the TMI.

A little history, 38 yo female, I have had autoimmune problems since I was 12, when I developed vitiligo. Thyroid is gone from Graves Disease. Autoimmune hives which have been in remission for years, but suffered for years at a time. Anemia at times. Gallbladder gone. Just this morning I had Balloon Sinuplasty for a nasty sinus infection that has my Eustachian tubes swollen shut. Skin allergy test for things like dust, pollens, mold, animals, was negative. Been on and off antibiotics and prednisone for a month. I have had both meningitis and shingles.

I posted a year ago, I had asked my doctor to test me for Celiac as I have stomach issues. Blood work came back 'weakly positive' and my Endoscopy only found chronic gastritis. So the whole idea was dismissed by my doctors. At the time, I also had a rash on my scalp, which I thought was heat/sweat related. This week, I am finding these 'sores' on my scalp, neck, back, chest, and shoulder. Both sides of my body, but not really symmetrical in any way that I can tell. Itching is not extreme, but they are painful. My head is just throbbing, probably at least 20 sores there. Some have a white head, clear liquid when popped, then blood. Leaves a rather large hole that scabs over. 

I really can't find what else this could be. I will be making a derm appointment as soon as I can.

Gliaden, IGA value 30.1   reference shows <20.0 is negative >30.0 is positive

T Transglutamin IGA value 7.7   reference range <4.0 is negative and 4.0-10.0 is 'weak positive'

Celiac Disease Cascade value 167   reference range 61 to 356

 

dh2.webp

dh3.webp

dh1.webp

Just some more images.

dh7.webp

dh5.webp

dh6.webp

dh8.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bree J Apprentice

I get similar sores. My scalp is also a mess, and it doesn't help that I pick at it...

I don't really have an answer for you because my testing wasn't super conclusive either, but I can definitely relate to those pictures. I get tiny ones on my hands a lot.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,540
    • Most Online (within 30 mins)
      7,748

    Suecon
    Newest Member
    Suecon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
      I forgot to mention that exercise also triggers it, except for the period right before I tried the gluten challenge where I could do moderately intense workouts without getting this burning sensation and extreme fatigue for days afterwards.
    • Zuma888
      Hello everyone, I am 30 years old, female, and have Hashimoto's thyroiditis and suspected celiac disease (wasn't able to complete a gluten challenge, but have the symptoms and HLA-DQ8) or at least some kind of gluten sensitivity. When I first got diagnosed with Hashimoto's thyroiditis, I went on AIP and never reintroduced gluten. Whenever I would eat a little bit of gluten I would wake up feeling very old, achy, and unrested, with a burning sensation everywhere especially on my hip bones and chest area. It felt like severe inflammation. This would also happen during stressful times and times where I hadn't been sleeping well.  This symptom had decreased in intensity and completely gone away before I tried to do a gluten challenge over a month ago. Now it is back and I have it every day when I wake up. It usually goes away or decreases in intensity after a few hours of being awake. Is this inflammation or something else, and is it related to Hashimoto's thyroiditis or celiac (or gluten sensitivity) or both? Could it be related to not moving for long periods of time (as is the case when I am sleeping)? I was also extremely sensitive to all foods when I first started AIP about 3 or 4 years ago, but with time, I could tolerate more foods and even gluten in small amounts occasionally. Now my stomach is super sensitive, I am afraid to eat again, and my stools are abnormal. Thank you.
    • knitty kitty
      @MagsM Did your doctor do the DGP IgG and DGP IgA tests or the tTg IgG test.  It looks like he just tested total IgG.   Were you taking any medications or over the counter stuff before the test?  Some can suppress the immune system and cause false negatives.  
    • Fabrizio
      Thanks for your article. 
    • NCalvo822
      Thank you.  Very helpful.
×
×
  • Create New...