Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Timeline and Severity Relationship of Successive Gluten Attacks

Brogrammer

Recommended Posts

Brogrammer Apprentice
Brogrammer
Posted

So, at this point it's decided that I have Celiac, not even just intolerance. However, that doesn't change the fact that I keep screwing up, so I'm going to post here with the rookies. My streaks of successful gluten free diet were at first 3-4 days at a time, then I went a solid 11 days without screwing up. It has been 6 days since that last gluten attack.

Anyway, in all past cases of getting glutened after I started attempting to go gluten free... I'd be back on track after 3 days reliably... like that was my body's perfect internal clock. This time though... I'm on day 6 right now and I'm still experiencing the symptoms. Of course it's a bit hard for me at this point to distinguish the reaction from the subsequent withdrawal that is to be expected... but I just know that after 3 days there tends to be a bit of a reprieve before I go into withdrawal, and there hasn't been yet.

Is this normal or should I be worried I've done something worse than usual, or rather... something worse than usual has happened to me? In terms of the number of relapses, this is relapse #4. It has been about a month since I declared to myself my intention to ditch gluten, and I saw the doctor and confirmed my situation last week since my mistake provided that opportunity (I cannot imagine agreeing to gluten myself for the sake of science, it's too much suffering). Anyway, I got used to the 3 day rhythm, so I'm very concerned that this time I don't seem to be bouncing back.

Thanks as usual, helpful people.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Normally it takes weeks or even months on a gluten-free diet for celiac disease symptoms to go away, so hopefully you can have more success going forward. It can take years to fully recover if you do have celiac disease and there is considerable intestinal damage.

Link to comment
Share on other sites
Brogrammer Apprentice
Brogrammer
  • Author
Posted
17 hours ago, Scott Adams said:

Normally it takes weeks or even months on a gluten-free diet for celiac disease symptoms to go away, so hopefully you can have more success going forward. It can take years to fully recover if you do have celiac disease and there is considerable intestinal damage.

Thanks for the info. After first realizing I was sensitive to gluten, celiac or not, I of course screwed up a few times, and some are detailed already on this site. But like I said, I felt back to what I knew as normal (which is me having eaten gluten products unwittingly until I ended up in the hospital and knew it was time to quit, and then lasting a few days to a week at a time successfully avoiding gluten).

Now it's just scary because I am not back to normal and it has been 8 days since that sinister handful of the wrong granola sprinkled on my parfait. To think I almost spooned it off and threw it away, I feel so dumb for consciously not being as cautious as I sort of suspected I needed to be. The thing is, I had actually eaten that same parfait a few times since realizing gluten was a problem and being a bit ignorant of what all it's in... I would eat them because yogurt settles my stomach and fruit has good vitamins... they had not been a problem previously.

So in other words, it seems that my sensitivity has sharply increased since my first realization that I should go gluten free. Based on my first round of tests and the symptoms I described to her, my doctor said that I in fact am not just gluten intolerant, but have Celiac disease. She also mentioned Crohn's (her research specialization) when she was being thorough and all that... but I looked at the FODMAPs and I still have been eating plenty of those with no trouble at all.

So yeah sure, another round of tests after this recent glutening... but her expert suspicions confirm my non-expert ones... so I'm still going to be doing the gluten free thing, and also avoiding soy because I've observed that to also be something I've started reacting to. Other food allergens do not seem to be a problem... tree nuts and dairy are still part of my diet without issue. Haven't had shellfish in ages, don't particularly care to I guess but maybe one day I'll find out if that's okay or not.

Anyway as I say in pretty much all my posts... I don't mind a few days, even weeks of sickness... my main concern is longer term troubles of a debilitating nature, or permanent consequences.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,740
    • Most Online (within 30 mins)
      7,748
    deborahB
    Newest Member
    deborahB
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Patty harrigan
      Passing out

      By Patty harrigan · Posted

      That’s exactly what happens to me. I have been unconscious twice, vomiting afterwards for up to 9 hours and then the bone breaking chills start. I have never vomited while unconscious, thank god.  It’s an unusual presentation and my doctors were reluctant to think it was due to gluten ingestion. However, I know it was gluten as both times it happened within 2-2.5 hrs of eating. I no longer eat food that I haven’t prepared myself and it’s been 6 yrs since it happened.  I was behind the wheel once and was lucky to get off the road before I went out. I feel, and all my doctors reluctantly agree, that it’s a vasovagal reaction. If I can lay down it seems I don’t pass out but I still vomit and get the chills. It’s terrifying to say the least. I could have killed myself or others. I’m as strict as I can be for that reason. 
    • trents
      Please help me understand my Celiac Gene Restuls, thank you.

      By trents · Posted

      I assume you were on antibiotics for the E-coli infection? C-diff almost always is the result of prolonged and/or repeated antibiotic treatment. And there is a growing consensus that celiac disease is connected with gut dysbiosis which in turn is likely connected with first world overuse of antibiotics, preservatives and carbohydrate intensive/low nutrient diets. We are wrecking our gut microbiomes and those with genetic potential for celiac disease are reaping the fruit of it.  Can you repost post those antibody test scores but this time include the ranges for positive vs. negative. Each lab uses their own scale for these. There is no industry standard yet. Recently revised "gluten challenge" guidelines recommend the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the antibody testing blood draw. To be sure, I would extend that to four weeks. Sadly, many practitioners neglect to (or don't know to) inform their patients of this before testing and so much testing done results in unclear outcomes. In your original post you mentioned lab analysis done from a colonoscopy. Colonoscopies cannot be used to diagnose celiac disease because they cannot get into the small bowel from the bottom end. Celiac disease causes damage to the lining of the small bowel which is accessed by an endoscopy. They take biopsies and send them to a lab for microscopic analysis.
    • Scott Adams
      Please help me understand my Celiac Gene Restuls, thank you.

      By Scott Adams · Posted

      A simple blood test should be done, and is usually the first step in diagnosing celiac disease. To do this you need to be eating lots of gluten daily for 6-8 weeks before doing the test. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Sking
      Please help me understand my Celiac Gene Restuls, thank you.

      By Sking · Posted

      Trents,  Thank you for the informative information. It's interesting that you suggested an infection or something 'triggers' celiac disease. I have been wondering if this happened because I was hospitalized with E-Coli last December and then hospitalized in June with C-Diff. So, they did do the Antibody Testing but never told me anything about needing to prep by eating a good amount of gluten for several weeks prior. My doctor thinks we would have to re-test as she isn't sure the results were entirely accurate. I did not 'abstain' from gluten but I didn't know I was supposed to purposely eat a certaim amount of gluten for 6 weeks prior. They failed to tell me this before I got the blood test. Here are the results of my antibody testing from September: Deamidated Gliadin Abs, IgG: 27 t-Transglutaminase (tTG) IgA: 3 Endomysial Antibody IgA: Negative Immunoglobulin A, Qn, Serum: 111   Thanks for any input, I appreciate this site.
    • Sking
      Please help me understand my Celiac Gene Restuls, thank you.

      By Sking · Posted

      Hi Scott, I really appreciate you already welcoming me and answering my questions. I (very strangely) came down with C-Diff in June of this past year. It did a number on my body. It took several months for me to get back to normal. Because of this, they followed up with a Colonoscopy and during the colonoscopy, they took a biopsy. The results of that colon biopsy were: colonic mucosa with patchy prominence of intraepithelial lymphocytes noted When those results came back, my doctor suggested doing this gene test to start with. The only symptom I am having is lighter color stools that often float. I wondered though if that is attributed to chia seeds, fiber supplements, and other things in my diet. Other than that, I do not have any symptoms of celiac. I do realize that I could have it without symptoms. I am wondering what my doctor will suggest is the next step towards trying to see if I have it. Thank you for your time.
×
×
  • Create New...