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To go to the ER or not to go (after getting glutened)

Shann

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Shann Rookie
Shann
Posted

Well poo! I'm reacting with ferocity to a good ole glutening... I think?  I was diagnosed with Celiac on June 11th. I'm nearing my 6th week of eating gluten-free. Well, mostly gluten-free. I hoped I'd master this new lifestyle much faster than I have, but I've made a few silly, unintentional mistakes already... ? I've eaten 'naturally gluten-free' snacks that become unnaturally gluten-laden during processing, and I ordered food from a Gluten-free menu that wound up served as poison nonetheless. 

My first reaction to getting glutened was rough: it felt as though the bacteria were having a major celebration and shooting off fireworks in my stomach & guts. That was about 2 weeks into my Gluten-free lifestyle. About a week later, it happened again; only that time it was less intense (more comparable to bottle rockets than fireworks).

Now, 2 & a half weeks later, I've been glutened; and this time I AM IN AGONY!! PLEASE GIVE ME ADVICE! (But please don't say that I should go to the ER just because I feel in physical misery; I ask because I don't know at what point I may NEED help...like with hydration).

Forget the firework analogy on this one! It feels like there's an internal WAR happening inside of me; complete with tanks and bombs! Do I wait until the pain is more comparable to missiles and nukes? Also, I'm shaky. I feel very odd. My body is twitching & cramping. I can't think straight; I'm confused. Felt like I was going to pass out, but took glucose so hopefully that symptom won't return. Hell, writing these 5 paragraphs has taken over an hour due to correcting typos lol.

I know I probably 'sound' fine. But truthfully, I am concerned. While debilitating muscle cramping is a part of Isaac Syndrome, it generally doesn't feel this way. The cramps I generally feel are brutal, sickeningly-painful buggers that can't be helped with massage or by trying to oppose them. The cramps I currently feel seem...less deep? And can be alleviated somewhat by massage & switching positions.

As for the ER, I guess I'm freaked out because the pain in my stomach is SO SEVERE, the gurgling sounds are atrocious, and my body has now begun to cramp (which could be bad... as I have no idea yet if these (gluten-induced?) cramps can lead to the bigger, horrid ones that I suffer due to the Issac Syndrome... and those cramps can lead to a serious drop in sugar, seizures, or passing out from pain. I'm so afraid of how I'll feel when I wake up Friday morning...aka in 6 hours ? I detest hospitals ?

 

Thoughts, anyone? Thanks! 

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tessa25 Rising Star
tessa25
Posted

Unfortunately I don't have an answer to your question. You might want to look into getting a Nima sensor to check food for gluten though.

Ennis-TX Grand Master
Ennis-TX
Posted

Hospital can do nothing for you, there is a pill the lessen symptoms called glidenX  if you take it right after getting glutend. Not a cure but but it does reduce the symptoms.

As mentioned get a Nima Sensor and test stuff your unsure of. Avoid processed foods for now period and and when you do get something make sure it is certified gluten-free. DO NOT eat out with this disease unless the place is 100% gluten free with good reviews on FindMeGlutenFree and remember your playing Russian roulette with it.

Whole foods is the way to go making simple dishes in your house, with gluten-free certified spices, etc.

DO read the newbie 101 thread, many people miss things like new condiment jars, throwing away scratched pots and pans Colanders. 

 

ravenwoodglass Mentor
ravenwoodglass
Posted

Hopefully you are feeling better by now. For me the symptoms you describe would be followed by a couple hours of severe D in the middle of night. If it is the same for you it might give some relief from the cramps.  Considering your other condition you may want to call your doctor this morning. Ask to speak to a nurse (may need to call you back) and have the nurse tell your doctor what is happening. There may be something you can take or do to prevent a flare of your other issue if you get glutened.

 

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
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      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
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