Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Healing, but still sick?


SahiraHyena

Recommended Posts

SahiraHyena Apprentice

I was diagnosed with Celiac in July of 2016. 

I had an endoscopy in April of this year, the damage seemed to be very minimal (On a scale from 0 to 5, five being the worst and 0 being healthy, I was a 1.) and the doctor told me I'm healing.... If I'm still healing...why do I still hurt SO BAD? It doesn't matter what I eat, rice, rice pasta, fruits, vegetables, I'm always in major pain and I'm always EXTREMELY BLOATED, and I spend all day burping and in burning, uncomfortable pain.

If I'm healing, why am I still sick? My gut hurts SO BAD and my life is a literal LIVING HELL, i can't even drink water without severe bloating and pain. I've been severely constipated for months now and the laxatives don't really seem to be working. The doctor wants my intestines to heal before he does anything else... so he's going to to do another endoscopy in a year.... I really don't want to wait around an entire YEAR before they do anything else, my gut hurts so bad I haven't even been able to look for a job, every day is a battle to live.

Any suggestions on how to help this? I'm so sick and tired of living in severe pain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

With celiac we commonly have issues absorbing Magnesium, this can cause constipation...the kind that even a entire package of exlax does nothing for (been there). You need Natural Vitality Calm magnesium Powder, you can get it on amazon, start off with 1/4tsp (1-2g) in a tall glass of a warm beverage, raise the dose by 1/4tsp (1-2g) a day til you get loose stools then back it down that much.

The bloat could be the constipation or it could be something else. What is your diet?
We suggest a whole foods only diet starting off and you need to remove dairy, and oats, (the enzymes to break down dairy come from your villi which are damaged/destroyed by celiac and 10% of celiacs also react to oats)

]If your eating a ton of gluten free processed foods and not a whole foods diet your probably loading up on tons of starches and sugars. With celiac we are prone to intestinal issues like Candida, and SIBO. You can get tested for these or look at going to a low carb diet and seeing if the bloating stops after a few weeks. The Keto diet works great starting off as most recipes are gluten free, grain free, and very low carb so it helps with bloat and inflammation.

SahiraHyena Apprentice

Magnesium powder? I'll keep that in mind, but when I do go, I mine are already pretty loose looking. If by loose you mean, like a cow patty.

I am vegan, but cannot afford a whole foods diet. I only get about 190 a month to work with and I really do not have any transportation to get fresh vegetables and fruit every week. I need to buy things that last. Our fridge is screwed to, fresh veggies last a week and that's about it. I eat a lot of plain white rice, I rarely eat oats and a lot of rice pasta. I buy frozen vegetables and make home made soups and sauces a lot to freeze them. I eat a salad at least once a month though.

I get that whole foods diet a lot, but I simply can't afford it unfortunately. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,897
    • Most Online (within 30 mins)
      7,748

    ItchyPap
    Newest Member
    ItchyPap
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      The last time my vitamin D was very low, according to a lab test, was before I was diagnosed with celiac disease. I've been supplementing ever since, and now the numbers on the lab tests are within their normal ranges, oftentimes way above. I've also been supplementing with methylcobalamin (B12) since I was low before diagnosis in 2010, and now I'm fine. I'm surprised I ever requested a folate level, but I did, in 2019. Result 9.4 ng/mL (range >3.0).    
    • Captain173
      Do you have any links that show studies where NCGS and/or infections have caused high Ttg iga levels.  I've yet to see anything that truly supports this. Everything I've read says the high levels are celiac specific.
    • gailc
      I get coughing and choking from canola oil. I cough up stuff.  Symptom is like bronchitis.  I have gluten intolerance, maybe celiac.  the choking persists for about a week, it simulates a cold.  I got it from the gluten free menu at Outback too, that time I got cramps for 25 hours. the cramps start about 20 minutes after finishing eating.  
    • Wheatwacked
      Many of the symptoms, there are over 200, associated with celiac disease and NCGS are vitamin and mineral deficiencies caused by small intestine damage in the case of celiac disease and food avoidance and the poor nutrittion of the Modern American Diet (MAD) I used to turn the heat on even at 78 degrees.  The 600 mcg of Liquid Iodine helped.  Also good for hair, nails, skin and brain fog.  Another good thing for brain fog is phosphatyl choline.  It is essentil for acetylcholine- a brain chemical. I have familial hyperlipdemia and instead of a statin I got a prescription for Nicotinic Acid, 2000 mg a day.  I was already taking 500 mg a day and was really surprised when my HDL when up to  44 and I began sleeping better and my legs and back are getting more flexible.  In addition after the first few doses of itchiness I get a warm fuzzy feeling Raising your vitamin D is crucial.  Low vitamin D allows the immune system to run amuck. intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe).  Look at Thiamin deficiency. consistently ran hot, was always cranking the a/c, to someone who wears a down vest.  Any combination of deficiencies in B1, B2, B3, B5, choline and Iodine can cause this.  Likely all of them. After a lifetime of mouthbreathing GFD cleared my sinuses.  Post nasal drip is my first symptom of cross contamination nowaday.  
    • Wheatwacked
      If you mean continueing on Gluten Free my answer is yes.  She showed significant improvement in her behavior and that translates to a happy family.  Do get her tested as sooon as you can.  You might want to investigate genetic testing for Celiac Disease.  Children recover more quickly than adults.  It took my son about 6 months on Nutramigen before going to regular food, gluten free.  Blood tests are not always accurate in very young children. You may be advised to see a gastroenterologist instead of relying on blood tests results. Logic: She is better off gluten than before.  Wheat flour has no nutritional value and has an omega 6: omega 3 ratio of 22:1.  Our bodies do better at 3:1.  Omega 6 causes inflammation. When my son was diagnosed, back in 1976, his doctor recommended my wife and I also go gluten free.  We declined and lived to regret it.  I started GFD at 63 and have spent the last 10 years undoing the damage, some of my symptons went all the way back to my childhood and things I lived with all my life got better.
×
×
  • Create New...