Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms that seem related to gluten intolerance or celiac disease


kmrp

Recommended Posts

kmrp Newbie

Hello,

I’m new to the site and would like advice and/or recount of related experiences. I’m a 37 year old female experiencing new digestive issues for about 8 weeks or so. I’ve had chronic constipation my entire life but lately random foods will cause diarrhea. Also, I’m experiencing terrible abdominal pain and bloating that lasts for hours at a time. My abdomen becomes distended and feels like it will burst. My symptoms are similar to how I felt when I had gallstones but my gallbladder was removed 8 years ago.

I recently had routine blood work done and they found vitamin D and B12 deficiency, low hemoglobin, and elevated liver enzymes. Doing some research into these results I am becoming suspicious of gluten intolerance. I also have other symptoms that I had attributed to daily stress but now I’m not so sure: fatigue, joint and muscle pain (knees primarily), hair loss, traces of blood in urine.

I’m going to request a referral for a gastroenterologist but was curious if anyone had experience with symptoms similar to mine that resulted in positive diagnosis.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
1 hour ago, kmrp said:

Hello,

I’m new to the site and would like advice and/or recount of related experiences. I’m a 37 year old female experiencing new digestive issues for about 8 weeks or so. I’ve had chronic constipation my entire life but lately random foods will cause diarrhea. Also, I’m experiencing terrible abdominal pain and bloating that lasts for hours at a time. My abdomen becomes distended and feels like it will burst. My symptoms are similar to how I felt when I had gallstones but my gallbladder was removed 8 years ago.

I recently had routine blood work done and they found vitamin D and B12 deficiency, low hemoglobin, and elevated liver enzymes. Doing some research into these results I am becoming suspicious of gluten intolerance. I also have other symptoms that I had attributed to daily stress but now I’m not so sure: fatigue, joint and muscle pain (knees primarily), hair loss, traces of blood in urine.

I’m going to request a referral for a gastroenterologist but was curious if anyone had experience with symptoms similar to mine that resulted in positive diagnosis.

Thanks.

Yes those are often symptoms of Celiac.  Any doctor can order the Celiac blood panel and get you started before you get to the GI doc.

rehh05 Apprentice

Fatigue can be related to low B12. Joint and muscle pain can be related to low vit D. Being low in both vitamins is common with celiac. There are also other sensitivities that cause gastric problems... dairy, and corn are common... but these also can go along with celiac. Get tested by a doctor. Keep eating gluten until after you get test results and find out a diagnosis. See if you can figure out what foods are triggering your diarrhea so you can tell the doctor. Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,199
    • Most Online (within 30 mins)
      7,748

    johnkelley.kj
    Newest Member
    johnkelley.kj
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
    • Wheatwacked
      It took me 2015 to 2021 at 10,000 IU a day to get to 80 ng/ml. In 2019 I was still only 47 ng/ml The highest it has reached is 93.  Tested every 3 months.     While a one time massive dose can be used to quickly raise vitamin D levels, its effects only last three months.  Because vitamin D is stored in fat, an obese person would require more to raise blood level.     Effect of High-Dose Vitamin D Supplementation on Volumetric Bone Density and Bone Strength   The point of higher vitamin D is for the mental health and immune system requirements.  Also this study included supplementing calcium.  "Research suggests that women with low levels of vitamin D have a higher risk of breast cancer. Vitamin D may play a role in controlling normal breast cell growth and may be able to stop breast cancer cells from growing." This information is provided by Breastcancer.org. https://www.breastcancer.org/risk/risk-factors/low-vitamin-d-levels Higher vitamin D levels have been consistently associated with reduced risks of colorectal cancer https://www.cancer.gov/about-cancer/causes-prevention/risk/diet/vitamin-d-fact-sheet  
    • RMJ
      You can search here for certified gluten free olive oil GFCO productfinder
×
×
  • Create New...