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Months of GI issues got an Endoscopy today could I be Celiac

Antny

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Antny Newbie
Antny
Posted

Hello all,

 

I’m new here and as of yet have no diagnosis but wanna throw some stuff out there.  

 

This whole thing started when I started to have severe panic attacks at the end of April and started to have terrible GERD which made it hard to eat for a while.  I got checked at the Dr with a regular blood test and the like and it all came out normal.  I weighed about 146 pounds then which while low for me (5’11” 27 M). I shrugged off as me eating less and being more active.  So essentially it was all brushed off as a possible ulcer and I was told to take it easy and given anxiety meds (which I used to be on) I decided to give up caffeine and avoided some foods for the month of May and had on and off days of abdominal pain.   Quitting the caffeine made my panic attacks worse and i found myself sitting in the bathroom at work having to breath because with the pain/headaches I thought I was dying.  For a good long while I was having nearly constant D that was pretty stinky and a lot of suddenness.  I’d have to guess i was going at least 5-7 times a day for a while.  (I also had a similar thing in March where i got nauseous and dizzy for a week after a party where I ate a ton of food/drank.  I had GERD and D then too but that cleared up. 

 

So around the beginning of June I got an appt with the doc and a GI to see what was up.  I was down to 140-141 and could see something wasn’t right.  (Granted the D wasn’t nearly as severe at this point). The regular doc put me on vsl#3 because it seemed that i wasn’t absorbing stuff and soon after I went to the GI I told him everything and i had a colonoscopy on the 25th of that month.  

 

On the follow up for that all the biopsies turned out fine which worried me. Granted my weight had been stable at 140-141lbs since the last time.  

 

I’ve had some muscle weakness (like i worked out and my muscles are shakey) this is usually worse in the morning and can get better during the day.  Tongue also seems to swell in my sleep. Ive also had on and off Geographic tongue.  I’ve also had muscle spasms (twitches?) in different places like my legs , sometimes in arms sometimes in abdomen as well as some stiffness in my hands. 

 

So we scheduled blood-work with the tTG stuff,B12, folate, etc being tested and an endoscopy.   I had the blood-work on Sat and the endoscopy today and here are the current biopsied things. 

 

LA Grade B reflux esophagitis.  

Z-line regular, 44 cm from the incisors

Gastritis. Biopsied x2

Erythematous duodenopathy

Scalloped mucosa was found in the duodenum, suspicious for celiac disease

 

I dunno if this is the right forum for this but I wanted to see if anyone else’s story lined up similarly with what I’ve been going through.  And I’ll update as I find out what’s up.   

 

Thanks everybody and have a great Monday!

 
  • 3 weeks later...
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cyclinglady Grand Master
cyclinglady
Posted

Hi!  

Your posting was overlooked (we are all volunteers).    I am so sorry.  Just want to find out if you received a diagnosis and if you are doing okay.  

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