Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Biopsys And Blood Test

Guest tracey and emma

By Guest tracey and emma
in Parents, Friends and Loved Ones of Celiacs

Recommended Posts

Guest tracey and emma
Guest tracey and emma
Posted

hi everyone emma had a biopsy done a few weeks ago and with her symtoms as well they have told me that they suspect celiac disease. but today they got the results of the bood test. and it came back normal. with no evedence of C/D at all. what they are saying is that this is just the on set of C/D as her villi were normal to look at as well. so hear the question....... does the blood test always come back postive to celiac if that is what it is, or is it hit and miss? in other words can the bloods in the early stages come back as normal, even though it might still be C/D? any help would be greatful as emma cons is now on holiday for the next few weeks and i am really confused as to what to think? and our dietician just said stick for the time being to gluten free, and we will talk again in the new year. thanks for your help tracey and emma X X X

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
hi everyone emma had a biopsy done a few weeks ago and with her symtoms as well they have told me that they suspect celiac disease. but today they got the results of the bood test. and it came back normal. with no evedence of C/D at all. what they are saying is that this is just the on set of C/D as her villi were normal to look at as well. so hear the question....... does the blood test always come back postive to celiac if that is what it is, or is it hit and miss? in other words can the bloods in the early stages come back as normal, even though it might still be C/D? any help would be greatful as emma cons is now on holiday for the next few weeks and i am really confused as to what to think? and our dietician just said stick for the time being to gluten free, and we will talk again in the new year. thanks for your help tracey and emma X X X

How old is the child? In real small childern the tests do not seem to a be all that realiable. The Bispoy needs a signifgnat amount of damage be done before it has a good chance to succed in finding celiac disease, and litle ones normaly will not have that much damage built up thats to there extremly awsome healing powers. Simular issue with the blood test.

IMO, the response to the diet is the best indicator....

Guest tracey and emma
Guest tracey and emma
Posted
How old is the child? In real small childern the tests do not seem to a be all that realiable. The Bispoy needs a signifgnat amount of damage be done before it has a good chance to succed in finding celiac disease, and litle ones normaly will not have that much damage built up thats to there extremly awsome healing powers. Simular issue with the blood test.

IMO, the response to the diet is the best indicator....

emma is 2 1/2years old the biopsys came back as haveing a problem in the intestine and they were convinced that they were consitatant with C/D. but would not confirm on this test alone. is this normal to? tracey and thanks

VydorScope Proficient
VydorScope
Posted
emma is 2 1/2years old the biopsys came back as haveing a problem in the intestine and they were convinced that they were consitatant with C/D. but would not confirm on this test alone. is this normal to? tracey and thanks

In my epxerence pediatric GI's are very gun shy about calling it celiac disease. My son was 18mos old when he got his bisopy done.

Let me say this, IMO, if you see postive results from the diet, ingore the testing.

That aside, typicaly in adults a postive biopsy is considered teh "gold standard" in America to dx celiac disease. So if your child was 20 years older, I would say NO thats not normal, but at his age, its a bit harder to tell. I would say that it is probably an overly cautius GI doc and your son problaby has it, BUT I AM NOT A DOCTOR.

You were advised to stay on the gluten-free dfiet with him, and I completely agree with that. If you see a postive change with it , then you have your answer, IMO. :D

Guest nini
Guest nini
Posted

positive dietary response is the most reliable indicator. blood tests and biopsy's can only confirm a dx of celiac, they cannot completely rule it out because it may be in the early stages, there may not be enough damage to show up in blood tests yet, the villi may not be damaged yet or they didn't take enough samples from enough areas.

I have to say ITA with Vincent... keep your child on the diet and monitor her progress... my daughter's blood work was negative or inconclusive, she DID NOT have a biopsy because her Dr. wouldn't even consider it (besides I didn't think it was neccessary) but she responded miraculously to the diet, and has horrible reactions when accidentally exposed to gluten. SO, I have my answer, and it looks like you will have yours if she shows improvement on the gluten-free diet.

VydorScope Proficient
VydorScope
Posted
I have to say ITA with Vincent...

:huh: what is "ITA" ? :mellow:

Guest nini
Guest nini
Posted

ITA = I Totally Agree :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,925
    • Most Online (within 30 mins)
      7,748
    Jackie Taunt
    Newest Member
    Jackie Taunt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      I was checking aip diet and discovered that aspirin is prohibited. I definitely can understand why that is but my cardio dr says to stay on it. So aip is done before I even get started.
    • cristiana
      How to choose a Naturopath for 6yr old

      By cristiana · Posted

      You are more than welcome.  I think there are quite a lot of different types out there, my own nutritionist was a v. highly qualified scientist as well, but at least you can see what qualifications they are which seem to be quite well stated.  I wish you all well on your son's coeliac journey. Cristiana
    • Jordan Carlson
      Raw Meat Craving

      By Jordan Carlson · Posted

      Thanks for the info @knitty kitty! I really appreciate when people recommend things for me to try, it helps a lot! I will run this stuff by my doctor at my next appointment next week. It is also good to know I am not alone with the continued reactions though. It has been pretty difficult for me and has taken a bit of a toll on my mental health. Trying so hard and dedicating so much time to resolve this issue just to feel like I am running around in circles. But i'm glad to get some insight from people who have experienced the same thing. My family and friends just keep saying i'm crazy andthat i'm a hypochondriac. But the only thing that has gotten me this far in my journey and this close to figuring it out is not listening to them and believing in myself.
    • Dawn R.
      Gluten Ataxia

      By Dawn R. · Posted

      Thank you for responding.  Yes I am.  Infact, sometimes I think it's getting worse. How do you deal with it? I do the best I can but it has taken away my independence.  
    • jadeceoliacuk
      How to choose a Naturopath for 6yr old

      By jadeceoliacuk · Posted

      Thank you Cristiana. I will check them out.
×
×
  • Create New...