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LEG PAIN?

gluten-free BIKER CHICK

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gluten-free BIKER CHICK Newbie
gluten-free BIKER CHICK
Posted

I have been gluten-free for over 3 years.  Over the past year I am getting severe legs pain, to achiness in my legs.  I have mentioned it to my doctor several times and he just blows it off as from the type of job I have (Sales Rep-sitting) or the walking I do every day.  I was just curious if any one else is experiencing this? 

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cyclinglady Grand Master
cyclinglady
Posted

If you have celiac disease, ask your doctor for follow-up testing to see if your antibodies are elevated.  This can help determine if you dietary compliant and if celiac disease might actually be the cause of your leg pain.  

Regardless of your reason for going gluten free, your symptoms should have resolved by now.  I would consider seeing another doctor.    Your doctor does not seem to take you seriously.  Sitting, even for long periods, and walking should not cause leg pain.  

I hope you feel better soon.  

tessa25 Rising Star
tessa25
Posted

Not sure how it works in your state, but here you can go directly to a physical therapist. I'd check to see if my hip was out (sacroiliac?).

gluten-free BIKER CHICK Newbie
gluten-free BIKER CHICK
Posted
  • Author

Thanks all.  I do have hip pain as well...Everything needs a referral to do any service here in NY.  You may be right about changing doctors.  I feel like my dr doesn't think food allergies are serious.  It's been a rough road.  Horrible insurance leads to misdiagnosis!!

 

TrainInVain Apprentice
TrainInVain
Posted

Leg and hip pain can also be referred pain from your back. I've had on and off hip pain for years, really bad persistent back pains, and occasionally have pain shoot down the back of my right leg too. Finally got x-rays for all as well as lower back mri and ct for back. My hips were fine but back I have severe disc degeneration, moderate bulging disc, moderate foraminal stenosis, and pars defect on both sides, the likely culprits for hip pain and occasional leg pains. Doctors said a lot times people have all the above back problems I have but don't know it or don't have pain from it.

  • 2 weeks later...
sarahbee1989 Rookie
sarahbee1989
Posted

Aside from making sure I’m 100% gluten free. I actually see a chiropractor as well to help with my aches and pains that I have. It’s very helpful and the doctor I see has special training with nutrition/supplements. She has been awesome since my diagnosis. Sometimes it’s better to see a doctor that believes in a more holistic approach :) 

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    • trents
      Awaiting diagnosis

      By trents · Posted

      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      Awaiting diagnosis

      By jlp1999 · Posted

      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Awaiting diagnosis

      By trents · Posted

      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Awaiting diagnosis

      By jlp1999 · Posted

      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Awaiting diagnosis

      By trents · Posted

      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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