Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coeliac back pain

Peter D.
 Share

Recommended Posts

Peter D. Rookie
Peter D.
Posted

Hi,

I was diagnosed  with celiac disease 2 months ago (after a year of suffering) and have been on gluten free diet since then. My symptoms, however, do not seem to disappear. My worst symptoms are severe back pain (mainly right side, i cant recongize if that is muscle or bone related), it is like stabbing and spasms. I also have pain in the mid backbone. It usally goes right to the chest + abdominal discomfort. What is strange to me is that the pain is worse during daytime, when moving. Night time is all right and the pain does not distrub me while sleeping.

Does anyone have a similar problem? Hope it is celiac related.

Thanks,

Peter

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
4 hours ago, Peter D. said:

Hi,

I was diagnosed  with celiac disease 2 months ago (after a year of suffering) and have been on gluten free diet since then. My symptoms, however, do not seem to disappear. My worst symptoms are severe back pain (mainly right side, i cant recongize if that is muscle or bone related), it is like stabbing and spasms. I also have pain in the mid backbone. It usally goes right to the chest + abdominal discomfort. What is strange to me is that the pain is worse during daytime, when moving. Night time is all right and the pain does not distrub me while sleeping.

Does anyone have a similar problem? Hope it is celiac related.

Thanks,

Peter

 

Two months after my celiac disease diagnosis, I fractured two vertebrae doing nothing.  Turns out I have osteoporosis as a result of having celiac disease.  I had months of pain, numbness and tingling.  Ask your doctor for a bone scan.  

But...two months is a short amount of time to heal from celiac disease.  It takes time to really master the diet which adds to healing time.  

Consider good follow-up testing.  

http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/

TrainInVain Apprentice
TrainInVain
Posted

I'm also newly diagnosed and have had some major back pains for years. I had to be persistent with Doctors about getting necessary x-rays and then MRI that showed the problems. Only one of the issues I think might be Celiac related. I have a pars defect on both sides. Which is a small fracture in the facet joints that support the vertebrae. Its very common among young athletes, which I am neither :p, which is why I thought might be Celiac related.

I would definitely start talking to your doctor about this pain if you haven't already. Mine didn't seem to raise any red flags with them until I mentioned the pain sometimes shoots down my leg.

  • 1 month later...
Rhotitar Apprentice
Rhotitar
Posted

Kind of late to this but my pain symptoms  are like your right side pain under ribs that travels to my bag. Gets better when laying down. Hurts more when I breathe. My guess you are still getting gluten from accidental sources. 

  • 1 year later...
Anna 07 Newbie
Anna 07
Posted

Hi Peter, I know this was a long time ago but I  have the exact same back symptoms.  Did you manage to find any answers? 

GFinDC Veteran
GFinDC
Posted
On 6/5/2020 at 6:49 AM, Anna 07 said:

Hi Peter, I know this was a long time ago but I  have the exact same back symptoms.  Did you manage to find any answers? 

Hi Anna,

Peter isn't following this thread so he may not see your question.  You can tell if people are following a thread by checking the small circle to the right of the thread title.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,098
    • Most Online (within 30 mins)
      7,748
    DDirasi
    Newest Member
    DDirasi
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DDirasi
      Everyday life

      By DDirasi · Posted

      I’m having a terrible time with my employer on this, they put me in an office next to where everyone places food for the department and have reactions when foods containing gluten are present. I’m extreme celiac and have a reaction in some bakery isles at the grocery store. Airborne gluten reactions are real in my world.
    • cristiana
      Options - 7 year old boy - Helicobacter pylori and serology

      By cristiana · Posted

      Thank you for the update.  At least now you know what you are dealing with.  Is the system similar to that in the UK in that you will have a follow-up with the gastroenterologist where you can ask any questions you have, and also a referral to a nutritionist?
    • Kathleen JJ
      Options - 7 year old boy - Helicobacter pylori and serology

      By Kathleen JJ · Posted

      We just had his diagnosis confirmed. The biopsy showed Marsch 3B.
    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      With patients who are experiencing ear ringing and ear pain I first want to make sure there is not any kind of ear infective process verified by your primary care. The next thing that I see as a dentist who treats a lot of temporomandibular joint disorders (TMJ), is that the jaw joint can be having a problem that causes the ringing to happen. My primary care physicians here in Colorado Springs will refer these patients to me for evaluation when they don’t find any source of infection with the ear. We are able to treat with a specific type of mouth splint and get resolution of the ringing and ear pain as we resolve the TMJ problem.  First a visit to your primary care to make sure your inner and outer ear is infection free. And if it is clean, a visit to a dentist who treats TMJ disorders. 
    • cristiana
      Options - 7 year old boy - Helicobacter pylori and serology

      By cristiana · Posted

      One thing I ought to add is that although any new medical condition diagnosis can come as a huge shock/blow, navigating the gluten free diet will one day become second nature to you all  Yes, mistakes occur on the way, but it will get easier.  A few things that have helped me on my journey: 1/ My husband has said to me a few times, and I think it helps. I should to try think of all the food I CAN still eat.  So much natural, unprocessed food, is gluten free, and a whole lot of processed and canned goods available in the supermarkets, too.  I can still eat Heinz Baked Beans and Tomato Soup, for example, and a lot of oven chips are gluten free.  Not all chocolate and candy contains gluten.  Excellent gluten free substitutes now exist in the supermarkets and I've lost count of the times I've been eating a product and shared it with a friend, and they have loved it.  Gluten-free doesn't mean taste free.  A lot of gluten-free substitutes are just as good as the 'real thing'. 2/ As time has gone by, I have met more and more coeliacs and other people who react strongly to gluten. This will happen to your son in time, and it often helps to be able to chat with someone who walks a similar path.  I now have over a dozen such buddies and we share tips and recipes, and also recommend 'safe' restaurants and cafes to each other.   3/ Family support.  It is good if you can offer a safe haven at home.  My family aren't coeliacs, but the only things they eat that are not gluten free is shop bought bread and pies, and occasionally biscuits and we keep them very separate.  The rest of the time we cook with gluten free substitutes and all eat the same.  I have always been a keen cake baker and my daughter who is not a coeliac actually prefers the crumbly texture of gluten free flour, so she always uses that, even outside the home.  You can spend lots of time cooking and baking with your son, he'll acquire a new skill, and without wishing to boast, if his cakes are as good as mine he will never be short of friends!!  My daughter has quite a following at Uni, and I don't think they realise that her cakes are even gluten-free! I hope some of this serves to encourage you. Cristiana    
×
×
  • Create New...