Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How long should I stay gluten free?


gluthena

Recommended Posts

gluthena Newbie

For the past few years I have had horrible indigestion. It wasn't until recently that I decided to do something about it due to the fact I began losing mass amounts of hair over the past few months. In photo comparisons, it appears I have lost almost 50% of my volume. I analyzed my diet and know I am getting enough nutrients in all categories. The only thing that makes sense is that I'm not absorbing what I'm eating. It's the only logical explanation when considering the fact I've had chronic diarrhea since 2014 (sorry if that is TMI!) I'm fairly certain this is because of gluten. (If not, I will try cutting dairy next.) I've been STRICT gluten free for 5 days (I know that's not a long time) but I'm still having diarrhea. SO, a few questions....

1) how long (on average) until I will see improvements in the bathroom? I know everyone is different, but how long should I stay gluten free before determining it is or is not that?

2) Is it possible I have a gluten sensitivity if diarrhea is my *only* symptom? I do not experience fatigue, bloating, or dry/itchy skin.

Note- seeing a doctor is not an option right now


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rehh05 Apprentice

Have you kept a food dairy and tracked what you were eating and drinking before you had diarrhea? Does anything make you feel better? If you are having nonstop diarrhea, you may need medical help to calm you gastric system down. If you could figure out what you CAN eat safely, you can base your meals around that and gradually add things in to see how you react. 

For me, it only took a few days of strict gluten free to have the diarrhea stop... but I also had to stop dairy because I was lactose intolerant. You could be lactose intolerant without being gluten sensitive or with it... it can also cause the runs... as can corn and corn products in some people... well, also other things, like too much oil or fried food. Don’t need to be celiac or gluten sensitive for that either.

The thing is, if you plan on getting tested for celiac, you will need to be eating gluten before hand so the immune reaction can be found in your blood tests. 

Chronic diarrhea can be a symptom of many things... some are really best treated by doctors (parasites, non-food related things). I hope you can find a solution.

 

 

ravenwoodglass Mentor

Testing before going gluten free is really best but if you can't do that then it would be a good idea to drop all dairy products along with the gluten. Celiac can damage the areas that produce the enzyme that allows you to digest dairy.  If you have been gluten and dairy free and the D resolves then add each back in seperately for at least a week and see if the D returns.  Also if D is waking you up at night then that is a good sign that you have celiac. IBS does not wake someone out of sleep.

Ennis-TX Grand Master

Food diary, and keep eating gluten and get the full celiac panel done. See about getting a endoscope and a colonoscopy at the same time. This way they can check for Celiac, Colitis, Crohns, Ulcerative Colitis or any other issue of the bowls that might be causing your issues.
Open Original Shared Link
Open Original Shared Link


Some with celiac have the D go away in a few days...I USED TO, past few exposures leave me with ongoing D for 4-6 weeks...takes that long for my antibodies to go down? Potassium supplements can help dry your stools out, eating stuff that absorbs liquid and adds bulk can stop liquid runs and at least reduce them to patties/semi solid, stuff like baked goods from coconut flour, or adding the coconut flour into shakes/egg dishes.

To help a bit with the hair, look up NeoCell Beauty burst collagen powder...I had to use it early on to help my hair.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,189
    • Most Online (within 30 mins)
      7,748

    Catherine22
    Newest Member
    Catherine22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...