Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can U Get Dh After Dx?

Moongirl

By Moongirl
in Dermatitis Herpetiformis

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


traveljunkie Rookie
traveljunkie
Posted

Do you mean if you accidentally get glutened?

Charlene

Guest CD_Surviver
Guest CD_Surviver
Posted

i do not believe so

Lauren

Moongirl Community Regular
Moongirl
Posted
  • Author
Do you mean if you accidentally get glutened?

Charlene

No, just in general, is it something that can develop?

Drew Newbie
Drew
Posted
i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Well, even if you had full blown DH to begin with, it would dissapear after you went gluten free. So no, if you are truly gluten-free then DH should not be a problem. There is a mechanism in the body that causes gluten intolerance to actually increase for 7 days after eliminating it. Perhaps you might get some extra symptoms upon accidental ingestion that you did not get before going gluten-free.

If you are getting itchy or painful red bumps on your skin that hang around for days and/or ooze and inflame... its probably a reaction from ingesting gluten. Think of it as a handy visual indicator :D Thats what I do to relieve the depression of seeing them appear.

Good luck being gluten-free

cornbread Explorer
cornbread
Posted

I never had DH, but having gone gluten-free, then casein-free and most recently (following positive antibody testing at Enterolab), soy and yeast free too, I got 'glutened' by yeast (yeasted?!) last week, and developed, for the first time ever, symmetrical, dry, very itchy marks. Both sides of my chest, stomach and inner arms. It looked a lot like some of the photos of DH I've seen. As soon as I tracked down the errant yeast source and cut it out, the marks faded and stopped itching.

Carriefaith Enthusiast
Carriefaith
Posted

Whenever I am glutened now, I usually get chicken pox like spots on my skin, which I never had before going on the diet. I'm not sure if it is dh because I have only had gluten in accidents or cross contamination since going gluten free. I also have a wheat allergy, so the spots could be related to that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 4 weeks later...
4getgluten Rookie
4getgluten
Posted

Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.

teebs in WV Apprentice
teebs in WV
Posted

I read somewhere (not sure where) that there are some people who always have DH symptoms - even after going gluten free. But, I think this is rare.

Carriefaith Enthusiast
Carriefaith
Posted
Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.
Rusla Enthusiast
Rusla
Posted

I truly don't consider them a pleasant reminder because, mine comes out on my face under my nose, corners of my mouth and below my bottom lip. It makes a mess out of my face. I feel like a leper, but certainly know when the smallest grain of wheat.

teebs in WV Apprentice
teebs in WV
Posted

This was how I was diagnosed with celiac - by the DH. I had it on my arms, legs, stomach and lower back....fortunately never on my face. On one hand, it is a terrible thing to endure, but on the other, it keeps me from cheating.

4getgluten Rookie
4getgluten
Posted
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.

I noticed them for the first time 2 weeks ago when I was glutened. I've been gluten-free for about 10 months now... strange. The last time I was glutened was in August, and I don't remember having this reaction. The weird thing is, I remember having this type of rash years ago before I was gluten-free. So, it may be something else. I guess I'll know for sure next time I accidentally eat gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,192
    • Most Online (within 30 mins)
      7,748
    Beatle Jane
    Newest Member
    Beatle Jane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Alpine Brand Spiced Cider

      By WednesdayAddams13 · Posted

      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      Family education

      By trents · Posted

      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Family education

      By Rogol72 · Posted

      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Supplements for those Diagnosed with Celiac Disease

      By peg · Posted

      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Cycle of dermatitis herpetiformis

      By Hopeful1950 · Posted

      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...