Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Working with gluten at brewery


healthysquirrel

Recommended Posts

healthysquirrel Enthusiast

Hello fellow gluten-free peeps!  I have recently been diagnosed with coeliac disease. I was a beer brewer and am wondering if it is dangerous for coeliacs to work with malts. Does the dust and the brewery environment gluten us even when careful ? I have not brewed since diagnosis and yes, I know I could brew gluten free beers, but I share the space, There would be so much cleaning and cross contamination to worry about. I will likely change things or stop brewing, but it would be fun to continue collaborating once in a which “normal” brewers, who use regular malts and need to know if it is dangerous for me. Thanks so much. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

If powdered yes....you inhale powders like flour etc and it gets stuck in the mucus in your nose and throat which eventually runs into your stomach. That is all it takes.
If you get it on your hands, under your nails, in your calluses etc. You can later gluten yourself when eating or fixing your own food.
I had to stop working in concessions years ago after dia and moved to trying to make and work in my own with with gluten free safe products and started a gluten free bakery and now looking at doing a food truck.

You can get new equipment and try brewing using fruit, for a cider or just hops and a sugar maybe blends of other sugars/starch bases other then wheat to make your own blend. I have a local guy who brews moon shine using oak chips for flavoring with sugar and ferments that with a special gluten free starter and often adds in fruit to give different flavors.

healthysquirrel Enthusiast

Hey Ennis,

I really appreciate your answer and respect that you turned things around to work in a suitable environment for you ! 

Thats very inspiring. I share my brewery, so I will need to move. Too much contamination. I looked online and asked my doctor and sort of knew the answer, but hearing it from someone who has coeliac disease has driven the point home for me. I needed to hear it from a fellow worker for some reason. I guess i’m in the bargaining phase of gluten grief hahahahaha. 

Have a great day thanks again 

Jen 

  • 3 weeks later...
LilyR Rising Star

I just saw a news story about a girl who was so severely sick with celiac, and once diagnosed, she went on a gluten-free diet, but still kept getting sick.  Come to find out it was because the family lived in a town/state that produces a lot of wheat, and apparently it is in the air.  The family had to pack up and move to a state that does not product that.  I never realized breathing dust in could do it.  Lots to learn!  Great post to help people learn. It is sad that we often have to give up favorite foods and beverages, but to give up a fun hobby is a bummer too.  I hear you about the bargaining phase, lol!  I still have stomach issues and I think I am going to have to cut more than gluten, and yet sometimes have still sneaked a soda, but corn syrup does not seem to do my any favors.  I hate this, lol!  

healthysquirrel Enthusiast
16 hours ago, LilyR said:

I just saw a news story about a girl who was so severely sick with celiac, and once diagnosed, she went on a gluten-free diet, but still kept getting sick.  Come to find out it was because the family lived in a town/state that produces a lot of wheat, and apparently it is in the air.  The family had to pack up and move to a state that does not product that.  I never realized breathing dust in could do it.  Lots to learn!  Great post to help people learn. It is sad that we often have to give up favorite foods and beverages, but to give up a fun hobby is a bummer too.  I hear you about the bargaining phase, lol!  I still have stomach issues and I think I am going to have to cut more than gluten, and yet sometimes have still sneaked a soda, but corn syrup does not seem to do my any favors.  I hate this, lol!  

Wow, interesting!

I know a man who moved his family to another greener area when his son developed asthma and his son is fine now. We just need to listen to what our bodies need. I loved brewing, but I would often fall asleep in the malt room, on the malt bags that were covered in dust involuntarily, right near the grinder.

I would grind with a mask anyway, but still, there was powder everywhere. It was a successful business because I brewed with love and created a different beer every week and had fun, but it was an easy decision to stop. I was always ill there. I might eventually re-open a gluten free brewery, but at the moment I am too tired to think of that and I am also impatient and cranky at the moment.

I drank a nice hoppy cider last night and thought yay, I can drink this. OOOOOPS I feel terrible today. Alcohol is not possible for me at the moment.

Depending how bad your villi are, you do need to give up way more than gluten at the beginning and reintroduce later. Especially things like soda because of their liquid drano effect. I try to do silly things that make it less dramatic, if I want a soda, I buy one and clean my toilet with it. It works and also saves me pain. If I want a beer, I buy one for someone else. Pizza however...I cannot eat with people who are eating pizza. Even people carrying pizza boxes annoy me with their smug faces. hahahaha! I have my limits :) 

Good luck with navigating your new diet. There are maybe things that you will introduce in your diet that you haven't even heard of yet that you will enjoy more than soda. I'm making a fruit kefir these days. tons of probiotics in there. kambucha too. 

All my best!

LilyR Rising Star
1 hour ago, healthysquirrel said:

Wow, interesting!

I know a man who moved his family to another greener area when his son developed asthma and his son is fine now. We just need to listen to what our bodies need. I loved brewing, but I would often fall asleep in the malt room, on the malt bags that were covered in dust involuntarily, right near the grinder.

I would grind with a mask anyway, but still, there was powder everywhere. It was a successful business because I brewed with love and created a different beer every week and had fun, but it was an easy decision to stop. I was always ill there. I might eventually re-open a gluten free brewery, but at the moment I am too tired to think of that and I am also impatient and cranky at the moment.

I drank a nice hoppy cider last night and thought yay, I can drink this. OOOOOPS I feel terrible today. Alcohol is not possible for me at the moment.

Depending how bad your villi are, you do need to give up way more than gluten at the beginning and reintroduce later. Especially things like soda because of their liquid drano effect. I try to do silly things that make it less dramatic, if I want a soda, I buy one and clean my toilet with it. It works and also saves me pain. If I want a beer, I buy one for someone else. Pizza however...I cannot eat with people who are eating pizza. Even people carrying pizza boxes annoy me with their smug faces. hahahaha! I have my limits :) 

Good luck with navigating your new diet. There are maybe things that you will introduce in your diet that you haven't even heard of yet that you will enjoy more than soda. I'm making a fruit kefir these days. tons of probiotics in there. kambucha too. 

All my best!

Pizza, one of my issues too, lol!  I have made a gluten-free pita pizza a few times so I at least get the taste of my homemade sauce, but it's just not the same.  I smelled kambucha once, lol, it smelled harsh.  I have only had a soda a few times the past year because of the corn syrup. I would love to find some maybe sold in health food stores made with cane sugar instead, if I ever do find any.  I tend to drink water all the time, but in the summer I often crave something a bit more, so this summer has been rough.  Even just lime and seltzer, the seltzer seems too much for me at the moment.  

It can make us cranky at times, I think.  Especially when you accidentally get glutened and get so sick.  Or when you are trying your best to eat right, and still get some issues and wonder what it's from.  Or when you find out yet one more thing you felt lucky to be able to eat suddenly you cannot eat that anymore.  I used to love to cook and experiment with recipes, and bake the old family traditional items, especially seasonal and holiday items.  I miss that. But I guess we go on and learn to deal with it. 

I am off to the store soon to try and get a few things to get over this recent glutened issue.  I haven't eaten much in a few days and am getting really hungry now, but almost scared to eat.  

I hope you find something besides brewing that you will enjoy, or give that gluten-free brewing a try.  I haven't had alcohol in over a year, but hopefully someday can get back to an occasional drink.  I bet if you did gluten-free beer you would have some happy local people who are craving some.  Our neighbor brews at home and we've tried some of his at times.  I loved his oatmeal stout. It was so amazing.  But I can't have oats either.  So, a nice water on the rocks, lol!  I did get some mineral water and put in a squeeze of lime and used a nice glass.  

Onward we go...

Ennis-TX Grand Master
5 hours ago, LilyR said:

Pizza, one of my issues too, lol!

Have you tried the Califour Foods Plant crust? Bit thin but gluten, corn, soy, dairy, grain, and even xantham gum free.  I have done everything from chips, pizza, dessert pizza, and even put two halves in a waffle iron with either Miyoko Vegan Mozz or Cream cheese between them with other fillings to make a off shoot of a calzone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LilyR Rising Star
On 8/28/2018 at 12:59 PM, Ennis_TX said:

Have you tried the Califour Foods Plant crust? Bit thin but gluten, corn, soy, dairy, grain, and even xantham gum free.  I have done everything from chips, pizza, dessert pizza, and even put two halves in a waffle iron with either Miyoko Vegan Mozz or Cream cheese between them with other fillings to make a off shoot of a calzone.

I haven't tried that yet.  Cauliflower has been making me bloat though.  I hope at some point it won't.  I had liked it with pasta sauce on it instead of noodles.  But so far it still bloats me.  Zucchini has too.  Green beans and carrots seem to be my best bet (and beets) so far with veggies.  

healthysquirrel Enthusiast
On 8/28/2018 at 1:20 PM, LilyR said:

Pizza, one of my issues too, lol!  I have made a gluten-free pita pizza a few times so I at least get the taste of my homemade sauce, but it's just not the same.  I smelled kambucha once, lol, it smelled harsh.  I have only had a soda a few times the past year because of the corn syrup. I would love to find some maybe sold in health food stores made with cane sugar instead, if I ever do find any.  I tend to drink water all the time, but in the summer I often crave something a bit more, so this summer has been rough.  Even just lime and seltzer, the seltzer seems too much for me at the moment.  

It can make us cranky at times, I think.  Especially when you accidentally get glutened and get so sick.  Or when you are trying your best to eat right, and still get some issues and wonder what it's from.  Or when you find out yet one more thing you felt lucky to be able to eat suddenly you cannot eat that anymore.  I used to love to cook and experiment with recipes, and bake the old family traditional items, especially seasonal and holiday items.  I miss that. But I guess we go on and learn to deal with it. 

I am off to the store soon to try and get a few things to get over this recent glutened issue.  I haven't eaten much in a few days and am getting really hungry now, but almost scared to eat.  

I hope you find something besides brewing that you will enjoy, or give that gluten-free brewing a try.  I haven't had alcohol in over a year, but hopefully someday can get back to an occasional drink.  I bet if you did gluten-free beer you would have some happy local people who are craving some.  Our neighbor brews at home and we've tried some of his at times.  I loved his oatmeal stout. It was so amazing.  But I can't have oats either.  So, a nice water on the rocks, lol!  I did get some mineral water and put in a squeeze of lime and used a nice glass.  

Onward we go...

Hilarious about the kambucha, i used to think it was rank as well, but then found a good local brand (urban kambucha, but it's swiss). Sorry you got glutened, I hear activated charcoal is a good thing for that, but I have not tried it and you must be careful that it doesn't interfere with other meds or renders your vitamins useless, i would ask the pharmacy. It is funny that pizza is something that can make us all a bit cranky. I think it is because it is so affordable and convenient.... oh, and delicious. Thanks for your answer, I think a gluten free brewery would do very well, but I was really inspired by the crazy mixtures of different malts and hops and other additions. I'll wait and see if the urge comes back. BTW there is a fantastic gluten-free brewery in Montreal called Glutenberg, they likely export to the us. maybe give that a try if you decide to drink again.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,874
    • Most Online (within 30 mins)
      7,748

    LeeD
    Newest Member
    LeeD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Most likely cross-contamination I believe.
    • cristiana
      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...