Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors Tomorrow


Moyni

Recommended Posts

Moyni Newbie

Hi all,

I’m off to the GP tomorrow to ask about Celiac, but I thought I would share my story so far and see what others think.

I was diagnosed in 2005 with IBS after getting bad stomach pains, bloating and the usual changes in stools, they did tests (scans, blood, stool etc) and did spot one of my liver function levels were high, but it went down after a few weeks so I got the IBS diagnosis, I don’t remember if they tested for Celiac though.

About 5 weeks ago I started to get bouts of feeling a little sick and getting slightly light headed, also bloated and needing the loo. They appeared to happen after I had been to a work meeting and had a working lunch which contains a lot of sandwiches and cakes etc (which I don't normally eat).

Having looked back at my messages to my wife, it also happened once earlier in June, the day after another work lunch and my birthday cake.

Thinking that gluten could be triggering my IBS, I stopped eating gluten (I know now this may not have been the best thing to do). After about 7 – 10 days I felt a lot better, I still got a little nausea but my ‘stools’ were as good as they have ever been, and I had no bloating etc.

We went on holiday and I ended up eating gluten, the symptoms returned, so after the holiday I stopped again and again after 10 days or so things were looking better, still some nausea but in myself I was good, able to run 6K etc etc.

I then found the celiac website (whilst googling all sorts of other things like pancreatic cancer etc and getting myself very worked up… I still am a bit tbh) and did the self assessment. This said I should go get tested, so I made the appointment and read that I need to continue to eat gluten, which I did on Saturday…. That didn’t go well. Felt really bad after, worse nausea, light headed, my tinnitus got a lot worse (without noticing, it had got better when off gluten), and almost feeling like I was starting with the flu.

So here I am, felt nauseous this morning again, read the advice for tomorrow, and I had missed the bit about needing to have eaten gluten for 6 weeks before the test…. Ahhhh that won’t be fun.

 Anyway, assuming my anxiety isn’t right and this isn’t something nasty, and the bread then ill had been a coincidence, my body appears to have decided it doesn’t like gluten and I either have celiac, or its causing my IBS to flair.

Anyone else had a similar story?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

There are over 200 symptoms for celiac disease.  Best to get tested as symptoms for celiac disease overlap with other illnesses.

Open Original Shared Link

I hope you feel better soon!  

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,950
    • Most Online (within 30 mins)
      7,748

    Malik
    Newest Member
    Malik
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cookiesyum
      The easiest way to remember the difference between the cholesterol types is HDL;   H=healthy equals healthy (omega 3, 7, limit 6 & 9 MCFA'S =Medium Chain Fatty Acids. 3= coconut oil, 7= sunflower oil, avocado. The higher your HDL the healthier you are & less likely to experience strokes, clogged arteries Etc. You can even use cold expeller pressed coconut oil on your skin and that is the best kind of coconut oil to eat as well. You want your HDL much higher than your LDL, it will help you stay healthy.   LDL;    L=Lousy. Meat fats, processed fats.  The higher your LDL is the more likely you will have strokes, clogged artery is, heart disease, fatty liver.   Then there's lipids... they are the culprit to be blamed for many heart attacks and things like that they are very small round particles that transport fats. You can have a low overall cholesterol reading and most of it be healthy cholesterol and have a ton of lipids and there's nothing you can do to change the lipid count. High number of lipids is very dangerous.   I'm going on statins is extremely dangerous if you ask me it's just completely my opinion, because I have seen so many of my elderly friends bleed to death internally because of the statins. I mean you wouldn't take all the oil and grease out of your car or a motorcycle and then try to drive it that way would you? You see that's what statins do they remove all of your bodies fats and it doesn't matter whether it's healthy fats or a lousy fats. It removes all of them and then your body can't function properly. You have to have fats to keep your skin supple and to stay warm. Your body also needs fats to digest & process certain nutrients, amino acids & vitamins.   Your brain is composed of fat so is that something you really want to remove with a pill every morning and night?   The thing about statins is that they also make the blood vessels and capillaries permeable. So this is how my friends who were on cardiac medication for a long time and statins ended up bleeding internally to death.   If you want to make sure that your heart is healthy, take odorless garlic at night and magnesium, vitamin K & calcium.     
    • pdm1981
      It's also a symptom of EPI.
    • Wheatwacked
      Yes.  Proportionately a small piece to a toddler is like a whole slice to an adult.  This is an important clue.  She was doing well, accidentally ate gluten and later the old behavior returned. I remember reading posts here of people reacting to a kiss from someone who had just eaten gluten. Recent research indicates that 40% of first degree relatives of someone with Celiac have undiagnosed Celiac Disease.  Father, mother, siblings.  There is a whole list of symtoms of "silent celiac".  Here is an article of symptoms possibly mistaken for other causes than Celiac Disease.  When I finally stopped gluten at 63 years old, I counted 19 things that improved, including lifelong mouthbreathing.  I never smelled bad things, so I as a kid, I learned to respond to the other kid's response in order to not seem weird. I really recommend you pursue testing for all the family if you can, and the whole family following GFD.  It is difficult at first, but the benefits will be worth it.  
    • Visionaerie
      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
×
×
  • Create New...