Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

DH and 28 weeks pregnant


Hajarr

Recommended Posts

Hajarr Newbie

Hi, I have had this intensely itchy/burning/hot rash for five weeks now. It started on my legs and had spread absolutely everywhere, even my face and scalp are red and itchy. I thought it was PUPPPs and have had no relief all this time, except short term with ice packs. 

I do have celiac disease (and follow the diet) but had never heard of DH until today when the doctor said that’s what it looks like. 

She prescribed Sulfasalazine. Does anyone have experience with DH during pregnancy? What did you do? What helped? Will this stay with me after delivery? Please help, I am miserable and so worried for the baby. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
8 hours ago, Hajarr said:

Hi, I have had this intensely itchy/burning/hot rash for five weeks now. It started on my legs and had spread absolutely everywhere, even my face and scalp are red and itchy. I thought it was PUPPPs and have had no relief all this time, except short term with ice packs. 

I do have celiac disease (and follow the diet) but had never heard of DH until today when the doctor said that’s what it looks like. 

She prescribed Sulfasalazine. Does anyone have experience with DH during pregnancy? What did you do? What helped? Will this stay with me after delivery? Please help, I am miserable and so worried for the baby. 

I do not have DH, but I have been pregnant and understand your concerns.  I have not seen Sulfasalazine prescribed for DH.  I would definitely research the possible effects with a pregnancy.   

Open Original Shared Link

Dapsone is usually the first line of defense with drugs, but these drugs can have serious side effects.  Really controlling your diet seems to be the key.  You may have to be super strict.  Even certified gluten free foods may be too much for DH sufferers.  

Open Original Shared Link

Read through the DH section of the forum.  Look for SquirmingItch’s postings.  She always has good DH advice.  Ice and cold compresses can help with the itching.  Consider the Fasano diet because it sounds like you might have had a gluten exposure somewhere (hidden).  It basically is just whole non-processed gluten free foods.  20 ppm might not be safe enough for you while you are pregnant.  Who knows?  

Open Original Shared Link

Link to comment
Share on other sites
ravenwoodglass Mentor

You have gotten some good advice from C-lady. With your having open lesions please be sure to check your topicals and make sure they don't have any gluten ingredients. You should also drop any iodine as that can keep the lesions active. Cool compresses may give some relief and although it may sound strange you may want to get some cotton gloves to wear to bed so you aren't scratching in your sleep. Time will heal the lesions as long as you are not cross contaminating yourself repeatedly. Do read the Newbie 101 thread at the top of the Coping section as it may help you pinpoint what may be getting you. Before you fill the script talk to the pharmacist and do make sure that your celiac is noted in the Pharmacey's records for you. I hope you get some relief soon. I know all too well how painful DH is. In addition if the doctor that said this was DH is a GP maybe ask for a referrral to a dermatologist just to be sure this isn't something else as you state you have never had DH before.

Link to comment
Share on other sites
GFinDC Veteran

I'm sorry for your condition.  I don't have DH either but have also read that stopping iodine intake including fish, seaweed or other foods that contain it like iodized salt is helpful to stop the skin reaction.  I think milk is another source of iodine.  I don't know why iodine makes the reaction worse but that's what experienced people say it does.

Other than that a whole foods diet of meats, veggies, nuts and fruit is generally a good diet for a celiac.  Dairy is often a problem for the first 6 months or so.

Link to comment
Share on other sites
Metoo Enthusiast

I had DH not while pregnant but I had to cut out dairy, eggs, fish and salt.  Took Dapsone and was still struggling.   Then eventually cut all packaged gluten free foods...it then took 2 months for the DH to go away, only about 4 weeks for it to stop spreading though!  

Probably not what you want to hear but being really strict with diet is the only way out.  

 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,876
    • Most Online (within 30 mins)
      7,748

    YANKEE39
    Newest Member
    YANKEE39
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
    • trents
      Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
    • StrongerThanCeliac
      Hi,  I’ve noticed that it usually takes me about 5-6 days to recover from a glutening. I was just thinking and maybe I’m going crazy. Long story but I wasn’t able to brush my teeth for a couple days after being glutened. Is there a way the gluten could be like stuck in my teeth still and still causing some sort of reaction because I waited too long to brush? Or is that insane
    • cristiana
      @Gluten is bad Hi!  I just caught this post, and am writing on the off-chance that you might be based in the UK.  If so, I was told some years ago by a pharmacist that in the UK that if a medicine has a Product Licence printed on the packaging, which will appear as the letters PL plus a long number.... for example....  PL 4525908 (making that number up!) it will be gluten free.   I have just checked this on an NHS website, and indeed it appears to be true.  According to the same website, all medications prescribed by GPs in the UK are gluten free. https://www.nhsinform.scot/healthy-living/food-and-nutrition/special-diets/gluten-free-diet/#medicines The same NHS website also makes a very good point.  You might take a gluten-free medication prescribed by a GP that might set off symptoms very similar to a glutening.  Like some meds cause stomach pain or diarrhea, but that doesn't mean they contain gluten. Obviously, if you are purchasing medication from overseas, the above might not apply. Hope this is helpful, and that you can get your medication soon - I have an acquaintance who has had to wait some time. Cristiana
    • gemknorodo
      I wonder if the tTG-Iga result isn't back yet as there is nothing next to that one, perhaps it takes a little longer.  
×
×
  • Create New...