Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired of being tired and feeling sick...


TexasFan914

Recommended Posts

TexasFan914 Newbie

Hello all! I am new here and seeking whatever advice, direction, and help I can get. I recently went into my GP and unfortunately did not get a very good response. I explain all of my symptoms and past history which led to a blood test (metabolic, lipid, yah). I got a letter telling me my cholesterol was high so I needed to exercise and change to a low fat diet. That’s where I am at right now. I did have some numbers that were off and I am willing to share. For example my glucose was low and this was a fasting blood test.

My background - I had stomach ulcers in late 2015, mono in 2016, and mono again in 2017. I am a 34 year old female - former half marathon runner that suffers from sever fatigue now. I cannot exercise much without getting too tired. In the last six months I have developed a lot of bloating, stomach fullness, some pain in my back at times and in my stomach, indigestion, burping, and nausea at times. I’m trying hard to figure out what could be causing these symptoms. Those that have celiac and/or intolerance do these symptoms line up at all?

Thoughts anyone? I appreciate your time.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master
6 hours ago, TexasFan914 said:

Hello all! I am new here and seeking whatever advice, direction, and help I can get. I recently went into my GP and unfortunately did not get a very good response. I explain all of my symptoms and past history which led to a blood test (metabolic, lipid, yah). I got a letter telling me my cholesterol was high so I needed to exercise and change to a low fat diet. That’s where I am at right now. I did have some numbers that were off and I am willing to share. For example my glucose was low and this was a fasting blood test.

My background - I had stomach ulcers in late 2015, mono in 2016, and mono again in 2017. I am a 34 year old female - former half marathon runner that suffers from sever fatigue now. I cannot exercise much without getting too tired. In the last six months I have developed a lot of bloating, stomach fullness, some pain in my back at times and in my stomach, indigestion, burping, and nausea at times. I’m trying hard to figure out what could be causing these symptoms. Those that have celiac and/or intolerance do these symptoms line up at all?

Thoughts anyone? I appreciate your time.

Get your B12 level tested.  B12 deficiency will cause your body to make more cholesterol. Here's an article from National Institute of Health

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4356060/

B12 deficiency is common in Celiac Disease, and B12 deficiency can cause gastrointestinal symptoms, but there are other reasons for a B12 deficiency besides Celiac Disease.

If you suspect Celiac Disease, you should get the full panel of blood tests for Celiac Disease.  

http://www.cureceliacdisease.org/screening/

Hope this helps.

Link to comment
Share on other sites
jill b 2 Newbie

My biggest symptom was incredible fatigue, sometimes sleeping entire weekends. I had complained for years and undergone all kinds of tests, even had nasal septum surgery.  Looking back I remember a little bloating and indigestion but that's it.  While being tested for other things it was determined that I had severe osteoporosis, early onset (55 yrs).  My PCP at this point suspected malabsorbtion (I also had anemia) and the blood work for celiac disease came back positive followed by a positive endoscopy.  After several weeks of gluten-free diet (it's  been 11 yrs) I now have so much energy I don't know what to do with it!   A point:  do not put yourself on a gluten-free diet before testing or you could show false negative.

Link to comment
Share on other sites
pikakegirl Enthusiast

I have been militant gluten free for 11 years  so far no positive tests since diagnosis however that is not my biggest challenge. In had an iron stomach before diagnosis with silent celiac. Since gluten-free the food intollerences went wild. I went down to 10 foods and balanced my gi. Slowly i tried one food at a time. Found over the years the FODMAP diet eliminated gas and bloating and that I am MTHFR positive meaning i was not absorbing folic acid and foods high in it made me sick. I now take 3000mg L-methylfolate and felt less nerve pain and fatigue right away. Liquid B12 methylcobalamin is the only one I absorb...is like cafine I have so much more energy. Also B6 in form P5P for easy absorption. Other B vitamins make me feel depressed and sluggish. Finding your specific chemistry is the key.

Link to comment
Share on other sites
  • 2 weeks later...
EllenW Newbie

Hi TexasFan914, 

You don't mention if you have been diagnosed with Celiac disease. Have you?

First of all, our society has a real problem surrounding our diagnosis of high cholesterol and health, specifically heart health. (See "The Cholesterol Myth" by Jonny Bowden and Stephen Sinatra). High cholesterol has NOT been proven to be caused by diet, and myocardial infarctions have NOT been proven to be caused by high cholesterol. This is a red herring that western medicine doctors default to, following poor "science" 50 years ago.... In fact, as an athlete, cutting back on fat is a very bad idea. Trans fats and sugar are the largest culprit of heart health issues and everyone should try to avoid these for their health. They are primarily found together in processed and baked goods.

Like all nutrients, it's not a good idea to supplement B12 if you do not have a deficiency. B12 is not included in a CBC and must specifically be requested, so I would suggest asking your doc to do an OH25 (vitamin D), B12, and full thyroid panel to get some information on the potential cause of the fatigue. If you are seeing the doctor for the symptom of fatigue, these should all be covered by insurance. 

As far as the digestive issues are concerned, (gas, bloating, pain, nausea, etc.) there are MANY potential causes. In addition to auto-immune diseases, root cause could be food allergies, sensitivities, and/or intolerances (allergies and sensitivities are immune-system conditions and intolerances are a lack of the necessary enzyme to digest the food) These can all be serum tested for, but the testing is still being developed/perfected. Elimination diets can be of huge success to identify food issues but many people hate the idea of them and have difficulty sticking to them because it usually means they can't consume their favorite foods for some time. (And hint, OFTEN it is those foods that you are most "addicted to" or say you "couldn't live without" that are contributing to the chronic problem.) I would put money on the fact that with these symptoms and your history of ulcers and mono, you most likely have a leaky gut which, regardless of root cause would need to be repaired (See "Eat Dirt" by Dr. Josh Axe). Stress, OTC and prescription drugs, gut flora, parasites, and other autoimmune diseases are all potential root causes to leaky gut and digestive issues. So if anyone tells you to "just do this or that" to address your symptoms, they are not considering your unique situation and are throwing darts that may or may not work for you. 

Unfortunately our western medical system doesn't usually work with the details of identifying contributing factors within diet and lifestyle, and will usually try to address symptoms with pharmaceuticals. I highly recommend that you find a functional medical doctor or naturopath with good references to work with to help you identify and resolve your unique situation from a holistic perspective.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to hilly's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Extreme bloating even gluten-free

    2. - hilly posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Extreme bloating even gluten-free

    3. - Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

    4. - cristiana replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

    5. - Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,667
    • Most Online (within 30 mins)
      7,748

    Schellee94
    Newest Member
    Schellee94
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Some studies, with admittedly small sample sizes, show that about 50% of celiacs react to the protein casein in dairy the same way they do gluten. Can't find the NIH article I'm looking for but this one basically makes the point:   
    • hilly
      I was diagnosed in April. I have been very careful about being gluten-free, except for one accident in August where I ate candy with wheat. Despite being careful, I still experience extreme painful bloating almost daily. I'm so frustrated. I stopped eating gluten-free oats because I wondered if that was it. Now I am wondering if is dairy. I'm already tired of constantly wondering if I messed up.
    • Scott Adams
      In general I'm all for a formal diagnosis, except in cases where someone gets very sick when they eat gluten, and have already been on a gluten-free diet for a long time and don't plan to eat it again anyway. There seems to be more drawbacks that keep popping up with being formally diagnosed--at least here in the USA. I can testify that it's definitely harder to obtain life insurance, and if you can get it the premiums are quite a bit higher than if I did not have it, at least from my fairly recent experience when getting a new policy.  @Ginger38 you're very close to the end of your challenge, so let us know how it turns out.
    • cristiana
      Just to add something here... if any people in the UK are reading this, there can be definite advantages if you are formally diagnosed coeliac,  in terms of getting extra support from the NHS.  For free you get to see a nutritionist, additional vaccinations if deemed necessary, in some areas prescriptions for gluten free food; bone density scans, annual blood tests and reviews with a gastroenterologist, plus it has been my experience I've been able to see a gastroenterologist without a GP's re-referral when I've had complications.  That said, I don't know what impact there would be on health insurance; but I have found that when it comes to travel insurance I have had to declare it but it hasn't made any difference to the premium. However, I realise things can be very different in other parts of the world, and I am not sure where you are from, @Ginger38  
    • Ginger38
      Yes I figured out I couldn’t have gluten years ago when I was symptomatic and tested positive, but was misinformed and told I couldn’t have celiac but to go gluten free. I was already gluten free. I was never willing to go back on gluten and make myself so sick to have the biopsy especially when the biopsy isn’t 💯. But Now I have to have a procedure anyway and he told me he was doing the biopsy either way .. but I should consider the gluten challenge since I have never had the biopsy. He acted like it was super important to have this on paper.  I had no idea there were any possible negative drawbacks to having a formal diagnosis 🤦🏼‍♀️
×
×
  • Create New...