Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What is a high level of antibodies for someone with celiac?

Mharzbarz9959

Recommended Posts

Mharzbarz9959 Apprentice
Mharzbarz9959
Posted

I have recieved the results of the blood test for the increased number of antibodies and I have tested positive at a level of 155. Is this a high number of antiobodies or not? Has anyone had higher or lower and been diagnosed?

I will be getting a biopsy in around 4 weeks.

thanks in advance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Yes that is high. If it was say 20 or so I would ask what the normal ranges were but 155 is far above any normal ranges I have ever seen. Do make sure you keep eating gluten until your endo is done. After the endo you can go gluten free and should no matter what the endo results. Damage can be patchy and get missed so positive blood test trumps negative biopsy. I hope you heal quickly.

Mharzbarz9959 Apprentice
Mharzbarz9959
Posted
  • Author

I am sorry but I forgot to mention that although I know this is a US site I am actually from the UK because this was the best site I could find. (and under the NHS) so could the range of antibodies be different to the US ranges? Maybe that would explain why 155 is so high because my gastroentoligest told us that 50-60 is the normal range for people without celiac disease. Sorry if this changes it a bit.

ravenwoodglass Mentor
ravenwoodglass
Posted

that is still 3x the normal range. Not much doubt about your being celiac. We have many members from other countries including the UK. All are welcome. If needed you can ask about UK specific brands etc in the products section and folks from your country may be able to help.

Welcome to the club you never wanted to join. We are here to help in any ways we can.

Mharzbarz9959 Apprentice
Mharzbarz9959
Posted
  • Author

Thank you for all your help. ?

Mharzbarz9959 Apprentice
Mharzbarz9959
Posted
  • Author

I will make sure to eat gluten until I have been properly diagnosed and everythings done ?. Not looking forward to all the symptoms of eating gluten though. Sorry forgot to put this in my reply above 

ravenwoodglass Mentor
ravenwoodglass
Posted

Some find it helpful to eat their daily 'dose' in the evening. You don't have to eat a lot. A couple slices of bread worth of gluten is enough. If your symptoms are severe your doctor may be able to give you some medication to help. Immodium can be helpful if you need to leave the house and Pepto Bismal liquid can help if you get stomach pain. If you have favorite gluten items that you think you will miss now is the time to have them. Use the time also to start preparing your home and pantry for after the endo.

If your symptoms become very severe do contact your doctor.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mharzbarz9959 Apprentice
Mharzbarz9959
Posted
  • Author

Yes, I usually have a breakfast or lunch and a dinner that contains gluten. I usually dont suffer “excruciating” stomach pains but they are not too nice either. I have already had a toasted sandwhich and am planning on eating a pizza before my endoscopy. Will cause my intestine to hate me but its worth it for a last pizza ever ?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,124
    • Most Online (within 30 mins)
      7,748
    Stanner
    Newest Member
    Stanner
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • StaciField
      My bone structure is disintegrating and I’m having to have my teeth removed

      By StaciField · Posted

      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      Celiac Maybe a Possibility?

      By Wheatwacked · Posted

      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      Weird Symptoms

      By Scott Adams · Posted

      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Weird Symptoms

      By cristiana · Posted

      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...